#CleftProud
5 minutes can change everything. It’s that attitude of gratitude for me.🥳
Everything changed with her diagnosis, and so much changed for better for me!
💖When we got her cleft diagnosis at our 20 week ultrasound there was a lot of unknowns and it was a really scary time.
I sat in my feelings and was scared for a while. And then I made a CHOICE to search for the goodness in every day, and write them down. Now I love going back and looking at them!
I woke up every single morning and did my gratitude journal. I didn’t want to at first, but then it became my special me time. It helped shift everything.
Some gratitudes that you may not think are gratitudes:
⭐️She can’t take a “regular bottle”➡️ I’ll give my bottles to my sister who is having twins.
⭐️She won’t be able to breastfeed…➡️I’ll found a great pump (if I feel like it) and I already love using formula! 🎉
She will need a lot of surgeries…➡️I have a great village around me to help.
Her premaxilla is sticking out a lot➡️ she has the material for them to close her cleft!
🥳
Even in the hardest situations, there is ALWAYS something small to be thankful for.
⚠️I PROMISE once you start looking for good things you will find them. We can do it together. 💖
Some of my entries were things like “Our MRI showed that her chin is an safe size!” Yes, she doesn’t have a roof of her mouth and her lip is open in two parts, but she has a chin that allows for air flow! 🎉 Which we were told she may not be able to breathe on her own without another surgery.
I’ll be sharing more about how I do my power hour in the hopes that it helps you like it helps me! 💖🎉 We can do this together, I’m so glad that you are here!
#gratitude #cleftstrong #cleftlip #cleftproud #cleftpalate #texaschildrens #morningroutine #powerhour #attitudeofgratitude
I kinda wish they wouldn’t bring it up & not remind me of how different I look 🥲
#cleftlip #indigenous #native #cleftstrong #cleftproud #healing #pov #youngerself
تعديل شفة الأرنب بلفلر💉
Correction of cleft lips using filler..dr.stella
#cleftlip #cleftpalate #cleftlipandpalate #cleftstrong #cleftproud #strong #strongman
Today is such an emotional day for us. This is the first time we take out the NAM device & the tape without putting them back on. They are officially going into the memory box right now. As hard as this journey was, I wouldn’t change anything about it. I would do it over & over & over again for this boy. But he’s officially done with it. And I would like to congratulate him for being the bravest baby i have ever met in my life🤍
اليوم يوم حزين و سعيد بنفس الوقت.. هذي اول مره اطلع الجهاز و اللزقه بدون ما ارجع اركبهم. دخلتهم في صندوق صغير و راح اخشهم كلهم للذكرى عشان اذكر نفسي و اذكر سعود شكثر كان قوي. صج ان الرحله هذي كانت صعبه، بس لو شنو ما اغير فيها اي شي.. و عادي عندي اعيدها مره و مرتين و ثلاث. بس خلاص. ولدي تعب، و يحتاج يرتاح. ف بس حبيت اباركله لان اهوا اقوى ولد شفته بحياتي🤍
#cleftbaby #cleftproud #cleftcutie #cleftlip #cleftstrong #cleftlipandpalate #cleftlipkuwait
Happy World Smile Day 🩷 No matter your story, every smile is unique and beautiful!
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#cleftcutie #cleftstrong #cleftproud #cleftlip #cleftlipandpalate #hopecore #worldsmileday #differentisbeautiful
At least he’s honest 😂☠️
He is looking so good 3 days post op!
#cleftstrong #cleftproud #cleftlip #chargesyndrome #chargeon
How has my cleft affected my mental health?
I was a shy little girl. I never wanted to stand out, more like blend in. I felt different. I didn’t want to have to answer the question again “what happened to your nose and lip?” I saw the look on people’s faces when they learned about what I went through. Or there’s the long stare you feel as someone zeroes in on your mouth. As a child I perceived this as there’s something wrong with me. I didn’t have language to push back on bullies. I didn’t talk about it to anyone. If anyone brought it up I shut down the conversation. I became an adult who was scared to say the word “cleft” out loud, despite thinking about it everyday. I was disconnected from myself. That part of me was screaming to get out, to be seen.
Well, im finally letting her shine and she’s beaming. It’s never too late to make your 13 year old self proud. ❤️
Part 2.5 coming soon ❣️
#cleftlipandpalateawareness #cleft #cleftlip #cleftproud #cleftstrong #cleftlipandpalate
Baby girl gets fitted for her NAM device on the 7th. It's ironically #cleftlipawarenessweek From May 3rd to the 11th.
She's started to smile recently and to think in a couple days we're starting the process to give her, her forever smile.
@clapacommunity @cleft_charity @cleftproud @clapacommunity
Our warrior baby 🖤
#cleftstrong #1in700 #cleftproud #foreversmile #craniofacial #smile #warrior #toddlerhood #timeflies #reels #igreels #viral #differentisbeautiful #diversity #scarstoyourbeautiful #thestorybehindtwosmiles
6 months. It’s been a little over 6 months since one of the worst days of my life. Since our Rosie went unresponsive in her car seat. Since then we’ve had multiple hospital stays, multiple monitors, countless visits to her pulmonologist and cleft team both. Truthfully it’s been a while since we’ve had Rosie on her nightly oxygen because we honestly couldn’t fathom putting it in her freshly stitched up nose. She has been doing great and not had any “desats”. So today at her follow up appointment her pulmonologist graduated her from Al of her monitors and oxygen tanks. To say we’re excited is an understatement! At the same time it’s quite nerve wracking not having those things at our disposal as a security blanket to know she’s “ok” at night. We will have one more visit with them before her palate surgery to make sure we get the all clear. Thank you all for following this nuggets journey.
Here he is.. our gorgeous little boy. Perfect then & perfect now.
Introducing Soud’s new look 💘
#cleftbaby #cleftproud #cleftcutie #cleftlip #cleftstrong #cleftlipandpalate #cleftlipkuwait
Many already know, but for those who don’t, I wanted to quickly share this video. I have people asking all the time on all social platforms either privately messaging or commenting asking if I have a cleft. Yes, I was born with both a cleft lip & open palate. Despite my long cleft journey, it was the community of dance that has always been my outlet. Dance has always been my safe space that helped me get through it all…the surgeries, recoveries, & even bullying. Thanks for asking. 🤗🙏🏼❤️ #CleftProud #jimnowakowski
