Instagram story viewer> @nadf_adrenal> Posts

National Adrenal Diseases Foundation

@nadf_adrenal

2.2K

followers

37

following

National Adrenal Diseases Foundation informs, educates, and supports those with Adrenal Disease and their families to improve their quality of life. 💙

POSTS STORIES REELS

Primary aldosteronism involves more than just aldosterone. Doctors also look at renin, another hormone involved in blood pressure regulation.

A common screening test is the aldosterone-to-renin ratio (ARR). Testing laboratories measure the ratio of aldosterone to renin (ARR). This test measures the level of each hormone and determines their relative amounts in the blood. In healthy individuals, these hormone levels rise and fall together. In people with primary aldosteronism, aldosterone levels are high while renin levels are low. This is known as “suppressed” renin. The higher the ARR result, the more likely a person has primary aldosteronism.

Learn more about primary aldosteronism at nadf.us/primary-aldosteronism or visit the Buffer link in our bio to take you there directly. by @nadf_adrenal

November is ALD Awareness Month! 🩵

Adrenoleukodystrophy (ALD) is a rare genetic disorder that affects the brain, nervous system, and adrenal glands. Because ALD can impact adrenal function, awareness and early diagnosis are especially important.

Let’s raise awareness, share knowledge, and recognize everyone affected by ALD.

Learn more at nadf.us/ald or visit the Buffer link in our bio to take you there directly. | @aldhope by @nadf_adrenal

Our support groups Monthly Focus for November is GRATITUDE. 🙏

Connect with your community by joining an NADF support group! To sign up, visit NADF.us/support-groups or tap the Buffer link in our bio to take you there directly. You can also email us at NADFSupport@NADF.us. Upcoming dates below. ⬇️

🔵 November 4: Courageous Cushing’s • 7:30 PM EST
🔵 November 11: Colorado • 5:30 PM MST
🔵 November 14: Maine • 9:30 AM EST
🔵 November 18: Houston • 7 PM CST

Please note that additional Support Groups may be added throughout the month; check nadf.us/calendar for updates. by @nadf_adrenal

Sometimes going to the doctor can feel scarier than seeing a ghost!

One way to make those visits a little less frightening is to find a doctor you feel comfortable with and trust. Then you can save your worrying for the paranormal. 👻

P.S. Happy Halloween from NADF! by @nadf_adrenal

New episode of All Things Adrenal out now! “Am I Going To Reach The Median Age For My Disease?” with Andrew Lyle Gowan.

Andrew (@speckybeardo) has been living without adrenal glands for more than 30 years, a journey that started with their removal when he was just 10 years old and was the entry point to his diagnosis of von Hippel-Lindau disease. Life without these organs presents some unique challenges, often with one condition complicating management of the other.

Andrew joins us from his home in Ontario, Canada, where he sheds light on his journey with adrenal insufficiency, diabetes, rediscovery and reinvention of self, and blazing trails on a path of what he terms anatomical minimalism.

Listen now at NADF.us/podcast or tap on the Buffer link in our bio to take you there directly. You can also listen wherever you get your podcasts. by @nadf_adrenal

Our FREE 2-day virtual conference, “Navigating Adrenal Health 2026,” is right around the corner!

Join us on Friday, November 6 and Saturday, November 7, 2026. Both days will be from 11:30 AM–3 PM ET.

Take a look at the sessions we have planned with physicians, patients, and NADF’s leadership team below. ⬇️

• KEYNOTE! The Future of Adrenal Medicine: Emerging Research and Clinical Innovation – Gary Hammer, MD, PhD

• Preventing and Managing Adrenal Crisis – Leslie Pitts, PhD, DNP, CRNP, CPNP-AC

• Understanding Cortisol: From Cushing Syndrome to Adrenal Insufficiency – Susan M. Seav, MD

• The Adrenal Research Programs at the DARTNet Institute – Elizabeth A. Regan, MD, PhD

• Meet the NADF Team – Kalina Warren, NADF Executive Director

• Building a Self-Sustaining Adrenal Organoid to Restore Adrenal Function – Kotaro Sasaki, MD, PhD

• Innovation in Clinical-Grade Continuous Cortisol Monitoring – Daniel Grossman, MD

• Living with Adrenal Disease: Questions Patients Ask Most – Selma Feldman Witchel, MD & Irina Bancos, MD, MSc

• Navigating Insurance & Finances – Joanna Fawzy Doran, Esq

For more details and to register, visit tinyurl.com/NAH26 or tap on the Buffer link in our bio to take you there directly. by @nadf_adrenal

October 18–24 is Invisible Disabilities Week. As this special week comes to a close, our support shouldn’t stop here. 💙

Just because a condition isn’t visible doesn’t mean its impact isn’t real. Let's lift each other up with empathy, belief, and action.

Thank you to @invisibledisabilities (IDA) for founding this global movement in 2014 and continuing to champion this community! by @nadf_adrenal

“I think a lot of the time when people are dealing with any chronic illness, you can feel very isolated, you can feel alone, you feel like people don’t understand. I wanted to be somebody that says, ‘I get it, I feel you, I hear you, I go through what you go through, and I understand.'” -Jamie Lynn-Sigler, warrior of multiple sclerosis.

Sometimes, you just need someone to be there for you. That’s why we are here. We hear you, we see you, we have you. 🩵 by @nadf_adrenal

Take your meds on time. Wherever you are. Without shame.

Whether you’re at work, out with friends, traveling, or running errands, your health comes first. You should never feel embarrassed about taking the medication your body needs.

Your medication is not an inconvenience. It’s part of caring for yourself, and when timing matters, it can’t always wait until you get home or are alone.

No hiding. No care of judgement. Just taking care of you. 💙 by @nadf_adrenal

Cushing’s syndrome can be diagnosed through various tests, including blood, saliva, and 24-hour urine tests, which measure cortisol levels. Because cortisol is normally very low at midnight, an elevated midnight salivary cortisol can be useful in the diagnosis phase.

Learn more about Cushing’s syndrome at nadf.us/cushings or tap on the Buffer link in our bio to take you there directly. by @nadf_adrenal

Q: Will a spinal steroid injection affect my hydrocortisone dosing for secondary adrenal insufficiency?

A: Continue your usual hydrocortisone dose when a therapeutic steroid injection is needed. Maintaining your maintenance dose helps prevent gaps in treatment and won’t reduce the injection’s benefits.- Dr. Margulies, Medical Director of NADF

Find more Q&As at NADF.us/QAndA or tap on the Buffer link in our bio to take you there directly.

Got a question for NADF? Email us at NADFSupport@NADF.us. by @nadf_adrenal

This month, we are focusing on “Navigating Adrenal Health,” our FREE virtual conference on November 6 and 7, 2026, from 11:30 AM–3 PM ET!

Our agenda includes presentations and discussions with leading experts on topics relevant to everyday life with adrenal disease. We will cover current research and advances in adrenal care, along with practical topics for patients and caregivers.

SUBMIT YOUR QUESTION WHEN YOU REGISTER! It may be addressed during our “Living with Adrenal Disease: Questions Patients Ask Most” session on Saturday at 1 PM ET. Register, submit your question, and see our list of speakers now at tinyurl.com/NAH26 or tap on the Buffer link in our bio to take you there directly. by @nadf_adrenal