A thing about AYA survivorship.
A thing about how we (hopefully) have decades of life ahead of us…which means we have decades of late effects that we need to have addressed.
A thing about how we look OK on the outside, but inside our bodies are deteriorating faster than our non-cancer survivor friends, colleagues & partners.
A thing about how hard it is for non-oncology providers to keep up with the multitude of late effects that we experience.
A thing that, in my 25th year of being a cancer survivor, I’m finally able to articulate. I couldn’t put these thoughts into words before; but with time and distance, you develop a sort of clarity.
https://ascopubs.org/doi/10.1200/OP.23.00798
#patientisotherwisehealthy
6 months agokelly_martin14
This is amazing, YOU are amazing. Inspired by your advocacy and vulnerability doing this work!
3 years agodrkatiedpt
Thank you for a beautiful article and for being so open! Petrified was a great word to use, one that has been uttered before by survivors I’ve met. Thank you for bringing a living breathing person to the value of a good chart review and as a reminder to treat the whole person.
3 years agostephnt10
🙌🏻🙌🏻excellent! Would love to collaborate with you someday, Scott. I'm a 3 time head and neck pediatric/aya cancer survivor and PhD candidate in exercise oncology
3 years agojessicahensleyyoga
Great article on such an important topic! It feels like an uphill battle to find doctors that will take the time to look under the hood beyond how things appear on the outside. As more and more people live well beyond their diagnosis, the medical community needs to be mindful of these needs.
3 years agonhill42
As a nurse and breast cancer survivor dx at 40 I so appreciate this article. Thank you for sharing your experience and hope with others.
3 years agoalex11_14
As an AYA survivor and 11 years post treatment, this resonated with me deeply. Beautifully written. Thank you for sharing your experience!
3 years ago__fromtheforest__
Wonderful piece, thank you for your insight and eloquent words! I’m an oncology physician assistant and am going through treatment for breast cancer in my 30’s. I feel your words deeply ❤️
3 years agooncpt
Wow Scott! Amazed at your continued dedication to help others while putting a large piece of yourself out there.
3 years agocancerrehabpt
This is such an incredible piece, Scott! It truly opened my eyes and provided a lot of insight. Thank you for writing this!
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