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Posted On: October 23rd 2026, 02:00 pm
Last month, PKD Foundation Advocacy Champion Sean Piccirilli spoke at a congressional briefing on the Congressionally Directed Medical Research Programs (CDMRP), sharing his family’s experience with ARPKD and why the CDMRP’s continued investment in PKD research matters.
Sean is a recently retired Air Force intelligence officer with 24 years of service, a father of a child living with ARPKD, and a longtime member of our Advocacy Champions Network.
The briefing was led by the Defense Health Research Consortium, a coalition of patient and community groups advocating for the CDMRP. The PKD Foundation is proud to be a member.
Thank you, Sean, for sharing your family’s story and being a powerful voice for the PKD community!
Sean is a recently retired Air Force intelligence officer with 24 years of service, a father of a child living with ARPKD, and a longtime member of our Advocacy Champions Network.
The briefing was led by the Defense Health Research Consortium, a coalition of patient and community groups advocating for the CDMRP. The PKD Foundation is proud to be a member.
Thank you, Sean, for sharing your family’s story and being a powerful voice for the PKD community!
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