TheWovenspectrum

If you’ve spent years being told your symptoms don’t add up to one diagnosis, this research might change that conversation.
Dr. Allison Bloom and her team have proposed a name for a severe neurological subgroup within hEDS/HSD: “Neuro-EDS,” one connective tissue pattern showing up as both cranial/spinal issues and neuro-autonomic/inflammatory dysfunction, instead of a pile of unrelated diagnoses.
Commonly seen alongside it: POTS, dysautonomia, MCAS, exercise intolerance, GI issues, chronic pain, brain fog, and fatigue. (Also common in the wider EDS community, separate from this paper: autism, ADHD, and queer/gender-diverse identities, sources on slide 4.)
This paper is currently under peer review, not yet a formal diagnosis, but naming a pattern is often the first step toward better recognition and care.
If this sounds like your story: you’re not alone, and you’re not imagining it.
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