8 months ago
53
3
Posted On: March 18th 2026, 04:41 pm
Families facing ultra-rare diseases often fight their battles in the shadows.
We are deeply grateful to Becky Quick and @cnbc for shining a light on these journeys through CNBC Cures, giving a crucial voice to the rare disease community and the innovators working to find solutions.
Tune in tomorrow night, Thursday, March 19, at 7 p.m. EST for the premiere of “Defying Rare Disease” on CNBC.
Our Founder and CEO, Rich Horgan, sits down with Becky to discuss, how we develop genetic treatments for ultra-rare conditions, the roadblocks the biotechnology industry must still overcome, and the enduring legacy of his brother, Terry, which fuels our mission every day.
#Raredisease #CNBCCures
We are deeply grateful to Becky Quick and @cnbc for shining a light on these journeys through CNBC Cures, giving a crucial voice to the rare disease community and the innovators working to find solutions.
Tune in tomorrow night, Thursday, March 19, at 7 p.m. EST for the premiere of “Defying Rare Disease” on CNBC.
Our Founder and CEO, Rich Horgan, sits down with Becky to discuss, how we develop genetic treatments for ultra-rare conditions, the roadblocks the biotechnology industry must still overcome, and the enduring legacy of his brother, Terry, which fuels our mission every day.
#Raredisease #CNBCCures
Comments (3)
8 months agoroseandresilience
Love seeing a spotlight on rare disease. Our kids have the same value as anyone else and many of their diseases are treatable as long as we put in the effort. It’s time to change the world - we can do it. ❤️🙌
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