
19 days agoThis 🙌 You always advocate so elegantly, I wish I couldn't relate, but sadly been our lives for a long time, Thank god we have a community who get it ❤️ xxx
a month agoThis 👏😢 T was an eloper and nobody can possibly understand what it is like unless they have experienced it. The single most challenging, exhausting and terrifying thing. To have a child with no safety awareness, non verbal, and that would run as soon as you blink. We were lucky T was found within an hour every time he eloped. My heart breaks for this family 😭
a month agoThis 🙌 We had 2 instances of Jaxon getting out our garden when he was 3 and could have ended so different. He also jumped in a pond in the middle of winter. Its so scary always trying to be one step ahead. People think I am overprotective because they only see him for snippets of time and say 'he will be fine' but they don't understand that he needs constant supervision to keep him safe so I won't allow him to go with other people. Just because someone is family doesn't mean they are able to meet his needs. We are like this for a reason, believe us! Xx
a month agoI had my parents as well as my parents in law openly telling us in the past that they don’t feel they could watch Stefan for us. It did hurt so much 😢 And it made me angry. But, in retrospective, knowing their levels of fitness and Stefan’s ability to disappear in split of a second, I am pleased they said that. With other people, I only trust my friend who works with children with additional needs and Stefan’s PA who is a TA in our school. And what other people think about me being “overprotective”, I simply don’t care…x
a month agoSo heartbreaking. I understand the fear, Boo was would run off and was fond of running into the sea at one point! There were a couple of times that she disappeared, the most frightening was actually a couple of years ago. She was angry about something and out of the house, I went after her but couldn't see her, checked all her favourite places, nothing. I asked a couple of people with cars for help and we started looking further afield. Thankfully she had her phone, she wasn't answering but eventually I got a message saying "I don't know where I am". We are very lucky that she is able to use a phone, she eventually sent to a screenshot of where she was on Google maps and we figured how to find her. She was 5 miles away! She had zoned out and just kept walking until she suddenly realised she was in the pitch black, soaking wet and exhausted (it was at night and stormy). If she hasn't had her phone and been able to use it I don't know how we would have found her
a month ago📷 Photo of me in early 1980, aged 3, wearing a helmet (for ice-skating). I think my dad took the picture, or possibly my granddad.
