Instagram story viewer> @romanperryaudio> Post
2 years ago
Photo by 𝓡𝓮𝓪𝓾𝔁 on February 11, 2025.
Photo by 𝓡𝓮𝓪𝓾𝔁 on February 11, 2025.
Photo by 𝓡𝓮𝓪𝓾𝔁 on February 11, 2025.
Photo by 𝓡𝓮𝓪𝓾𝔁 on February 11, 2025.
Photo by 𝓡𝓮𝓪𝓾𝔁 on February 11, 2025.
Photo by 𝓡𝓮𝓪𝓾𝔁 on February 11, 2025.
Photo by 𝓡𝓮𝓪𝓾𝔁 on February 11, 2025.
Photo by 𝓡𝓮𝓪𝓾𝔁 on February 11, 2025.
Photo by 𝓡𝓮𝓪𝓾𝔁 on February 11, 2025.
Photo by 𝓡𝓮𝓪𝓾𝔁 on February 11, 2025.
134
Posted On: February 12th 2025, 02:58 am
Tagged Users:
This morning I had my first and hopefully last treatment for cancer. Last April I noticed a lump in my leg, my doctor initially said that it was likely a benign cyst but to let him know if it started growing or became painful. In the fall/winter of last year it grew and started to become a little painful so I got some imaging done with very suspicious results. In January I got a biopsy at Sloan Kettering in New York and it came back as positive for cancer, specifically an incredibly rare one called Alveolar Soft Part Sarcoma. Of course I would find myself getting the cancer that only 80 people per year in the United States get diagnosed with - so on brand. Luckily we caught it very early, no detection of spread which is also rare with this type of cancer. My oncologists believe that based on its size I’m right on the edge between stage 2 and stage 3.

This morning I got it removed in a successful surgery at MSK. Because we caught it early, and the surgeons initial impression of margins are good, we are hoping this will be the only treatment I need to have.

I knocked it out today and if it rears its ugly head again I’m gonna be ready for it.

This year has been a whirlwind so far (for many reason) and I’m still adjusting to the reality of living with cancer. There were definitely some dark times for me during the initial diagnosis phase but right now I’m in the mindset that I’m gonna be totally fine, weirdly probably better than I would have been if I didn’t have cancer. This experience has given me such deep appreciation for my health, my life, and for the love I have found with the people around me. I wouldn’t have gotten through this without the amazing doctors, friends, and family that I have in my corner. I’m gonna beat this thing and live.

#alveolarsoftpartsarcoma
Comments (134)
itscollinwatt 2 years ago

itscollinwatt

🙏🙏

samdoolittle 2 years ago

samdoolittle

Oh Roman, as someone who had a tumor removed a few years ago, I know how scary it can be. And to have such a rare one! I can’t imagine how you’ve felt navigating that. I’m so, so glad that you caught it early and that you’ll be in remission soon and (hopefully!) forever.

little_castle_sound 2 years ago

little_castle_sound

Thanks for sharing. Had no idea. You’re a warrior champion!!!

amybothe 2 years ago

amybothe

Roman. So sorry to hear this. But sounds very positive. You’ve got this

euphoriahart 2 years ago

euphoriahart

Well you are a rare breed aren’t u?! And lucky that you caught it early and probably nipped it in the bud. Sending love and good healing vibrations your way! ❤️

shesonlyrockandroll 2 years ago

shesonlyrockandroll

Sending you love and healing Roman!

gincore13 2 years ago

gincore13

Much love Roman. Nip it in the bud!! 🙏♥️

annaleighmoo 2 years ago

annaleighmoo

Love you Roman!!!! A rare illness has no chance against your sharp wit and general badassery. But for real… you are amazing and I’m so glad you’re doing well 💙

monalunalove 2 years ago

monalunalove

Lucas and I are so glad you’re doing okay and hopefully on the other side of this. And so very hipster of you to get something people probably haven’t heard of.

sxg_pdxtca 2 years ago

sxg_pdxtca

Roman, I hope I don’t have cancer but suspect I might. My heart goes out to you bro!

noahriley.audio 2 years ago

noahriley.audio

god bless roman. You got this

alexdilojann 2 years ago

alexdilojann

Wow Roman I’m so sorry but glad you’re on the mend. You got this 😤

Load More

More posts

back to up