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#CharcotMarieTooth

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After almost a year of seeing each other online, I finally got to meet @azhealthcoach_dan in person! Thanks to @cmtwegotthis for connecting us and creating the HNF DREAM TEAM! The HNF dream team is a group of individuals spreading awareness about CMT. Make sure you give us all a follow! . Although I live with this disease, that constantly affects my every day life, I feel incredibly lucky to have this community ❤️ . . . #CMTWeGotThis #CharcotMarieTooth #MobilityAidsAreFreedom #CMT
After almost a year of seeing each other online, I finally got to meet @azhealthcoach_dan in person! Thanks to @cmtwegotthis for connecting us and creating the HNF DREAM TEAM! The HNF dream team is a group of individuals spreading awareness about CMT. Make sure you give us all a follow! . Although I live with this disease, that constantly affects my every day life, I feel incredibly lucky to have this community ❤️ . . . #CMTWeGotThis #CharcotMarieTooth #MobilityAidsAreFreedom #CMT
My hands suffer from lack of function, weakness & deformity @neuromuscular_o #technology #disabilities #ai #charcotmarietooth
My hands suffer from lack of function, weakness & deformity @neuromuscular_o #technology #disabilities #ai #charcotmarietooth
Progress Update ✈️ ♿️ Most of you saw my world class ankle breaking tumbling POV yesterday in stories! Living with #charcotmarietooth these types of things are commonly place but this was definitely a nasty one! I had to go from wheelchair bound to load bearing in 12 hours to keep up my work schedule , so as soon as I got home I quickly changed and jumped into HEALING mode before heading back to the airport. Any of us are only as good as our tools and @kttape + RAD physical therapy balls we’re my tools for the job. Given these ankles have been through some ugly times and so they are resilient especially on the “bounce back” but ultimately I’m on a good path to recovery and clearly ignoring the “No shoes, No Socks, No Flight” rules here at LAX #anklebreaker #cmt #physicaltherapy #athlete
Progress Update ✈️ ♿️ Most of you saw my world class ankle breaking tumbling POV yesterday in stories! Living with #charcotmarietooth these types of things are commonly place but this was definitely a nasty one! I had to go from wheelchair bound to load bearing in 12 hours to keep up my work schedule , so as soon as I got home I quickly changed and jumped into HEALING mode before heading back to the airport. Any of us are only as good as our tools and @kttape + RAD physical therapy balls we’re my tools for the job. Given these ankles have been through some ugly times and so they are resilient especially on the “bounce back” but ultimately I’m on a good path to recovery and clearly ignoring the “No shoes, No Socks, No Flight” rules here at LAX #anklebreaker #cmt #physicaltherapy #athlete
La disciplina me guía, la determinación me impulsa y el esfuerzo me transforma 💪🏽💪🏽💪🏽 #charcotmarietooth
La disciplina me guía, la determinación me impulsa y el esfuerzo me transforma 💪🏽💪🏽💪🏽 #charcotmarietooth
I can’t wait for the day i don’t need to constantly explain that disabilities can infact look invisible..and be just as debilitating.🫠🥲🥸 @charcotmarietoothuk @cmtwegotthis #disabilityawareness #charcotmarietooth #disabilitytiktok #invisibledisabilities #lifeiswhatwemakeit
I can’t wait for the day i don’t need to constantly explain that disabilities can infact look invisible..and be just as debilitating.🫠🥲🥸 @charcotmarietoothuk @cmtwegotthis #disabilityawareness #charcotmarietooth #disabilitytiktok #invisibledisabilities #lifeiswhatwemakeit
Meet @la.sander, our 2025 #MDA National Ambassador! Lily’s journey with #CharcotMarieTooth disease has inspired her to advocate for the #neuromuscular community. She’s showing the world that disability is not a tragedy—it’s full of joy, resilience, and potential. From MDA Summer Camp memories to voting with her representative on Capitol Hill, Lily is ready to make a difference. Let’s cheer her on as she spreads awareness and supports families across the nation! 💙💛#MDA75 #DisabilityInclusion
Meet @la.sander, our 2025 #MDA National Ambassador! Lily’s journey with #CharcotMarieTooth disease has inspired her to advocate for the #neuromuscular community. She’s showing the world that disability is not a tragedy—it’s full of joy, resilience, and potential. From MDA Summer Camp memories to voting with her representative on Capitol Hill, Lily is ready to make a difference. Let’s cheer her on as she spreads awareness and supports families across the nation! 💙💛#MDA75 #DisabilityInclusion
Having Charcot Marie Tooth Disease hasn’t been something I’ve talked about here. It’s something that really effects me and bothers me but I know I’m doing my absolute best to do the things I love and see all the things I want to see before it’s too late #charcotmarietoothdisorder #charcotmarietooth #charcotmarietoothdisease
Having Charcot Marie Tooth Disease hasn’t been something I’ve talked about here. It’s something that really effects me and bothers me but I know I’m doing my absolute best to do the things I love and see all the things I want to see before it’s too late #charcotmarietoothdisorder #charcotmarietooth #charcotmarietoothdisease
This is how it is #charcotmarietooth #cmtawareness #disability #onlinecoach #motivation
This is how it is #charcotmarietooth #cmtawareness #disability #onlinecoach #motivation
Benjy has Charcot Marie Tooth Disease…he just received his new technology Helios GX Orthoses. #heliosbracing #cmtbracing #cmtwegotthis #hnf4cmt #hereditaryneuropathyfoundation #cmtusa #charcotmarietoothdisease #charcotmarietooth #charcotmarietoothawareness #charcotmarietoothstrong #charcotmarietoothassociation #charcotmarietoothwarrior #cmtwarrior #afo #legbraces #legbrace #orthosis #footdrop #footdropawareness #footdropdoesntstopme #energy #carbonfiber #neuropathy #balance #walking #cmtstrong #charcotmarietoothbrasil #charcotmarietoothsyndrome #disabilities #disabilityawareness
Benjy has Charcot Marie Tooth Disease…he just received his new technology Helios GX Orthoses. #heliosbracing #cmtbracing #cmtwegotthis #hnf4cmt #hereditaryneuropathyfoundation #cmtusa #charcotmarietoothdisease #charcotmarietooth #charcotmarietoothawareness #charcotmarietoothstrong #charcotmarietoothassociation #charcotmarietoothwarrior #cmtwarrior #afo #legbraces #legbrace #orthosis #footdrop #footdropawareness #footdropdoesntstopme #energy #carbonfiber #neuropathy #balance #walking #cmtstrong #charcotmarietoothbrasil #charcotmarietoothsyndrome #disabilities #disabilityawareness
Grazie a tutti i ricercatori e associazioni come la nostra che in tutto il mondo lavorano per trovare una cura per le persone con #CharcotMarieTooth come Eloise. Credits @cmtresearchfoundation
Grazie a tutti i ricercatori e associazioni come la nostra che in tutto il mondo lavorano per trovare una cura per le persone con #CharcotMarieTooth come Eloise. Credits @cmtresearchfoundation
A Síndrome de Charcot-Marie-Tooth é rara e genética, e pode trazer muitos desafios para quem convive com ela. Mas com o uso de palmilhas personalizadas e órteses, é possível recuperar conforto, equilíbrio e qualidade de vida. 👉 Assista ao vídeo e tire suas próprias conclusões no sorriso desse cliente. 💙 É por momentos assim que seguimos firmes na nossa missão de cuidar com carinho. Ortholândia | Cuidando dos pequenos com carinho e atenção! #CharcotMarieTooth #QualidadeDeVida #Ortopedia #Ortholândia #PalmilhasPersonalizadas #Órteses
A Síndrome de Charcot-Marie-Tooth é rara e genética, e pode trazer muitos desafios para quem convive com ela. Mas com o uso de palmilhas personalizadas e órteses, é possível recuperar conforto, equilíbrio e qualidade de vida. 👉 Assista ao vídeo e tire suas próprias conclusões no sorriso desse cliente. 💙 É por momentos assim que seguimos firmes na nossa missão de cuidar com carinho. Ortholândia | Cuidando dos pequenos com carinho e atenção! #CharcotMarieTooth #QualidadeDeVida #Ortopedia #Ortholândia #PalmilhasPersonalizadas #Órteses
Mi vídeo más difícil hasta la fecha ❤️‍🩹 #charcotmarietooth #charcotmarietoothdisease #discapacidad #visibilidad #charcotmarietoothawareness
Mi vídeo más difícil hasta la fecha ❤️‍🩹 #charcotmarietooth #charcotmarietoothdisease #discapacidad #visibilidad #charcotmarietoothawareness
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