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@sunju.park_77

2 years ago

산책갈까?!

#반려견 #강아지 #멍스타그램 #멍멍이 #좋아요 #소통

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Posted On: January 24th 2025, 03:25 am

산책갈까?!

#반려견 #강아지 #멍스타그램 #멍멍이 #좋아요 #소통

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We are home from the hospital... and it’s taken me a few days to gather my thoughts.

To start, Soraya is a ROCKSTAR. Since surgery there’s been an immediate change. Taking out the 3+ hours a day of struggling on the toilet truly has been a LIFE CHANGER. She now spends that time coloring and talking and seems SO much happier ❤️

I have to say… the month leading up to her surgery I kept thinking- no, FEARING- the surgery. I worried she was making the wrong decision. Now I know she truly does know what she needs, even as a child. I’m so incredibly humbled by her. She put herself through surgery, pain, and 11 days in the hospital… and it was worth it!

The learning curve has been STEEP for Safi and me. We had no idea that with Soraya being on a BiPAP ventilator at night, her ostomy bag would fill up with air and need to be “burped” every couple of hours. This is on top of our new routine of doing suprapubic catheter care. It’s been awhile since we have had to be up every 2-3 hoursat night... and we’re having flashbacks from some darker times. The first 3 years of Soraya’s life we were up every 3 hours for g-tube feeds.

We have orders for more nurse hours to be approved... but it takes time. In the meantime, we are taking turns in Soraya’s room to do her care. For the first time in years I’m doubting myself- can we do this care? But then I see Soraya’s strength and her happiness when opening a welcome box of ostomy products from @hollister_incorporated… and I know she did the hardest thing and Safi and I CAN DO THIS!!!!!!!

As we learn we’re working on organizing the house with all the new medical supplies, Yasmeen and Leena are navigating their own comfort levels with bodily fluids (all feelings are valid), and I’m keeping up with my lectures/advocacy commitments! Our highlight this week was spending time with L and Y at the 10th Annual Sibling Symposium hosted by @siblingswithamission.

There’s a lot to process and a new routine to establish... and about 30 more hours of nursing to cover. One day at a time- but let’s go back to the beginning of the post. SORAYA’S SO HAPPY!!!! Ostomy and SPC life here we go! 🎉