15 days agoI ask this in the most respectfully intentioned way, is being outside in the sun like that an issue for you? I suffer from PMLE and I can't go outside without being fully covered. I know you've said in other videos that you struggle with light. I'm gonna try Heliocare/polypodium leucotomos soon but I'm not letting myself have high hopes because nothing I've tried in the past has been a "fix" for me. Truly curious about the difference between your light sensitivity vs Photosensitivity. I struggle with my PMLE and haven't gotten answers in decades of dealing with it, I've really just learned to "manage" it. 😩
