#bedbound

just like that...access bedbound addition . This is the start of a new series of Reels that will focus on different accessibility tricks and tips for the chronically ill and disabled communities. That’s not to say that abled bodied humans can’t learn a thing or two from our hard won Crip Wisdom. . No one teaches you how to live well with disabilities. We must help each other. Save and share these tricks with your friends and chosen family. It’s our lifeline 🤝 EDIT : the over the bed tray was bought on Amazon. The average prices for something like this is between $100-200 for decent quality.

Room decor updateeeeeee ✨💖✨🩷✨ #chronicillnessgirl #chronicillnesswarrior #bedbound #pink #pinkpinkpink

I’ve been having a lot of “pinch me” moments recently… Seven years ago when I was at my sickest, life felt so dark. I dreamt of walking, of feeling the sun on my skin, of dancing at parties…but I was also unsure if any of those things would ever happen for me again… The last few months my life has slowly started to open up and I couldn’t be more grateful. There’s something truly special about all the “firsts” after a long time of ill health, it really does feel like having a second chance at life. I wish I could go back in time to that version of me that was fighting for her life…To sit beside her, hold her hand and tell her that everything REALLY was going to be OK. To tell her that those dreams WERE in her future. That all of this fighting, all this struggle WOULD be worth it in the end. 🥹 Becky x P.s . For more information on my diagnoses and recovery so far, check out my pinned posts, story highlights and follow along for more on my journey! #healingispossible #chronicfatigue #craniocervicalinstability #ehlersdanlossyndome #posturalorthostatictachycardiasyndrome

I’ve been living in my bed 24/7 since mid November. These are some of the things I didn’t realize would happen. If you’re new here, I’m bedbound due to severe ME/CFS, a neuroimmune condition that worsens with emotional, mental, and physical exertion. I also have POTS which prevents me from sitting up because my heart rate begins to spike. Comment any aspects of being bedbound I missed! #chronicillnessawareness #myalgicencephalomyelitis #severeme #mecfs #potsawareness

As a general rule I don't think comparing different disabilities or different presentations of the same disability is very helpful...BUT I am only human and struggle a lot with sadness and feelings of inadequacy when I meet people who have the same disabilities as me, but who can do things like work full-time, play sports or socialise easily. I especially struggle when I meet people who have EDS who don't have additional disabilities like ME/CFS which make it harder to consistently access the things that help with symptom management. I know life isn't easy for them either of course, and "looking" less visibly disabled comes with its own set of challenges, but as much as I want the best for everyone in the EDS community, it can be so hard to watch other people live life with the freedom you wish you had, especially when they're dealing with the "same" problem on paper. (And let's not forget all those helpful people who always seem to know someone with the same disease and can't understand why you don't do all the same things they can 🙄) Do you ever struggle with this? (Tell me I'm not the only one please! 😅) P.S a video about my inspiration for this flamboyant makeup is coming soon too! ☺️ [Video ID: Jess is lip syncing to the chorus of "Brutus" by Em Beihold from various places in her apartment in a Lilac swing dress and rainbow makeup. The lyrics talk about wishing the best for someone from the sidelines while struggling with feelings of jealously over their life.] #EDS #hEDS #EhlersDanlosSyndrome #MECFS #MyalgicEncephalomyelitis #Bedbound #Housebound #TooManyComorbidities #DisabilityAcceptance #DisabilityGrief #ChronicIllnessCommunity #DisabilityCommunity

A CFS clinic told Vera recovery wasn’t possible. She then confronted a new doctor at the clinic. What she had to say completely changed his worldview. Vera ultimately fully recovered from bedbound and housebound ME/CFS, POTS, and Lyme. 💫 Go to my Heal With Liz Youtube channel to watch Vera’s inspiring story. She had one of the most powerful epiphanies I’ve ever heard. find Vera at @mindbodyavenue

I’ve been there. Bed-bound with CFS/ME, POTS, pain and heart arrhythmias. Mind-body chronic illnesses that develop over a period of time are driven by mind-body processes that are unconscious BUT FAMILIAR. Which is why healing plateaus. When I was bedbound with chronic fatigue syndrome and POTS, my thoughts were so negative and unpleasant. My feelings were scary. My body felt unsafe. My environment felt unsafe. And EVEN THEN, when I presented my brain with new ways of thinking and feeling it didn’t care and kept using old mechanisms that were FAMILIAR! 👉The ones that switched on chronic stress and fear pathways leading to symptoms in my body! Why? Because the brain’s job is to save energy and recognize patterns by using the familiar one that it already uses— so it doesn’t care to turn an unhealthy habit into a healthy one. Why use all that energy? Until… 🚨 you apply the rules of Neuroplasticity to your healing!!!! Repetition. Practice. Play. Because play makes change happen faster. Research shows that learning (making a skill like new thinking or new feeling go from conscious to unconscious) happens after 400 repetitions, but with play— only 20! Motivation. Belief. If you give the brain the right ingredients, change is possible. And change doesn’t just lead to better habits. Change leads to a healthier body, a stronger mind, a more balanced nervous system and a better life. In our program we teach a somatic brain retraining that engages your somatic senses to help your brain care about the changes you are making to heal yourself— rather than resist them! Join the thousands of people have fully recovered using OUR @somiainternational’s program HEAL from: 👉chronic illnesses like fibromyalgia, chronic fatigue syndrome/ME, POTS, chronic Lyme, long covid, FND, IBS, autoimmune conditions like Lupus and RA — and so many more. Yours sincerely, Jen 💛

In 2018 I was bedbound with CFS - in pain, exhausted, anxious, stuck with brain fog and a million other symptoms. I had no income, no sense of who I was anymore and at 33, I was back living with my parents, feeling completely lost. Fast forward to now, my days look very different. I have energy again, I sleep deeply, and I feel more connected to life. I'm now living in nature with my dog in Portugal, and helping others heal. This journey wasn't easy, but it was possible. And I'm sharing this because healing isn't just a dream. Where do you imagine yourself if healing was possible? #MECFS #CFSRecovery #ChronicIllnessRecovery #NervousSystemHealing #HealingJourney

Bedbound patient care is our priority #healthcarebeauticiansconsultant #standbypatricia #patientcare #patientcarefirst #patientcareservices #patientcarematters #beautician #haircut #hair #hairstylist #nurse #cnalife #training #nursinghome #hospital ital

I hate it when people say this to me!! Well, at least you don't have to work!! ..... do you know what I'd give to pick up my make-up brushes again and get back to what I loved doing! I spent years building my own business as a make-up artist, I loved nothing more than being part of a brides wedding morning or a prom girls big day! ..... and it's now it's all gone! Taken away from me, my brushes swapped for a walking stick 😭 It makes me mad, sad and so angry! What did I do to deserve this? But the worst is the judgement from people, she's not sick, she's just too lazy to work! Day 2 of being totally bedbound has broken me! I just want to make it even just downstairs! #chronicallyillmom #chronicillness #chronicpain #bedbound #sobored

How to brush your teeth while bedbound

Beyond grateful ✨ In 2020 I was bedbound, depressed and terrified I’d never recover my health. : I was dealing with chronic dizziness which left me barely able to function. My mum had to wash my hair for me sometimes… : Now, I have not only recovered my well-being, but I have the privilege to be able to help others do the same. : If there is one thing I have learned from going through this journey, it’s that you are never stuck. : You can change your whole life with the right guidance, and I’m here to provide it. : ✔️ COMMENT: HEAL And I’ll send you the link to my free beginners guide to PPPD. 🤍 #pppd #mdds #dizziness #chronicillness #nervousystem #coaching #healyourself #wellbeingcoach #dizzy #dizzinessrelief