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Our story. #endftd #frontotemporaldementia
Our story. #endftd #frontotemporaldementia
Frontotemporal dementia is the most common form of dementia under the age of 60. FTD can occur anytime from someone’s 20s to their 60s. #worldftdweek #frontotemporaldementia #endftd
Frontotemporal dementia is the most common form of dementia under the age of 60. FTD can occur anytime from someone’s 20s to their 60s. #worldftdweek #frontotemporaldementia #endftd
At first when we got mums FTD diagnosis it felt like a relief, because we finally had answers…but then you learn there’s no cure or anyway to slow it down and the heartbreak hits 💔 #ftd #dementia #frontotemporaldementia #dementiaawareness #endftd #dementiacare #dementiadaughter #dementiastory #dementiacarer #ftdawareness #fyp
At first when we got mums FTD diagnosis it felt like a relief, because we finally had answers…but then you learn there’s no cure or anyway to slow it down and the heartbreak hits 💔 #ftd #dementia #frontotemporaldementia #dementiaawareness #endftd #dementiacare #dementiadaughter #dementiastory #dementiacarer #ftdawareness #fyp
Did you know FTD can steal away your words? When conversations stop making sense — it’s not forgetfulness, it could be FTD. Hear from Dr. Bruce Miller and playwright Jake Broder how communication may continue – without verbal language. #endFTD #worldftdawarenessweek #itmightbedementia #whatifitsftd #beyondmemory
Did you know FTD can steal away your words? When conversations stop making sense — it’s not forgetfulness, it could be FTD. Hear from Dr. Bruce Miller and playwright Jake Broder how communication may continue – without verbal language. #endFTD #worldftdawarenessweek #itmightbedementia #whatifitsftd #beyondmemory
Beyond Memory is a new campaign raising awareness for all kinds of dementia 🧠 Many people think dementia = memory loss. But that’s just one piece of the puzzle. From information on the different types of dementia and the symptoms to watch for, to tips on talking to doctors and recommended resources, our website can help you get informed. A shout out to our partners @theaftd & @lewybodydementiaassociation for their collaboration! Big thank you to @emmahemmingwillis for helping us share this important message! 🔗Visit beyondmemory.org at the link in bio #BeyondMemory #DementiaMyths #ItMightBeDementia #FTD #LBD #VascularDementia #EndFTD
Beyond Memory is a new campaign raising awareness for all kinds of dementia 🧠 Many people think dementia = memory loss. But that’s just one piece of the puzzle. From information on the different types of dementia and the symptoms to watch for, to tips on talking to doctors and recommended resources, our website can help you get informed. A shout out to our partners @theaftd & @lewybodydementiaassociation for their collaboration! Big thank you to @emmahemmingwillis for helping us share this important message! 🔗Visit beyondmemory.org at the link in bio #BeyondMemory #DementiaMyths #ItMightBeDementia #FTD #LBD #VascularDementia #EndFTD
🧠 Frontotemporal Degeneration (FTD) is not the same as Alzheimer’s disease. Unlike many other dementias, FTD often begins with changes in how a person interacts or communicates, not memory loss. ⚠️ Early Signs to Watch For: 🔹 Shifts in how someone speaks or connects with others 🔹 Repetitive or impulsive behaviors 🔹 Difficulty understanding or expressing language 🔹 Poor judgment or lack of awareness of changes 💡 How It Can Progress Later On: As the disease advances, FTD can lead to ➡️ Changes in mobility and movement ➡️ Difficulty feeding or swallowing ➡️ Incontinence ➡️ And eventually, memory loss in the later stages Recognizing these patterns can help with earlier detection, care planning, and compassionate support. Visit @theaftd to learn more about FTD at theaftd.org #FrontotemporalDementia #DementiaAwareness #CaregiverSupport #BrainHealth #Neurology #FTDAwareness #endFTD
🧠 Frontotemporal Degeneration (FTD) is not the same as Alzheimer’s disease. Unlike many other dementias, FTD often begins with changes in how a person interacts or communicates, not memory loss. ⚠️ Early Signs to Watch For: 🔹 Shifts in how someone speaks or connects with others 🔹 Repetitive or impulsive behaviors 🔹 Difficulty understanding or expressing language 🔹 Poor judgment or lack of awareness of changes 💡 How It Can Progress Later On: As the disease advances, FTD can lead to ➡️ Changes in mobility and movement ➡️ Difficulty feeding or swallowing ➡️ Incontinence ➡️ And eventually, memory loss in the later stages Recognizing these patterns can help with earlier detection, care planning, and compassionate support. Visit @theaftd to learn more about FTD at theaftd.org #FrontotemporalDementia #DementiaAwareness #CaregiverSupport #BrainHealth #Neurology #FTDAwareness #endFTD
All my love to the Willis family ❤️ please don’t hesitate to ask any questions you have about FTD in the comments or head over to theaftd.org for more information. Thank you again to @theaftd for being so supportive of all of those going through the journey of FTD. Please like, comment, & share this post to help increase awareness around FTD ❤️ #ftd #ftdawareness #brucewillis #caregiver #dementiacaregiver #endftd
All my love to the Willis family ❤️ please don’t hesitate to ask any questions you have about FTD in the comments or head over to theaftd.org for more information. Thank you again to @theaftd for being so supportive of all of those going through the journey of FTD. Please like, comment, & share this post to help increase awareness around FTD ❤️ #ftd #ftdawareness #brucewillis #caregiver #dementiacaregiver #endftd
With today’s news about Wendy Williams coming out exactly a year after the news about Bruce Willis, I feel…….TRIGGERED. It has been a year and not one news outlet has talked about what a horrific disease this is. I am blessed to have made a lot of friends in the FTD/dementia/caregiving community, and some of us were chatting and decided to show the REAL side of FTD. My mother, the most beautiful, glamorous, and in her words, “FABULOUS” person, would NEVER be okay with me showing how she is now, which explains why I only portray her a certain way. Here’s a glimpse of what life is like. What’s not pictured: not being able to speak, the droopy, blank face, incontinence, the inability to feed oneself or brush teeth or hair, the loss each family member feels seeing Mom wither away every single day and fade into the deep dark hole that’s FTD. Mom would kill me for ever posting these things. How could the most fabulous woman turn into something like this? Unfortunately this is the path both WW and BW are on, along with their families. That’s the harsh reality. As part of the larger FTD community, I send them nothing but love and support during this awful ride. Yes, their diagnoses are great for awareness, but always remember, they are PEOPLE, just like Mom, with families, just like mine. #endftd #ftd #ftdawareness #frontotemporaldementia #frontotemporaldegeneration #dementia #dementiacare #dementiaawareness #mom #caregiver #caregivers #awareness @theaftd @therealwendywilliamsonline @brucewillisbw #wendywilliams #brucewillis
With today’s news about Wendy Williams coming out exactly a year after the news about Bruce Willis, I feel…….TRIGGERED. It has been a year and not one news outlet has talked about what a horrific disease this is. I am blessed to have made a lot of friends in the FTD/dementia/caregiving community, and some of us were chatting and decided to show the REAL side of FTD. My mother, the most beautiful, glamorous, and in her words, “FABULOUS” person, would NEVER be okay with me showing how she is now, which explains why I only portray her a certain way. Here’s a glimpse of what life is like. What’s not pictured: not being able to speak, the droopy, blank face, incontinence, the inability to feed oneself or brush teeth or hair, the loss each family member feels seeing Mom wither away every single day and fade into the deep dark hole that’s FTD. Mom would kill me for ever posting these things. How could the most fabulous woman turn into something like this? Unfortunately this is the path both WW and BW are on, along with their families. That’s the harsh reality. As part of the larger FTD community, I send them nothing but love and support during this awful ride. Yes, their diagnoses are great for awareness, but always remember, they are PEOPLE, just like Mom, with families, just like mine. #endftd #ftd #ftdawareness #frontotemporaldementia #frontotemporaldegeneration #dementia #dementiacare #dementiaawareness #mom #caregiver #caregivers #awareness @theaftd @therealwendywilliamsonline @brucewillisbw #wendywilliams #brucewillis
Unsere Nachwuchsexpertinnen erklären euch heute am #weltalzheimertag , was FTD eigentlich ist. Weil es wichtig ist, dass wir uns alle bewusst machen, dass Demenz viele Gesichter hat 🙏🏻🫶🏻 #endFTD #whatifitsftd #FTDawareness #alzheimer #demenzverstehen @worldftdunited @theaftd @selbsthilfe_demenz @demenzworld
Unsere Nachwuchsexpertinnen erklären euch heute am #weltalzheimertag , was FTD eigentlich ist. Weil es wichtig ist, dass wir uns alle bewusst machen, dass Demenz viele Gesichter hat 🙏🏻🫶🏻 #endFTD #whatifitsftd #FTDawareness #alzheimer #demenzverstehen @worldftdunited @theaftd @selbsthilfe_demenz @demenzworld
Mama update 🩵 The very end is my favorite 😘 #primaryprogressiveaphasia #corticobasaldegeneration #dementia #dementiaawareness #frontotemporaldementia #parentwithdementia #ftd
Mama update 🩵 The very end is my favorite 😘 #primaryprogressiveaphasia #corticobasaldegeneration #dementia #dementiaawareness #frontotemporaldementia #parentwithdementia #ftd
I understand how overwhelming AAC can feel- I’ve experienced it myself with the broad scope of technology, programming, and the individualization required for person-centered evaluations and treatments we are expected to navigate. This is magnified when people are coming to you as the “expert”. I really want to flip the script on this and teach SLP‘s that gaps in knowledge will be expected in a specialized, technical field that has thousands of softwares and devices. It’s okay! Tools: 🔨Have a script ready with a few features listed you know would be beneficial for the individual you are working with. 🔧Use a Feature-Matching assessment or handout to guide you through what features to consider when looking at devices. 🪛Use your speech device reps! Comment something below that you need help with in AAC evals. I guarantee you are not the only one who needs help with it! ✨Check out the AAC Freebie in highlights✨ #primaryprogressiveaphasia #adultspeechtherapy #FrontotemporalDementia #endftd #AAC #Speechdevice #cognitivefunction #mildcognitiveimpairment #cognitivehealth #dementiaawareness #AACFunding #HighTechSpeech #nonspeaking #alternativeaccess #primaryprogressiveaphasia #slpresources #speechlanguagepathology #highlevelwordfinding #wordfinding #wordretrieval #cognitivecommunication #Slp2be #slpgradstudent #strokerehab #strokerecovery
I understand how overwhelming AAC can feel- I’ve experienced it myself with the broad scope of technology, programming, and the individualization required for person-centered evaluations and treatments we are expected to navigate. This is magnified when people are coming to you as the “expert”. I really want to flip the script on this and teach SLP‘s that gaps in knowledge will be expected in a specialized, technical field that has thousands of softwares and devices. It’s okay! Tools: 🔨Have a script ready with a few features listed you know would be beneficial for the individual you are working with. 🔧Use a Feature-Matching assessment or handout to guide you through what features to consider when looking at devices. 🪛Use your speech device reps! Comment something below that you need help with in AAC evals. I guarantee you are not the only one who needs help with it! ✨Check out the AAC Freebie in highlights✨ #primaryprogressiveaphasia #adultspeechtherapy #FrontotemporalDementia #endftd #AAC #Speechdevice #cognitivefunction #mildcognitiveimpairment #cognitivehealth #dementiaawareness #AACFunding #HighTechSpeech #nonspeaking #alternativeaccess #primaryprogressiveaphasia #slpresources #speechlanguagepathology #highlevelwordfinding #wordfinding #wordretrieval #cognitivecommunication #Slp2be #slpgradstudent #strokerehab #strokerecovery
“Het gaat niet alleen om vergeetachtigheid, er komt zoveel meer bij kijken.” Frontotemporale dementie is de meest voorkomende vorm van dementie op jonge leeftijd na alzheimer, en toch zijn veel mensen niet bekend met de ziekte. Dit kan erg frustrerend zijn voor naasten, zoals Lyonne (21). Haar vader kreeg op jonge leeftijd frontotemporale dementie, waardoor zijn gedrag veranderde. Het geheugen blijft bij deze vorm van dementie vaak redelijk intact. Frontotemporale dementie raakt vooral mensen tussen de 40 en 70 jaar, relatief jong dus. Zij staan vaak nog midden in het leven, met een baan en een gezin. De kinderen van mensen met dementie op jonge leeftijd zijn aan het woord in “Kind van dementie: de vergeten jongeren”, een documentaire van @rhannatolboom. Haar vader kreeg op jonge leeftijd de diagnose alzheimer. De documentaire is te zien op 22 september om 19:00, bij FC Hyena in Amsterdam. Het is een van de vijf documentaires die tijdens het FTD Filmfestival getoond worden in verschillende bioscopen in Amsterdam, van 15 tot 22 september. Kom ook langs! Vind meer informatie en tickets via de link in de bio. . . . @dezaakwijsman @singularsnemmel @valescacao @m.vdbeld94 @frame_a_story @lucamaximilano @rialto_film @schouwburg_amstelveen @fchyena @iamsterdam @micheldefilm @ftd_lotgenoten @amsterdamumc #FTD #frontotemporaledementie #dementie #jongdementie #film #filmfestival #bioscoop #docu #documentaire #mantelzorger #mantelzorgers #FTDawareness #endFTD #awareness #zorg #frontotemporaldementia #dementia
“Het gaat niet alleen om vergeetachtigheid, er komt zoveel meer bij kijken.” Frontotemporale dementie is de meest voorkomende vorm van dementie op jonge leeftijd na alzheimer, en toch zijn veel mensen niet bekend met de ziekte. Dit kan erg frustrerend zijn voor naasten, zoals Lyonne (21). Haar vader kreeg op jonge leeftijd frontotemporale dementie, waardoor zijn gedrag veranderde. Het geheugen blijft bij deze vorm van dementie vaak redelijk intact. Frontotemporale dementie raakt vooral mensen tussen de 40 en 70 jaar, relatief jong dus. Zij staan vaak nog midden in het leven, met een baan en een gezin. De kinderen van mensen met dementie op jonge leeftijd zijn aan het woord in “Kind van dementie: de vergeten jongeren”, een documentaire van @rhannatolboom. Haar vader kreeg op jonge leeftijd de diagnose alzheimer. De documentaire is te zien op 22 september om 19:00, bij FC Hyena in Amsterdam. Het is een van de vijf documentaires die tijdens het FTD Filmfestival getoond worden in verschillende bioscopen in Amsterdam, van 15 tot 22 september. Kom ook langs! Vind meer informatie en tickets via de link in de bio. . . . @dezaakwijsman @singularsnemmel @valescacao @m.vdbeld94 @frame_a_story @lucamaximilano @rialto_film @schouwburg_amstelveen @fchyena @iamsterdam @micheldefilm @ftd_lotgenoten @amsterdamumc #FTD #frontotemporaledementie #dementie #jongdementie #film #filmfestival #bioscoop #docu #documentaire #mantelzorger #mantelzorgers #FTDawareness #endFTD #awareness #zorg #frontotemporaldementia #dementia
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