2 months agoAhhhh she needs to have some amazing words to use lol. I just started following and I loved the skating video. Lily is so amazing !!!!!!!! Let the swearing begin 😂😂😂😂
2 months agoI ADORE that you have done this for Lilly!! There is no reason why Lilly should be treated any different. She still is human and sometimes a strong word is necessary 💓
5 months agoSo, I'm asking this as a genuine 'wondering out loud' kind of query.... What do you feel is the juxtaposition of being able to 'use age appropriate strong words' and starting to refer to yourself in more typical teenage verbiage? I know that Lilly's disability is multifaceted. Like, she'll probably always love Sesame Street themed objects etc. And she might not always 'appear' her age. Do you think that your relationship is forever linked to you being 'mommy', (of course if it is that's lovely), or, do you see that your relationship also evolves into that teenage sass and back and forth that I loved about my teenagers. But, that evolution also involved me changing how I referred to myself. I don't think it was because in my heart of hearts they're not still my babies, but more so because I wanted to be respectful of their autonomy and development, and how others might perceive them had I continued to be 'mommy'. Like I somehow felt I needed to let them grow up more and they clearly demonstrated to me that their peers had moms and not mommies.... I don't really know how this idea translates into the world of adults with children who have a disability like Lilly's versus a kid with a physical disability, for example. In that case, I think my thinking would be more black and white. I guess my questions might be around what would the child prefer, but then, how would I know what they preferred if I didn't model or provide that choice? And, does their social environment matter whether it's one or the other? And, are there cultural norms that may affect these choices? (I know that some of my kids' friends grew up in cultures where the more affectionate kinds of 'younger kid' terms' persist....
5 months agoThe fact that you are giving her the ability to access language that other teenagers her age have access to as well makes complete sense to me. I don't see any reason why she shouldn't get to experience being told to watch her language just like we all did at that age 😂
5 months agoPlease be mindful that as a parent you shouldn’t teach your children those words because it’s not right to teach your children those kinds of words. I understand that everyone uses them but it could be offensive to some people. So it’s just something to think about.
7 months agoI strongly advocate for Lilly’s right to say FUCK! On her AAC DEVICE! 🙌 Life is full of times you just gotta say FUCK! 💜 I’m a teacher in training and I let A LOT of kids slide with that word cuz I hear ya kid. I remember being in middle school. And I MUCH rather hear that word than a slur word 😬
8 months ago100%agree we can’t not filter their voice just because it’s threw an aac devices they deserve to be prepared for the real world
8 months agoI have autism and I went to a school that had children from ages 2 to 19 and I got to help junior school kids with autism and children in wheelchairs I loved it I was helping Josh who had severe autism he was 5 Emma she was 3 deaf and is in a wheelchair and Abigail who had battens disease she unfortunately passed away I absolutely loved it I had a teacher with me as I have epilepsy autism adhd and severe mental health
