instagram story viewer > #ectrims

#ectrims

Posts
That’s a wrap on MS Trust Conference 2026! Three inspiring days of learning, connection and shared commitment to improving MS care. Until next year. 💙 #MSTrustConference #Conference #MSTrustConference2026
That’s a wrap on MS Trust Conference 2026! Three inspiring days of learning, connection and shared commitment to improving MS care. Until next year. 💙 #MSTrustConference #Conference #MSTrustConference2026
What if the biggest breakthrough in MS treatment… isn’t a drug… it’s intelligence? Not human. Artificial. Dr. Peter Calabresi is talking about it… and this isn’t future talk. This is happening RIGHT NOW. AI is already changing what it looks like to sit in a doctor’s office. No more doctors buried in a screen while you’re trying to explain what’s going on. Visits can now be recorded, summarized, and turned into accurate notes in real time… so your doctor can actually focus on YOU. But that’s just the front end. Behind the scenes, AI is doing something even bigger… Instead of researching one question at a time over years, we can now analyze massive datasets—DNA, RNA, proteins—all at once. We’re not asking one question anymore… We’re asking 10,000 at a time. And in that chaos of data… patterns are emerging that humans alone would never catch. That’s where real breakthroughs in MS research and treatment are starting to happen. This isn’t hype. This is acceleration. The kind that compresses years into moments… and gives people fighting MS something real: momentum. If this hits home for you or someone you love… this matters. Drop a 💙 if this gives you hope or share this with someone who needs to see where things are headed 👇
What if the biggest breakthrough in MS treatment… isn’t a drug… it’s intelligence? Not human. Artificial. Dr. Peter Calabresi is talking about it… and this isn’t future talk. This is happening RIGHT NOW. AI is already changing what it looks like to sit in a doctor’s office. No more doctors buried in a screen while you’re trying to explain what’s going on. Visits can now be recorded, summarized, and turned into accurate notes in real time… so your doctor can actually focus on YOU. But that’s just the front end. Behind the scenes, AI is doing something even bigger… Instead of researching one question at a time over years, we can now analyze massive datasets—DNA, RNA, proteins—all at once. We’re not asking one question anymore… We’re asking 10,000 at a time. And in that chaos of data… patterns are emerging that humans alone would never catch. That’s where real breakthroughs in MS research and treatment are starting to happen. This isn’t hype. This is acceleration. The kind that compresses years into moments… and gives people fighting MS something real: momentum. If this hits home for you or someone you love… this matters. Drop a 💙 if this gives you hope or share this with someone who needs to see where things are headed 👇
What tests did you have during your diagnosis journey? Let us know in the comments. Professor Alasdair Coles walks us through some of the tests you might of had.
What tests did you have during your diagnosis journey? Let us know in the comments. Professor Alasdair Coles walks us through some of the tests you might of had.
Just dropped my latest MS disease activity update — and this one hits different. After 9 years of diet, exercise, and mindset work — the last 8 months tracked closely with the Octave test. On a 10 point scale, I’ve brought my MS risk score down from ~9+ high risk originally, to 6.5 moderate/high risk eight months ago, to 4.5 moderate/low risk this month. No disease-modifying therapy. Just the protocol. When I started this journey I was in a wheelchair. I’m very much not in one now. But here’s where it gets real. My MRI showed no new disease activity. Mobility improving. Pain coming down. By every measure I could feel, things are trending right. And if that was all the information I had, I might have exhaled a little too hard. Fortunately, the Octave test wouldn’t let me do that. A couple of biomarkers caught my attention — tied to smoldering MS, the slow quiet damage that often runs underneath the surface in progressive MS. I’m in the 95th to 99th percentile on some of them, and they’ve been increasing. That’s not a number you ignore. I borrowed a line from Dean Wormer in Animal House for the video: “Fat, drunk, and stupid is no way to go through life, son.” Because that’s how I feel about blind spots. I’d rather see the smoke coming out of the attic even when the fire seems to be out. There are no DMTs currently on the market targeting these markers — though BTK inhibitors and others may get there someday. In the meantime, I’m bringing this to my neurologist, staying locked in on the routine that got me here, and keeping my eyes open. The Octave test doesn’t just give you answers. It gives you the right questions. In MS, a blind spot can cost you years. Still optimistic. Still moving forward. Both eyes open. 🔗See my Facebook page for the prior notes and videos. #MultipleSclerosisAwareness #MSTraveler #OctaveTest #SmolderingMS #PPMS
Just dropped my latest MS disease activity update — and this one hits different. After 9 years of diet, exercise, and mindset work — the last 8 months tracked closely with the Octave test. On a 10 point scale, I’ve brought my MS risk score down from ~9+ high risk originally, to 6.5 moderate/high risk eight months ago, to 4.5 moderate/low risk this month. No disease-modifying therapy. Just the protocol. When I started this journey I was in a wheelchair. I’m very much not in one now. But here’s where it gets real. My MRI showed no new disease activity. Mobility improving. Pain coming down. By every measure I could feel, things are trending right. And if that was all the information I had, I might have exhaled a little too hard. Fortunately, the Octave test wouldn’t let me do that. A couple of biomarkers caught my attention — tied to smoldering MS, the slow quiet damage that often runs underneath the surface in progressive MS. I’m in the 95th to 99th percentile on some of them, and they’ve been increasing. That’s not a number you ignore. I borrowed a line from Dean Wormer in Animal House for the video: “Fat, drunk, and stupid is no way to go through life, son.” Because that’s how I feel about blind spots. I’d rather see the smoke coming out of the attic even when the fire seems to be out. There are no DMTs currently on the market targeting these markers — though BTK inhibitors and others may get there someday. In the meantime, I’m bringing this to my neurologist, staying locked in on the routine that got me here, and keeping my eyes open. The Octave test doesn’t just give you answers. It gives you the right questions. In MS, a blind spot can cost you years. Still optimistic. Still moving forward. Both eyes open. 🔗See my Facebook page for the prior notes and videos. #MultipleSclerosisAwareness #MSTraveler #OctaveTest #SmolderingMS #PPMS
MS Australia’s 2026 Major Grants Round is funding a diverse range of MS research across Australia, advancing our mission to prevent, find better treatments, and ultimately cure MS. Researchers Dr Hamish King, Associate Professor Anna Hatton and Professor Kaylene Young discuss their research projects focused on addressing long standing gaps in MS genetics, supporting mobility and independence and identifying drug targets that protect myelin respectively. 🔗 Learn more about the latest MS Australia funded research projects through the link in our bio.
MS Australia’s 2026 Major Grants Round is funding a diverse range of MS research across Australia, advancing our mission to prevent, find better treatments, and ultimately cure MS. Researchers Dr Hamish King, Associate Professor Anna Hatton and Professor Kaylene Young discuss their research projects focused on addressing long standing gaps in MS genetics, supporting mobility and independence and identifying drug targets that protect myelin respectively. 🔗 Learn more about the latest MS Australia funded research projects through the link in our bio.
As the healthcare industry begins to shift to the new MS disease course terms, it’s important to understand how they relate to you and your MS. Dr. Pardo, a neurologist and MS specialist, helps you understand these new terms and how they correlate to your MS.
As the healthcare industry begins to shift to the new MS disease course terms, it’s important to understand how they relate to you and your MS. Dr. Pardo, a neurologist and MS specialist, helps you understand these new terms and how they correlate to your MS.
We often hear about MS, but how deep do we really dive into its mechanisms? Here's a perspective that challenges the conventional narrative. MS isn't just a tale of immune system gone rogue; it's a story of inflammation wreaking havoc on the myelin sheaths. Think of it as your body's own electrical wiring being disrupted by misguided repair jobs. The scars formed by your body in a desperate attempt to heal can either be the hero or the villain, influencing the symptoms of MS sufferers in profound ways. Yet, what's often overlooked is the brain's incredible ability to adapt. Neuroplasticity is the unsung hero, crafting new pathways when the old ones falter. Is it time we shifted our focus from the symptoms to the underlying inflammation? Perhaps, by understanding the root causes, we can pave a more effective path forward.
We often hear about MS, but how deep do we really dive into its mechanisms? Here's a perspective that challenges the conventional narrative. MS isn't just a tale of immune system gone rogue; it's a story of inflammation wreaking havoc on the myelin sheaths. Think of it as your body's own electrical wiring being disrupted by misguided repair jobs. The scars formed by your body in a desperate attempt to heal can either be the hero or the villain, influencing the symptoms of MS sufferers in profound ways. Yet, what's often overlooked is the brain's incredible ability to adapt. Neuroplasticity is the unsung hero, crafting new pathways when the old ones falter. Is it time we shifted our focus from the symptoms to the underlying inflammation? Perhaps, by understanding the root causes, we can pave a more effective path forward.
What is the MS Society Tissue Bank? 🥼 Our MS Society Tissue Bank provides samples to researchers from all over the world. It has even contributed to the discovery of the first drug for people with primary progressive MS. 🔬 We caught up with Rory Türkmen Smith, Engagement Manager at the MS Society Tissue Bank. He showed us the vital work they do to help researchers understand more about MS. 🧠 Tap the link in our bio to learn more about the MS Society Tissue Bank. #MSSociety #MultipleSclerosis #MSResearch #MSSTissueBank
What is the MS Society Tissue Bank? 🥼 Our MS Society Tissue Bank provides samples to researchers from all over the world. It has even contributed to the discovery of the first drug for people with primary progressive MS. 🔬 We caught up with Rory Türkmen Smith, Engagement Manager at the MS Society Tissue Bank. He showed us the vital work they do to help researchers understand more about MS. 🧠 Tap the link in our bio to learn more about the MS Society Tissue Bank. #MSSociety #MultipleSclerosis #MSResearch #MSSTissueBank
Have you ever heard the phrase 'dissemination in time and space' when discussing your MS and wondered what this actually means? 💭 Professor Alasdair Coles walks us through the meaning of this phrase and how it's used to help diagnose MS. #Dissemination #MS #Diagnosis
Have you ever heard the phrase 'dissemination in time and space' when discussing your MS and wondered what this actually means? 💭 Professor Alasdair Coles walks us through the meaning of this phrase and how it's used to help diagnose MS. #Dissemination #MS #Diagnosis
The MS disease course terms are changing, and there’s a good reason why. Neurologist and MS specialist, Dr. Pardo, explains how these new terms were created with patients in mind, and how they will help doctors treat their MS more effectively going forward.
The MS disease course terms are changing, and there’s a good reason why. Neurologist and MS specialist, Dr. Pardo, explains how these new terms were created with patients in mind, and how they will help doctors treat their MS more effectively going forward.
back to up