Posted On: July 25th 2026, 08:37 pm
In the era of the 2nd Ice Bucket Challenge, Mindy is a fellow C9 carrier who is turning the average age of C9Orf72 ALS/FTD onset in a month. To celebrate, she is fundraising towards a cure for C9. So she gets to live 🙏🏼
You can donate on my Instagram page or on her website mindyuhrlaub.com and do check it out, as she is an amazing, award-winning author who writes about what it’s like to be a C9 carrier—like me.
You can meet either
@mindywrites1 or me in Sacramento at the
@end_the_legacy summit in September! Just a few spots are left, so register now ✨
Let’s
#curec9!
#mdphdtobe #CureALS #CureFTD @searchforaselfcure