Posted On: November 3rd 2026, 10:11 pm
"If this is your first time meeting someone with IgG4-RD outside of your family, raise your hand."
At CamJAM, Katharine Provencher, our Director of Advocacy and Community Engagement, asked that question. So many hands went up.
For a rare disease, that moment matters. It is often the first time someone hears their own story in another person's words.
Our next chance to bring more people into that room is TexasJAM, Saturday, November 14, in Austin. Travel scholarships and parking help are available for patients and caregivers.
Read Katharine's reflection, see photos from CamJAM, and register through the link in our bio.
Will we see you in Austin? Tell us in the comments, or tag someone who should be there.
#IgG4RD #IgG4RelatedDisease #RareDisease #RareDiseaseCommunity #PatientAdvocacy #Caregivers #TexasJAM #Austin