Posted On: August 4th 2026, 08:12 pm
This piece was IBD specific, but the point applies to patients everywhere: if you’re building guidelines, consensus statements, or care pathways for a condition, the people living with it need to be in the room from day one, not brought in at the end to sign off on something already decided.
That was the case we made in this joint editorial in Gastroenterology, co-authored with Johan Burisch and Daniel Keszthelyi.
Let me know if you’d like the link to the editorial and I’ll send it over.