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IgG4ward

@igg4ward

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Advancing education, research & advocacy for IgG4-related disease (IgG4-RD).
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"If this is your first time meeting someone with IgG4-RD outside of your family, raise your hand." At CamJAM, Katharine Provencher, our Director of Advocacy and Community Engagement, asked that question. So many hands went up. For a rare disease, that moment matters. It is often the first time someone hears their own story in another person's words. Our next chance to bring more people into that room is TexasJAM, Saturday, November 14, in Austin. Travel scholarships and parking help are available for patients and caregivers. Read Katharine's reflection, see photos from CamJAM, and register through the link in our bio. Will we see you in Austin? Tell us in the comments, or tag someone who should be there. #IgG4RD #IgG4RelatedDisease #RareDisease #RareDiseaseCommunity #PatientAdvocacy #Caregivers #TexasJAM #Austin by @igg4ward
Need help with travel or parking costs for TexasJAM? A limited number of travel scholarships and parking vouchers are available for people living with IgG4-related disease (IgG4-RD) and their caregivers attending TexasJAM, our free, in-person patient education and community event. 📍 Austin, Texas 🗓️ Saturday, November 14 ✔️ Travel scholarships of $150–$350, ✔️ Parking-only requests welcome ✔️ Application available in English and Spanish / Solicitud disponible en inglés y español ⏰ Travel scholarships: apply by November 6 ⏰ Parking vouchers: request by November 12 Awards are based on financial need, barriers to attendance, and available funding. Tap the link in our bio to review the details and apply. 💙 Know someone who could use help getting to TexasJAM? Share this with them. #IgG4RD #IgG4RelatedDisease #IgG4ward #TexasJAM #RareDisease #Caregivers #AustinTX by @igg4ward
Welcome to IgG4ward!, Ellen! We’re pleased to introduce Ellen Vohsing, our Director of Philanthropy. With more than a decade of fundraising experience, including work with health and rare disease organizations, Ellen will help grow support for the programs and resources that connect and serve our IgG4-related disease community. “I am honored to join the team.” Please join us in giving Ellen a warm welcome! Learn more about Ellen on our website: igg4ward.org #IgG4ward #IgG4RD #IgG4RelatedDisease #RareDisease #Nonprofit by @igg4ward
Strong communities play an important role in helping people navigate the challenges of living with a rare disease. IgG4ward!’s CamJAM event provided an opportunity for people living with IgG4-related disease to come together, share experiences, and support one another. 💙 We’re proud of moments like these that help create opportunities for the community to build connection. Next up: IgG4ward!’s TexasJAM in November! We’re looking forward to more moments of connection, conversation, and shared experiences. by @igg4ward
An invitation to learn, connect, and find community at IgG4ward! TexasJAM in Austin. Dr. Adam Kilian, a rheumatologist at Dell Medical School, invites you to join us on Saturday, November 14, 2026, for a free, in-person event for people affected by IgG4-related disease (IgG4-RD). Learn from experienced physicians, ask questions about diagnosis, treatment, symptoms, and quality of life, and connect with patients, caregivers, and families who understand. Whether you’ve attended a JAM before or have never met another person living with IgG4-RD, we look forward to welcoming you. 📅 Saturday, November 14, 2026 📍 Dell Medical School at The University of Texas at Austin | Austin, Texas Attendance is free. Travel scholarships are available for patients, caregivers, and families, with application details coming soon. Watch Dr. Kilian’s invitation, then visit the TexasJAM blog through the link in our bio for event details and registration. #IgG4RD #IgG4RelatedDisease #IgG4ward #TexasJAM #RareDisease #CaregiverSupport by @igg4ward
Next stop: Austin! Join us for IgG4ward! TexasJAM on November 14. After coming together at CamJAM in Cambridge, we’re looking forward to another day of learning, questions, and connection with the IgG4-RD community. Hosted by Dr. Adam Kilian and the IgG4ward! Foundation, TexasJAM brings patients, caregivers, families, and medical experts together to explore IgG4-related disease (IgG4-RD), from diagnosis and treatment to everyday life. Through presentations, expert panels, and smaller breakout sessions, Dr. John Stone and specialists across disciplines will explore: • How IgG4-RD is diagnosed, treated, and monitored • How the disease affects different organs • Living with fatigue and brain fog • Understanding how treatments work • Supporting a loved one with IgG4-RD Our caregiving session will feature Katharine M. Provencher, the Foundation’s Director of Advocacy and Community Engagement, alongside Dr. Sanjay Chabra and Dr. Christopher Parker. Bring your questions and make time to meet others who understand. Whether you come on your own or with someone you love, you are welcome here. 📅 November 14, 2026 🕗 8:00 a.m.–5:15 p.m. 📍 University of Texas at Austin, Dell Medical School, Austin, Texas Registration is required. Visit igg4ward.org and find TexasJAM under Events to view the program and register. Link is also in bio. #IgG4RD #IgG4ward #TexasJAM #RareDisease #patientadvocacy by @igg4ward
Four days. Two events. So many meaningful connections. 💙 From October 8–11, Cambridge, Massachusetts, became a gathering place for the international IgG4-RD community as the IgG4ward! Foundation hosted the 6th International Symposium on IgG4-Related Disease and the IgG4ward! CamJAM. Physicians, researchers, and healthcare professionals from around the world came together for three days of scientific discussions, collaboration, and shared learning, all focused on advancing our understanding of IgG4-RD and improving patient care. Then, on Sunday, patients, caregivers, families, and medical experts gathered for CamJAM, a day of learning, asking questions, sharing experiences, and connecting with one another. For some, it was their first opportunity to meet another person living with IgG4-RD. For others, it was a chance to reconnect with familiar faces and strengthen friendships within this growing community. From scientific discussions to personal conversations, these four days reflected the importance of bringing research, education, and lived experience together. We are grateful to everyone who joined us and helped make these gatherings so meaningful, including our physicians, researchers, speakers, patient ambassadors, volunteers, patients, caregivers, and families. We also sincerely thank our Symposium sponsors, Amgen, Zenas BioPharma, Acepodia, Sanofi, and Spero Therapeutics, and our CamJAM sponsors, Amgen and Zenas BioPharma, for their support. We look forward to sharing more from both events in the weeks ahead. The events may have ended, but the connections continue. 💙 #IgG4ward #IgG4RD #IgG4RelatedDisease #RareDisease #PatientCommunity by @igg4ward
Your generosity. Two matching gifts. More hope in action. Hope in Action launches today! From October 9 through January 8, your gift can be tripled. Two generous families will each match donations dollar for dollar, up to $150,000 per family. While matching funds remain: $25 becomes $75. $100 becomes $300. For those affected by IgG4-related disease (IgG4-RD), a donation is a tangible expression of hope. Your generosity puts that hope into action through advocacy, education, support, and connection with others who understand. It also helps us expand disease awareness globally, facilitate groundbreaking research, and continue serving as the trusted source of truth for patients, caregivers, and healthcare providers. Help us Pave the Path 4ward! Donate through the link in our bio or scan the QR code in the image. 💙💙💙 #HopeInAction #IgG4ward #IgG4RD #RareDisease by @igg4ward
For Katharine Provencher, our Director of Advocacy and Community Engagement and a caregiver to her husband, Andy, bringing this community together is personal. Join us at IgG4ward! CamJAM on October 11 in Cambridge, Massachusetts. This day is for people living with IgG4-related disease, caregivers, families, and loved ones. Ask questions directly to specialists, take part in small-group sessions, and meet others who understand. Katharine will also lead “Life Beyond the IgG4-RD diagnosis,” a patient panel about everyday life with IgG4-RD and what helps along the way. Whether you’re newly diagnosed or have lived with the disease for years, coming with someone or on your own, we’d love to welcome you. 💙 📍 The Charles Hotel | Cambridge, Massachusetts 📅 Sunday, October 11, 2026 Read what to expect and register through the link in our bio. #IgG4RD #IgG4RelatedDisease #IgG4ward #CamJAM #RareDisease by @igg4ward
What can the community expect at CamJAM? Find out in our newest blog. 💙 A day to better understand IgG4-related disease (IgG4-RD), ask specialists your questions, and meet others who understand the experience. On October 11, CamJAM will bring patients, caregivers, and families together for discussions about diagnosis, treatment options, organ involvement, and recognizing flares. Choose smaller breakout sessions and join the Ask the Experts panel, with time to connect throughout the day. Our blog walks you through what to expect and how to register. 📍 The Charles Hotel, Cambridge, MA 📅 Sunday, October 11, 2026 Hear the invitation from co-hosts Dr. Guy Katz and Dr. Cory Perugino of Massachusetts General Hospital, then visit the link in our bio to read the blog and reserve your place. Less than two weeks to go. We hope to see you in Cambridge! #IgG4RD #IgG4RelatedDisease #IgG4ward #CamJAM #RareDisease #PatientEducation by @igg4ward
IgG4-related disease can affect many parts of the body, and each person’s experience is different. That’s why we’re highlighting the new organ-focused chapters in the IgG4ward! Academy. 💙 The Academy now has lessons across nine chapters. Start with the basics of IgG4-RD, diagnosis, treatment, and the specialists involved in care, or explore chapters on the salivary and tear glands, pancreas, kidneys, lungs, and retroperitoneum. The Academy is for anyone who wants to learn, including patients, caregivers, families, healthcare professionals, and advocates. Explore a topic that interests you, at your own pace. Find the Academy through the link in our bio. Save this post or share it with someone who would find it useful. #IgG4RD #IgG4RelatedDisease #PatientEducation #RareDiseaseEducation by @igg4ward
Come learn with us. Bring your questions. Meet people who understand. 💙 Dr. Cory Perugino and Dr. Guy Katz of Massachusetts General Hospital have a special invitation for our community: join the IgG4ward! Foundation at CamJAM! On October 11, we’re gathering in Cambridge for a day of learning and connection with people living with IgG4-related disease (IgG4-RD), caregivers, loved ones, and medical experts. There will be time to explore topics that matter to you, hear from fellow patients, and connect over shared experiences. Whether you’re newly diagnosed, have been living with IgG4-RD for years, or support someone you love, we look forward to welcoming you. 📅 October 11, 2026 📍 The Charles Hotel | Cambridge, Massachusetts Attendance is free for patients, caregivers, family members, and friends. Advance registration is required. ▶️ Watch the invitation, then visit the CamJAM link in our bio to explore the agenda and register. Share this with someone you’d love to bring along. #IgG4RD #IgG4RelatedDisease #IgG4ward #CamJAM #RareDiseaseCommunity by @igg4ward

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