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20 days ago
2
Posted On: October 16th 2026, 02:00 pm
Earlier this year, Marilyn Carson joined us in Washington, D.C., to advocate for policies that directly benefit the PKD community. Through the Advocacy Champions Network, you can join her and help advance critical policies that will shape the future of PKD care. 🇺🇸

Apply today at the link in our bio!
Comments (2)
shoshannahusak 12 days ago

shoshannahusak

Any suggestions for me, I’m trying to help a friend with PKD who has been on donor list for 6yrs already. She’s currently in the hospital with complications to her port…has been through so much!! She had a double nephrectomy last year…if you have any suggestions for me, that would be amazing!!!

paigeypaigelife 19 days ago

paigeypaigelife

Thank you. 💚💙

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