#mgstrong
Living with myasthenia gravis often means learning what truly comforts you when energy, strength, and certainty are low. Sarah is back and sharing the simple but powerful ways she cares for her body, mind, and spirit during difficult days. Link in bio to read her MG survival guide!
#MyastheniaGravis #MGWarrior #MGStrong #ChronicIllness #RareDisease #InvisibleIllness #PatientVoice #MGCommunity #MyastheniaGravisNews #Bionews
Happy #NationalCaregiversDay to all the MG supporters! You are deeply appreciated by the MG community. To celebrate you, check out these shout-outs (link in bio) from the people you impact most.
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#Sponsored
Life is funny… you never expect the moments that end up changing everything.
If you’re navigating MG, love someone who is, or just want to understand this rare condition better, head to my blog to read my complete story💕
👉🏾 AshleysAnatomy.com
👉🏾 Link in bio
#MyastheniaGravis #MGAwareness #ChronicIllnessJourney #AutoimmuneDisease #InvisibleIllnessAwareness #ChronicIllnessCommunity #MGStrong #DisabilityAdvocate #SpoonieLife #HealthAdvocate #RareDiseaseAwareness #AshleysAnatomy #nowincluded
MG Community Let’s Connect!
Living with Myasthenia Gravis can feel isolating… but you don’t have to navigate it alone.
If you’re in Alabama (or anywhere online ), this is your invitation to plug into a space where your voice is heard, your questions matter, and your journey is understood.
Monday, February 9
🕕 6:00 PM CST
💬 Facilitated by Ebony Bell, who’s ready to welcome you with open arms, real conversation, and meaningful support.
Whether you’re newly diagnosed, years into your journey, or supporting a loved one — this is your space to connect, learn, and build strength together.
🔗 Reserve your spot now: www.MG-Alabama.org
Community changes everything. We can’t wait to see you there.
#MGAlabama #MyastheniaGravis #MGStrong #AutoimmuneSupport #mgholisticsociety @blackwithmg
Your voice truly matters to us. Take a moment to scan the QR code, share your honest thoughts, and help shape the content you love to watch
#TV3GH #MGStrong
Strategie nutrizionali consigliate
1. Adattamento delle consistenze
- Preferire cibi morbidi, cremosi o frullati (es. vellutate, purè, yogurt greco, pesce al vapore).
- Evitare cibi secchi, duri o friabili (es. cracker, pane tostato, carne fibrosa).
- Usare addensanti naturali (es. patate, legumi, avena) per rendere sicuri i liquidi.
2. Pasti piccoli e frequenti
- 5–6 pasti al giorno per ridurre lo sforzo muscolare e migliorare l’assorbimento.
- Integrare con snack nutrienti: frullati proteici, crema di mandorle, hummus con pane morbido.
3. Supporto proteico e calorico
- Aumentare l’apporto di proteine ad alta digeribilità: uova, pesce, tofu, legumi decorticati.
- Usare grassi buoni per aumentare le calorie: olio extravergine, avocado, semi oleosi.
4. Gestione della disfagia
- Mangiare in posizione eretta, lentamente, con pause.
- Evitare di parlare durante il pasto.
- Valutare con logopedista se necessario.
5. Monitoraggio e supplementazione
- Valutare carenze di vitamina D, B12, ferro, magnesio.
- Considerare integratori solo se indicati da medico o nutrizionista.
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🧘♀️ Approccio terapeutico integrato
- Equipe multidisciplinare: neurologo, nutrizionista, logopedista, fisioterapista.
- Educazione alimentare: coinvolgere il paziente nella scelta e preparazione dei pasti.
- Supporto emotivo: la relazione con il cibo può essere fragile, va accompagnata con empatia.
#MiasteniaGravis
#MyastheniaGravis
#MGawareness
#RareDisease
#AutoimmuneDisease
#NeuromuscularDisorder #MGStrong
#MGWarrior
#MGCommunity
#FightMG
#LivingWithMG
#Miastenia
#MiasteniaGravisItalia
#MalattieRare
#ConsapevolezzaMG
#VivereConLaMiastenia
#LeParolePerRaccontarsi #EspressioniRare #StorieDiMiastenia
Excited to kick off our program today at the MGFA National Patient Conference here in Phoenix. This is our biggest annual gathering of the MG Community, a great opportunity to learn and connect.
If you're here, please tag us in your posts!
#myastheniagravis #MGStrong
Your voice truly matters to us. Take a moment to scan the QR code, share your honest thoughts, and help shape the content you love to watch
#TV3GH #MGStrong
Flower 🌸 girl baako p3 🎊😘🤩
#OnuaFM #WeAreMG #MGStrong
Your voice truly matters to us. Take a moment to scan the QR code, share your honest thoughts, and help shape the content you love to watch
#TV3GH #MGStrong
Vanetta attended our Women’s Empowerment Retreat and this was her feedback on the last evening‼️💪🏽🙌🏾✊🏾
Just a side note: the welcome drink was a mixed berry smoothie topped with pistachios and cacao. We truly love hosting these events. Don’t miss your opportunity next year!
#mymglife #blackwithmg #mgholisticsociety #womensempowermentretreat #autoimmuneretreat #mgretreat #lifecoaching #healthylifestyle #mindsetshift #heretoserve #mgstrong #autoimmune #makedifferentchoices @argenxglobal
Painting hack, grab some gym equipment handles from Amazon and attach them to chains. They make great grips while you work. Trust me, you’ll thank me later!
P.S. Painting with an IV line is no fun but using my light weight @walcomspraygun sure helped
🫠😅😘
#mgstrong#mg#myastheniagravis#techtips#PaintPros#painteveryday #walcom
