Instagram story viewer> @feelnoguilt> Post

Neon Ghost

@feelnoguilt

2 years ago

Photo by Neon Ghost on January 20, 2025.

Photo by Neon Ghost on January 20, 2025.

Photo by Neon Ghost on January 20, 2025.

Photo by Neon Ghost on January 20, 2025.

46

2

Posted On: January 20th 2025, 10:26 pm

Tagged Users:

@l.dant_

@guirmarcondes

@razienn

[sons de mar e vento ao fundo] parte 2 🌊

Comments (2)

mathsan

2 years ago

mathsan

Foto dupla dividida entre 1.2/2.1, você é literalmente TUDO pra mim 😭🙏

More posts

Moonlit dips & dinner fits. Vacation looks good on me. 🌙👙🍸

There is A LOT of crying at TACA. 💔

Not just tears of relief from finally feeling SEEN.
But tears of REALIZATION. GRIEF. ANGER, and the heartbreaking realization of just how much our children have been medically failed.

Imagine spending YEARS hearing “it’s just autism,” “it’s behavioral,” or “there’s nothing more we can do”…
Only to attend a conference where physicians and researchers are discussing neuroinflammation, immune dysfunction, gastrointestinal disorders, metabolic abnormalities, cerebral folate deficiency, PANS/PANDAS, and other medical conditions that can coexist with autism, and are untreated behind an autism label.

Conditions families have spent YEARS begging someone to investigate, and that’s when the tears come.

You start replaying every appointment. Every dismissal. Every time your child suffered while you were made to question your own instincts.

There is a particular kind of grief in realizing your child may not have received the medical attention they deserved.

And an even harder realization?
The medical system is often not equipped to care for the very children who need complex medical care the MOST.

THIS is the MEDICAL ABANDONMENT so many families are talking about.

Not every autistic child has these conditions. But an autism diagnosis should NEVER become an excuse to stop investigating pain, illness, regression, or unexplained symptoms.

This was my THIRD @tacanow conference, and watching first-time moms process everything brought me right back to my first.

The heartbreak of what you didn’t know. The anger over what was dismissed. The grief over time you cannot get back.

And then, the HOPE that comes with knowledge. ❤️
I asked these mothers how they felt after their first TACA conference. Their answers speak volumes.
We should NOT have to become medical detectives just to convince professionals that our children’s suffering deserves investigation.

Our children deserved better than medical dismissal. And the next generation deserves better than inheriting it.

#tacaconference #tacanow #autism #profoundautism

12 year old me has been plotting and scheming ever since she learnt about them
-
-
Dress @babyboofashion
Sunnies @oscarandfrank
-
-
#girlswithtattoos #girlswithink #altgirl #tattoos

Our “Son”shine is 1 🌞✨🧡
.
Photography @talesofcandybabies
Decor & Event @galoraevents
Cake @richtreatz
.
#explore #firstbirthday #babyboy #birthdayboy #trending 🧿

Hmar jpt#gpt

⁨ ⁨ האהבות שלנו עכשיו בקולנוע,
הפסטיגל ופיטר בפתח,

אז סיפרתי לרתם איזק על התקופה היפה והמיוחדת הזאת ב7 ימים.

תודה לצוות הטוב בעולם ולשי פרנקו שהוא אמן חד פעמי.

הכתבה המלאה בסטורי🫀⁩

‪@shaifranco‬‪@alexsivakov‪ @bar_friedman