FSHD Society

Real life requires real answers, something Ryan Olson seeks to provide through his new website: RealFSHD.com. This week, Ryan Olson returns to the podcast to talk candidly about life with FSHD and why he created a site sharing what he’s found useful in the 25 years since his diagnosis. From an AI assistant called Dux to product recommendations to improve quality of life, the site offers hot takes and an easy to use interface.

Leading with humor and a desire to problem solve, Ryan brings real insight for real life with FSHD.

Catch the episode: https://youtu.be/pczGrDVMel0

Check out the site: www.RealFSHD.com
Note: Since the interview, Ryan switched from paid access to free access for all features.

No one knows the experience of living with FSHD better than those who have it. FSHD Straight Talk features stories of life with this rare disease. Tune in to learn from, laugh, celebrate and sometimes grieve with fellow members of the FSHD community. Whatever your journey, we hope you’ll find yourself in these episodes and know you are not alone.

On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who are living rich, full lives and diving into their experiences with FSHD.

If you would like to share your experiences living with FSHD, please reach out via email or send us a message on social media.

Email: [email protected]

You can find new episodes on YouTube and Facebook. You can also listen to the episode on your favorite podcast app. Subscribe on YouTube or your podcast app to make sure you never miss an episode!