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Tips from @withlove_august on dealing with a flare. #behcetsdisease #behcets #autoimmunedisease #vasculitis #chronicillness #chronicpain #raredisease
Tips from @withlove_august on dealing with a flare. #behcetsdisease #behcets #autoimmunedisease #vasculitis #chronicillness #chronicpain #raredisease
Yesterday was Rare Disease Day, so I thought I’d share a little bit about Behçet’s 💛 I think the hardest thing about autoimmune diseases is the inconsistency. You can be top of the world one day, then literally can’t get out of bed the next. It’s also super uncomfortable to talk about symptoms/flare up’s with people because it feels like you’re always complaining (at least for me.) But this disease has also kept my pridefulness in check - relying on God and asking for help from folks when I need it 🙏🏻 Comment below if you’ve ever heard of Behçet’s or you also suffer from a rare disease 💋💋 ⁣ps. Was inspired to make this vid by @createwithkimmy 🥰 Check her out! .⁣ .⁣ .⁣ .⁣ .⁣ #anxiety #autoimmunedisease #chronicillness #chronicillnesscommunity #chronicillnesswarrior #chronicpain #depression #uveitis #rheumatoidarthritis #fighter #behcetsdiseaseawareness #inclusion #invisibleillness #invisibleillnessawareness #mentalhealth #mentalhealthawareness #raredisease #rarediseaseawareness #rarediseases #specialneedsfamily #specialneedsjourney #specialneedsparent #spoonie #behcets #warrior #homedecor #bedroomdecor
Yesterday was Rare Disease Day, so I thought I’d share a little bit about Behçet’s 💛 I think the hardest thing about autoimmune diseases is the inconsistency. You can be top of the world one day, then literally can’t get out of bed the next. It’s also super uncomfortable to talk about symptoms/flare up’s with people because it feels like you’re always complaining (at least for me.) But this disease has also kept my pridefulness in check - relying on God and asking for help from folks when I need it 🙏🏻 Comment below if you’ve ever heard of Behçet’s or you also suffer from a rare disease 💋💋 ⁣ps. Was inspired to make this vid by @createwithkimmy 🥰 Check her out! .⁣ .⁣ .⁣ .⁣ .⁣ #anxiety #autoimmunedisease #chronicillness #chronicillnesscommunity #chronicillnesswarrior #chronicpain #depression #uveitis #rheumatoidarthritis #fighter #behcetsdiseaseawareness #inclusion #invisibleillness #invisibleillnessawareness #mentalhealth #mentalhealthawareness #raredisease #rarediseaseawareness #rarediseases #specialneedsfamily #specialneedsjourney #specialneedsparent #spoonie #behcets #warrior #homedecor #bedroomdecor
BEHCETS #oneslideseries
BEHCETS #oneslideseries
Long drive but I had tofu so I put tofu packs on my face for the pain and swelling - it helped a bit!!! Sorry for the split between shots!!! We were just talking about that crazy canal and how it turned out so well!!! I am in so much pain and I am sure it will get worse bc I lost so much tooth structure here my 1st molar had to be clamped and it chopped up my gums (#behcets … nooooo!!!) but so far, so good just visually!!! Good news for the other tooth w/any luck! Back in two weeks to tackle the other gnarly tooth (not like this is CRAZY INFECTED OR ANYTHING … oh wait!!) … resting now bc it was a LONG day. #rootcanaltreatment #toothnumber29 #rootcanalnumber12 #proudoftheprecision by EVERYONE who has ever touched my roots … so maybe #notapatient there … now? That makes me sad too though. And was I “supposed” to do this like … years ago??? I couldn’t bet on either. bc I was kind of left in the dust…. I still cry about it!! Like “sorry, you have to wait SEVEN MONTHS UNTIL WE EVEN GET NEAR THAT TOOTH THAT IS CAUSING YOU SUCH INSANE PAIN!” …. Ugh. 😣 I have learned a lot from the best over the years. *scary Beth wink if I could!* 😉 😉 Imma have to start shadowing someone….
Long drive but I had tofu so I put tofu packs on my face for the pain and swelling - it helped a bit!!! Sorry for the split between shots!!! We were just talking about that crazy canal and how it turned out so well!!! I am in so much pain and I am sure it will get worse bc I lost so much tooth structure here my 1st molar had to be clamped and it chopped up my gums (#behcets … nooooo!!!) but so far, so good just visually!!! Good news for the other tooth w/any luck! Back in two weeks to tackle the other gnarly tooth (not like this is CRAZY INFECTED OR ANYTHING … oh wait!!) … resting now bc it was a LONG day. #rootcanaltreatment #toothnumber29 #rootcanalnumber12 #proudoftheprecision by EVERYONE who has ever touched my roots … so maybe #notapatient there … now? That makes me sad too though. And was I “supposed” to do this like … years ago??? I couldn’t bet on either. bc I was kind of left in the dust…. I still cry about it!! Like “sorry, you have to wait SEVEN MONTHS UNTIL WE EVEN GET NEAR THAT TOOTH THAT IS CAUSING YOU SUCH INSANE PAIN!” …. Ugh. 😣 I have learned a lot from the best over the years. *scary Beth wink if I could!* 😉 😉 Imma have to start shadowing someone….
Countdown to #RareDiseaseDay with me @nord_rare and Behcet’s Disease Warrior @pamelaericaprice 🩵 Did you know that… 1 in 10 people in the U.S. are affected by a rare disease. That equates to 30 million Americans impacted Less than 5% of the 10,000 known rare diseases have FDA-approved treatments. Rare disease patients face medical costs 3 to 5 times higher than non-rare patients, accounting for nearly half of all healthcare costs in the U.S. Rally and raise awareness with us! #nord #raredisease #behcets #behcetsdisease #behcetswarrior #behcetssyndrome #behcetsdiseaseawareness #spooniewarrior #rarediseaseawareness
Countdown to #RareDiseaseDay with me @nord_rare and Behcet’s Disease Warrior @pamelaericaprice 🩵 Did you know that… 1 in 10 people in the U.S. are affected by a rare disease. That equates to 30 million Americans impacted Less than 5% of the 10,000 known rare diseases have FDA-approved treatments. Rare disease patients face medical costs 3 to 5 times higher than non-rare patients, accounting for nearly half of all healthcare costs in the U.S. Rally and raise awareness with us! #nord #raredisease #behcets #behcetsdisease #behcetswarrior #behcetssyndrome #behcetsdiseaseawareness #spooniewarrior #rarediseaseawareness
“One of the hardest things for me was dealing with the ‘You look fine!’ when I tell people that I don’t feel good. Sadly that statement comes from everyone that doesn’t personally know you. Just because you look happy doesn’t mean that you aren’t in pain or going through something. Even doctors won’t believe me sometimes because all my lab results are good and they can’t see anything that could be causing my pain… …So, if you are struggling with being heard or people aren’t listening, just know you are not alone.” Kayliana
“One of the hardest things for me was dealing with the ‘You look fine!’ when I tell people that I don’t feel good. Sadly that statement comes from everyone that doesn’t personally know you. Just because you look happy doesn’t mean that you aren’t in pain or going through something. Even doctors won’t believe me sometimes because all my lab results are good and they can’t see anything that could be causing my pain… …So, if you are struggling with being heard or people aren’t listening, just know you are not alone.” Kayliana
📚 DOWNLOAD THE FREE EBOOK - link in bio 🌟🔥 ⬇️ Follow me for high yield flashcards to smash your MRCP exams 🧠🩺 @mrcpfacts @mrcpfacts @mrcpfacts ******************************** #mrcp #mrcpuk #mrcpfacts #mrcppart1 #mrcppart2 #mrcppaces #behcetsdisease #clinical #physician #behcets #boardexamprep #healthcareeducation #medstudentlife #usmlestudy #plab #neetexam #medicinestudent #futuredoctors #meded #studymedicine #medcommunity1 #healthcarestudent #doctorsofinstagram #medicalfacts #medicalrevision #boardexamprep #deepveinthrombosis #vasculitis #pulmonaryembolism #autoimmunediseases
📚 DOWNLOAD THE FREE EBOOK - link in bio 🌟🔥 ⬇️ Follow me for high yield flashcards to smash your MRCP exams 🧠🩺 @mrcpfacts @mrcpfacts @mrcpfacts ******************************** #mrcp #mrcpuk #mrcpfacts #mrcppart1 #mrcppart2 #mrcppaces #behcetsdisease #clinical #physician #behcets #boardexamprep #healthcareeducation #medstudentlife #usmlestudy #plab #neetexam #medicinestudent #futuredoctors #meded #studymedicine #medcommunity1 #healthcarestudent #doctorsofinstagram #medicalfacts #medicalrevision #boardexamprep #deepveinthrombosis #vasculitis #pulmonaryembolism #autoimmunediseases
I’m kinda done hiding what’s wrong with me. Having a hella flare up again and I can’t tell you how ready I am for an official diagnosis. • #raredisease #chronicillness #chronicillnessawareness #rarediseaseawareness #raredisorder #vasculitis #bodyinflammation #inflammation #behcets #behcetsdisease #undiagnosed #autoimmunedisease #autoimmune #autoimmunewarrior #chronicallyill
I’m kinda done hiding what’s wrong with me. Having a hella flare up again and I can’t tell you how ready I am for an official diagnosis. • #raredisease #chronicillness #chronicillnessawareness #rarediseaseawareness #raredisorder #vasculitis #bodyinflammation #inflammation #behcets #behcetsdisease #undiagnosed #autoimmunedisease #autoimmune #autoimmunewarrior #chronicallyill
🌸Medo do corticoide! 🌸Tudo bem ter medo! Também tive quando descobri que precisaria usar essa medicação 🌸Foram 11 meses utilizando de forma continua. 🌸Sim, inchei, ganhei peso, meu apetite aumentou, tive giba, equimoses, dentre outros efeitos colaterais! 🌸Só que o corticoide salva vidas ! Ele é necessário! 🌸Depois de tanto tempo, desmamei do corticoide! 🌸Hoje, olhando para trás percebo que ter medo desse ‘’vilão’’ apenas aumentou meus níveis de ansiedade, já que precisaria tomar de qualquer jeito! 🌸O medo só me atrapalhou e foi em vão, porque hoje, após o desmame, os temidos efeitos colaterais desapareceram, inclusive o inchaço e o ganho de peso. 🌸É temporário, é normal ter medo, mas posso dizer uma coisa: o medo foi o pior vilão e não o corticoide em si ! #corticoide #corticoidesalvavidas #ginecologia #obstetricia #aulasonline #ead #aulasdemedicina #urologia #reumatologia #genetica #doentesraros #rarosentrenós #rarosnapandemia #convivendocomdoençasraras #doençasauroimunes #doencasautoinflamatorias #doencaautoimune #autoimunidade #doençadebehçet #doencadebehçet #behcetsdisease #behçet #behçet #behcets #behcet #behcetbrasil #superimunes
🌸Medo do corticoide! 🌸Tudo bem ter medo! Também tive quando descobri que precisaria usar essa medicação 🌸Foram 11 meses utilizando de forma continua. 🌸Sim, inchei, ganhei peso, meu apetite aumentou, tive giba, equimoses, dentre outros efeitos colaterais! 🌸Só que o corticoide salva vidas ! Ele é necessário! 🌸Depois de tanto tempo, desmamei do corticoide! 🌸Hoje, olhando para trás percebo que ter medo desse ‘’vilão’’ apenas aumentou meus níveis de ansiedade, já que precisaria tomar de qualquer jeito! 🌸O medo só me atrapalhou e foi em vão, porque hoje, após o desmame, os temidos efeitos colaterais desapareceram, inclusive o inchaço e o ganho de peso. 🌸É temporário, é normal ter medo, mas posso dizer uma coisa: o medo foi o pior vilão e não o corticoide em si ! #corticoide #corticoidesalvavidas #ginecologia #obstetricia #aulasonline #ead #aulasdemedicina #urologia #reumatologia #genetica #doentesraros #rarosentrenós #rarosnapandemia #convivendocomdoençasraras #doençasauroimunes #doencasautoinflamatorias #doencaautoimune #autoimunidade #doençadebehçet #doencadebehçet #behcetsdisease #behçet #behçet #behcets #behcet #behcetbrasil #superimunes
You'd think that with both "health" and "care" in the name, healthcare companies would care about health. But they don't, which is why I don't care for them and laugh my behind off when some greeedeee CE ohhh gets popped. A hero indeed. My man! Song is It's A Cold Morning For A Bike Ride by #ellismichaels  #acousticfolk #behcetsdisease #indiefolk #folkpunk #folk #behcets #behçets
You'd think that with both "health" and "care" in the name, healthcare companies would care about health. But they don't, which is why I don't care for them and laugh my behind off when some greeedeee CE ohhh gets popped. A hero indeed. My man! Song is It's A Cold Morning For A Bike Ride by #ellismichaels  #acousticfolk #behcetsdisease #indiefolk #folkpunk #folk #behcets #behçets
Be Inspired by the AMAZING Cat Ray @risingfromtheillness 🙌🙌!!! FULL EPISODE NOW AVAILABLE ON ALL STREAMING PLATFORMS AND VIA LIKK IN BIO!!!! Xx ❤️❤️ Survivor Girl #behcetsdisease #behçets #autoimmunedisease #podcast #risetoday #risetodayinspirationalpodcast #inspiration #inspirational #resilience #mindset #warrior #behcets #health #wellness #overcome #overcomer #adapt #hope #thistooshallpass #optimism #heal #healingjourney #healing #disabilty #disabilityawareness
Be Inspired by the AMAZING Cat Ray @risingfromtheillness 🙌🙌!!! FULL EPISODE NOW AVAILABLE ON ALL STREAMING PLATFORMS AND VIA LIKK IN BIO!!!! Xx ❤️❤️ Survivor Girl #behcetsdisease #behçets #autoimmunedisease #podcast #risetoday #risetodayinspirationalpodcast #inspiration #inspirational #resilience #mindset #warrior #behcets #health #wellness #overcome #overcomer #adapt #hope #thistooshallpass #optimism #heal #healingjourney #healing #disabilty #disabilityawareness
Quando me perguntam porque prático vários esportes!!! (Faltou meu handebol) Kkk FAÇA EXERCÍCIOS!!! CUIDE DE VOCÊ!!! #saude #atividadefisica #taekwondo #boxe #bike #spinning #doenca #autoimune #behcetsdisease #behcets #fy
Quando me perguntam porque prático vários esportes!!! (Faltou meu handebol) Kkk FAÇA EXERCÍCIOS!!! CUIDE DE VOCÊ!!! #saude #atividadefisica #taekwondo #boxe #bike #spinning #doenca #autoimune #behcetsdisease #behcets #fy
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