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3 months ago
Co Creator: end_the_legacy mindywrites1 searchforaselfcure
11
Posted On: July 25th 2026, 08:37 pm
In the era of the 2nd Ice Bucket Challenge, Mindy is a fellow C9 carrier who is turning the average age of C9Orf72 ALS/FTD onset in a month. To celebrate, she is fundraising towards a cure for C9. So she gets to live 🙏🏼

You can donate on my Instagram page or on her website mindyuhrlaub.com and do check it out, as she is an amazing, award-winning author who writes about what it’s like to be a C9 carrier—like me.

You can meet either @mindywrites1 or me in Sacramento at the @end_the_legacy summit in September! Just a few spots are left, so register now ✨

Let’s #curec9! #mdphdtobe #CureALS #CureFTD @searchforaselfcure
Comments (11)
kimmy.w.hansen 3 months ago

kimmy.w.hansen

I look forward to meeting any of y’all in Sacramento. I’m a card carrying member of your club.

end_the_legacy 3 months ago

end_the_legacy

https://www.endthelegacy.org/communitysummit2026

gently_as_she_goes 3 months ago

gently_as_she_goes

Thank you @your.premed.besti for putting together this video! ❤️❤️❤️

mindywrites1 3 months ago

mindywrites1

❤️

brookemmerich 3 months ago

brookemmerich

AMAZING THE TWO OF YOU ON SCREEN AT ONCE OMG😍

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