#brittlebones

Two weeks into Hadley’s recovery journey, she’s making progress-hooray! 😊 Recent interactions have prompted us to share something genuine and unfiltered! 😞 A few days ago while we were out running errands, Hadley faced a ton of questions from strangers about her injury, most of them shared their own theories before Hadley even had a chance to explain. LET’S clear things up: Hadley didn’t break her leg while doing anything adventurous like jumping on a trampoline, playing sports, skiing, biking, or even in a car accident. Nope, it happened while she was simply walking in her classroom at school. Hadley lives with Osteogenesis Imperfecta.(Brittle Bones) Hadley consistently handles these questions from strangers with remarkable poise and grace. Even when she’s frustrated, she maintains her patience and kindness. 💗Meanwhile, as her mom, I’ve found myself on the brink of losing my cool numerous times. Fortunately, I have Hadley’s incredible example to guide me in keeping my composure 🤐 Dealing with these questions reminds Hadley of the toughest part of having OI: the constant reminder that she’s limited in certain activities. Accepting these limitations is incredibly tough, especially with our family’s love for sports and adventure. Despite our efforts to stay positive and make accommodations for Hadley to participate, she knows it’s not the same and hates it. Living with Osteogenesis Imperfecta is tough, and no amount of accommodations or optimism changes that. After an upsetting comment, Hadley expressed her frustration to me, questioning whether people truly see her beyond her physical challenges. I want her to know that I see her—I see her changing the world! I see her determination to keep going, her positive attitude despite the pain, her compassion for others, and her kindness. Hadley, you are seen, loved, and cherished! 💕#iloveyou #youramazing #unbreakable . . . . #brittlebones #brokenleg #osteogenesisimperfecta #onedayatatime #onthemend #healbabyheal #healingtakestime #HadleysJourney #BeyondTheChallenges #StrengthInAdversity #FamilyLove #UnbreakableHadley

Had to jump on this trend 💥 because apparently if you use a wheelchair… you must be paralyzed, right? 😅 Well… surprise! 🎉 Not all wheelchair users are paralyzed. I’m an ambulatory wheelchair user— which means I can stand, but still need my chair to stay safe and do life my way. ♿️ Now excuse me while I bust a move. 😎 #holyairball #AmbulatoryWheelchairUser . . . . . #WheelchairLife #osteogenesisimperfecta #wheelchairgirl #wheelchairlife #wheelchair #explore #reels #reeloftheday #brittlebones #inclusionmatters #thebaxterboys #holyfknairball

Hypermobility! 3 weeks she has been in cast and she’s already found that she can escape! 😳🫣 #Spica #casting #fracture #osteogenesisimperfecta #hypermobility #brittlebones #brittlebonedisease #specialneedsparenting #inspirational #foryoupageシ #foryou #foryoupage #foryoupageviralシ゚ #viralreelsfb #loveislove #mydaughter #momlife

My Bones Are As Brittle As Glass "I have rods in my legs, so that's the only reason I can walk. I can walk probably 50 steps before I need to sit down." Hadley's already broken 142 bones and she's only 11. She tells us what it's like to be a pre-teen with osteogenesis imperfecta and shares her message for other kids in wheelchairs. @hadleysoi_adventure #SeenHealth #IAmSeen #OsteogenesisImperfecta #Young #BrittleBones

Heute gibt uns Alessandra aus dem #Guidzter Team einen Einblick in ihr Leben mit Glasknochen (Osteogenesis Imperfecta) und Kleinwüchsigkeit. 🦼 Seit ihrer Geburt ist sie auf den Rollstuhl angewiesen und kann einen Transfer von Rollstuhl zu Rollstuhl nicht alleine durchführen, sondern ist auf Unterstützung angewiesen. Sie zeigt uns heute, wie dieser Transfer bei ihr aussieht und welche besondere Vorsicht dabei nötig ist. Seid gespannt auf diesen einzigartigen Einblick! 💪✨ #Inklusion #Barrierefreiheit #Glasknochen #OsteogenesisImperfecta #Kleinwuchs #Guidzter #RollstuhlLeben #Motivation #GemeinsamStark #TransferHilfe Today, Alessandra from the #Guidzter team gives us a glimpse into her life with brittle bone disease (Osteogenesis Imperfecta) and short stature. 🦼 She has been using a wheelchair since birth and cannot perform a transfer from one wheelchair to another on her own, relying on assistance. Today, she’s showing us how this transfer works for her and the extra care it requires. Stay tuned for this unique insight! 💪✨ #Inclusion #Accessibility #BrittleBones #OsteogenesisImperfecta #ShortStature #Guidzter #WheelchairLife #Motivation #StrongerTogether #TransferSupport

✍🏻We have many patients diagnosed with Osteogenesis Imperfecta, also known as Brittle Bone Disease, and we still continue meeting new beloved patients. 💖 Our goal for these children is to prevent fractures, correct deformities, help them stand and walk safely, and enable them to actively use their arms and hands. We are proud of ourselves in achieving these goals through specialized surgical techniques involving application of telescopic nails and other unique implant solutions, alongside our patients, their families, physiotherapists, and endocrinology specialists. 😊 #drbonecraft #pediatricorthopedics #cerebralpalsy #osteogénesisimperfecta #pediatricorthopedic #osteogenesis #osteogenesisimperfecta #brittlebones #osteotomies #brittlebonedisease #telescopicnail #telescopicnailing #flatfoot #flatfootwear #flatfootsurgery #deformities

After weeks in a cast, getting it cut off is one of the best feelings. Unless, of course, you have to get another cast put on... like Hadley right now. 🙃 The sensation of a saw cutting through a cast is definitely odd. When Hadley was little, she would cry and get really upset. The noise and the strange feeling made it hard to keep her calm. Now, she tries not to laugh. She says the vibrations kind of tickle! So, trying not to laugh when your cast is being cut off has become a thing for Hadley. 🤣 Have you ever had a cast removed? Next time, try not to laugh! 😆 #castlife #brittlebones #strongkid #brokenarm . . . . . #trynottolaugh #ticklishvibes #hadleystrong #osteogenesisimperfecta #broken #funnyreels #funny #laughter #laughoutloud #laugh #slc #unbreakable #utah #lol #thebaxterboys #specialneeds

And now I’ve caught you up to today. Here I am with 3 legs and doing pretty good. Follow my journey #poodle #brittlebones #tripod #3legs #3leggeddog

A little insight into my life. Without this CPAP machine I can't sleep as I have breathing stops when I fall asleep resulting in migrane, high blood pressure, concentration issues and many more symptoms. Since I got this machine about 5 years ago my life quality has improved rapidly. Brittle bones are enough to deal with 😅 Ein kleiner Einblick in mein Leben. Ohne dieses CPAP-Gerät kann ich nicht schlafen, da ich beim Einschlafen Atemaussetzer habe, was zu Migräne, Bluthochdruck, Konzentrationsproblemen und vielen weiteren Symptomen führt. Seit ich diese Maschine vor etwa 5 Jahren bekam, hat sich meine Lebensqualität rapide verbessert. Glasknochen sind genug 😅 #sleepapnea #schlafapnoe #sleep #schlaf #health #gesundheit #brittlebones #glasknochen #osteogenesis imperfecta

Should I do it? #brittlebones #newmusic

Yall this girl brighten any day I pray you all have a great day and as Justice said “give me my money “ lol Justice has Osteogenesis Imperfecta meaning her bones are very brittle. She is 4 years old and She has Type 3 Osteogenesis Imperfecta. When she was born she had fractures all over her body including all her rib, as well as she needed help breathing and she has a hole in her heart. My babygirl is now 4 years old. She has only had 7 fractures, her heart is repairing itself (something the doctors said might night happen), shes breathing very well on her own. If anyone has questions or mommies needing advice on how I handle her please feel free to ask. And definitely follow her growing journey on her IG page @missjusticeoi ❤️❤️❤️ . #babyfever #4 #osteogenesisimperfecta #osteogenesisimperfectatype3 #blessed #lashes #cuteness #brittlebones #viral #brittlebonedisease #babies #oi #beautiful #florida #maryland #dc #melaninbabies #melanin #jamaica #be #cutenessoverload #cuteness #viralreels #justice #instagram ✨ #explore #justdoit #loveislove #super

From • @beautiful_holistic_ Share with anyone who needs to see what calcium supplements are doing to them. Follow @beautiful_holistic_ 🌿 Copper helps form collagen, a key part of bones and connective tissue. Silica-the bioactive form of silicon-is associated with bone strengthening by enhancing calcium absorption, and strengthening collagen protein by creating and maintaining collagen. This leads to greater flexibility in the bones, helps form new bone, and strengthens mature bone. The minerals needed to make bones and keep them strong also play an integral role in collagen production which is the glue that literally holds us together. With the lack of minerals in our food, and our bodies ability to produce collagen (decreasing by 1.5% per year.) By the time we are 50years old we have lost nearly 50% of our collagen. It’s no wonder we are falling apart. 👀 I take a Hydrolized liquid collagen and fulvic acid (77 trace minerals like silica and copper) for my bodies needs (cuz I know I’m not eating enough greens) including bone strength. The most abundant type of collagen present in the human body is Type I (over 90%) with significant amounts of Type II,III and IV also accounted for. Collagen I is found in bones, tendons, organs. The collagen I take is 10 types! Including this one 👇 A study conducted by researchers at the Duke Cancer Institute found that cancer cells can remain dormant by secreting a specific type of collagen, known as type XVIII collagen (Barkan et al., 2018). This type of collagen forms a protective barrier around the cancer cells, preventing them from interacting with their environment and turning malignant. The study also revealed that when collagen levels fall, cancer cells are more likely to become active and malignant. This finding suggests that maintaining sufficient levels of type XVIII collagen in the cancer cells’ environment could be crucial in keeping them dormant. Both linked under my profile pic. #bonestrength #osteoporosis #brittlebones