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Posted On: June 2nd 2026, 05:46 pm
Not pictured are the million reasons why this journey has been hard, not even necessarily specific to Bedford. Every day - and if you know me well, you know this to be true, I am thinking about life in the deepest way possible.
What a gift motherhood has given me… to keep my feet planted in the now, to shift my focus from the petty, selfish temptations of life and focus on what good there is - and boyyyyy is there good. Life is what you make it. You wanna make a difference? Start doing something and stop just choosing yourself because it’s easier. Function from a place of, “use this well, Lord,” and watch what He does with it. We each get a choice to live life differently… to live RARE. Be the hardest worker in any room, in a world that lives in an idle mode. Be the one getting in the steps while the world is still sleeping. Be the one so, SO, overly forgiving that people physically stop to wonder HOW, WHY, and WHERE you find the courage to do it. I could go on and on about how we can make small differences that add up to big changes in this world. It’s a new month… how are you living rare? #buildforbeddy #schwartzjampelsyndrome #rarediseaseawareness
What a gift motherhood has given me… to keep my feet planted in the now, to shift my focus from the petty, selfish temptations of life and focus on what good there is - and boyyyyy is there good. Life is what you make it. You wanna make a difference? Start doing something and stop just choosing yourself because it’s easier. Function from a place of, “use this well, Lord,” and watch what He does with it. We each get a choice to live life differently… to live RARE. Be the hardest worker in any room, in a world that lives in an idle mode. Be the one getting in the steps while the world is still sleeping. Be the one so, SO, overly forgiving that people physically stop to wonder HOW, WHY, and WHERE you find the courage to do it. I could go on and on about how we can make small differences that add up to big changes in this world. It’s a new month… how are you living rare? #buildforbeddy #schwartzjampelsyndrome #rarediseaseawareness
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