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Summer is my favorite season, and I feel fortunate that heat doesn’t seem to bother me. But I know so many of you with MS struggle with heat sensitivity, especially during the summer months. So I thought we could help each other and share what actually works. 🧡 Here are a few things I’ve heard from people in our community, and some I’ve tried myself: • Cold showers in the morning to help cool down the body • Cooling vests, towels, or neck wraps • Staying hydrated and adding electrolytes • Pre-cooling your body before going outside with a cold shower or cold drink • Using ice packs on your neck, wrists, or behind your knees • Exercising or walking early in the morning or later in the evening • Taking breaks in air conditioning when your body needs it • Swimming or spending time in cooler water • Carrying a small portable or neck fan • Paying attention to humidity, not just temperature • Listening to your body and noticing your own heat threshold instead of pushing through If heat affects your MS, what’s ONE thing you’ve figured out that makes summer easier for you? Even if it sounds unusual, share it below. Someone else might want to try it too. 🧡 #ms #multiplesclerosis #mslife #msawareness #livingwithms
Summer is my favorite season, and I feel fortunate that heat doesn’t seem to bother me. But I know so many of you with MS struggle with heat sensitivity, especially during the summer months. So I thought we could help each other and share what actually works. 🧡 Here are a few things I’ve heard from people in our community, and some I’ve tried myself: • Cold showers in the morning to help cool down the body • Cooling vests, towels, or neck wraps • Staying hydrated and adding electrolytes • Pre-cooling your body before going outside with a cold shower or cold drink • Using ice packs on your neck, wrists, or behind your knees • Exercising or walking early in the morning or later in the evening • Taking breaks in air conditioning when your body needs it • Swimming or spending time in cooler water • Carrying a small portable or neck fan • Paying attention to humidity, not just temperature • Listening to your body and noticing your own heat threshold instead of pushing through If heat affects your MS, what’s ONE thing you’ve figured out that makes summer easier for you? Even if it sounds unusual, share it below. Someone else might want to try it too. 🧡 #ms #multiplesclerosis #mslife #msawareness #livingwithms
Getting diagnosed with MS is a tricky beast, and at the end of the day I’m grateful for my sort of dramatic eye symptoms that got my diagnosis and tre - 📸 Source: @ amylynnreeves on TikTok All credit are reserved for their respective Owners - 💥Contact for credit/removal=> @ fixposts - - - - #neuroplasticity#fuckms#mssociety#multiplesclerosisawareness#msstrong#thisisms#msfamily#mslife#multiplesclerosisfighter#mswarriors#livingwithms#beatms#mscommunity#mssymptoms#multiplesclerosisproblems#pelvictilt#multiplesclerosissociety#mstrust#msuk#mssocietyuk#curemultiplesclerosis#multiplesclerosisfoundation#msjourney#fuckmultiplesclerosis#multiplesclerosisawarenessmonth
Getting diagnosed with MS is a tricky beast, and at the end of the day I’m grateful for my sort of dramatic eye symptoms that got my diagnosis and tre - 📸 Source: @ amylynnreeves on TikTok All credit are reserved for their respective Owners - 💥Contact for credit/removal=> @ fixposts - - - - #neuroplasticity#fuckms#mssociety#multiplesclerosisawareness#msstrong#thisisms#msfamily#mslife#multiplesclerosisfighter#mswarriors#livingwithms#beatms#mscommunity#mssymptoms#multiplesclerosisproblems#pelvictilt#multiplesclerosissociety#mstrust#msuk#mssocietyuk#curemultiplesclerosis#multiplesclerosisfoundation#msjourney#fuckmultiplesclerosis#multiplesclerosisawarenessmonth
This is the main reason people are getting worse and worse over time and are not healing Watch this and ask yourself how can you implement it right aw - 📸 Source: @ alfabytalia on TikTok All credit are reserved for their respective Owners - 📌For post issues👉 Message @ fixposts - - - - #neuroplasticity#fuckms#mssociety#multiplesclerosisawareness#msstrong#thisisms#msfamily#mslife#multiplesclerosisfighter#mswarriors#livingwithms#beatms#mssymptoms#multiplesclerosisproblems#pelvictilt#multiplesclerosissociety#mstrust#msuk#mssocietyuk#curemultiplesclerosis#multiplesclerosisfoundation#msjourney#fuckmultiplesclerosis#multiplesclerosisawarenessmonth#msfriends
This is the main reason people are getting worse and worse over time and are not healing Watch this and ask yourself how can you implement it right aw - 📸 Source: @ alfabytalia on TikTok All credit are reserved for their respective Owners - 📌For post issues👉 Message @ fixposts - - - - #neuroplasticity#fuckms#mssociety#multiplesclerosisawareness#msstrong#thisisms#msfamily#mslife#multiplesclerosisfighter#mswarriors#livingwithms#beatms#mssymptoms#multiplesclerosisproblems#pelvictilt#multiplesclerosissociety#mstrust#msuk#mssocietyuk#curemultiplesclerosis#multiplesclerosisfoundation#msjourney#fuckmultiplesclerosis#multiplesclerosisawarenessmonth#msfriends
When you have MS, there can be SO many things to focus on when it comes to walking Focusing on - lifting your leg 🦵 - balance 🦶🏻 - not falling over ca - 📸 Source: @ drgretchenpt on TikTok All credit are reserved for their respective Owners - 💥Contact for credit/removal=> @ fixposts - - - - #fuckms#mssociety#multiplesclerosisawareness#msstrong#thisisms#msfamily#mslife#multiplesclerosisfighter#mswarriors#livingwithms#beatms#mswarrior💪#multiplesclerosismama#multiplesclerosisfighther#multiplesclerosisresearch
When you have MS, there can be SO many things to focus on when it comes to walking Focusing on - lifting your leg 🦵 - balance 🦶🏻 - not falling over ca - 📸 Source: @ drgretchenpt on TikTok All credit are reserved for their respective Owners - 💥Contact for credit/removal=> @ fixposts - - - - #fuckms#mssociety#multiplesclerosisawareness#msstrong#thisisms#msfamily#mslife#multiplesclerosisfighter#mswarriors#livingwithms#beatms#mswarrior💪#multiplesclerosismama#multiplesclerosisfighther#multiplesclerosisresearch
Say something❤️ - 📸 Source: @ gabrielleistired on TikTok All credit are reserved for their respective Owners - 📌For post issues👉 Message @ fixposts - - - - #curems#neuroplasticity#fuckms#mssociety#multiplesclerosisawareness#msstrong#thisisms#msfamily#mslife#multiplesclerosisfighter#mswarriors#livingwithms#beatms#lifewithanxiety#mscommunity#mssymptoms#multiplesclerosisproblems#pelvictilt#multiplesclerosissociety#mstrust#msuk#mssocietyuk#curemultiplesclerosis#multiplesclerosisfoundation#msjourney#fuckmultiplesclerosis
Say something❤️ - 📸 Source: @ gabrielleistired on TikTok All credit are reserved for their respective Owners - 📌For post issues👉 Message @ fixposts - - - - #curems#neuroplasticity#fuckms#mssociety#multiplesclerosisawareness#msstrong#thisisms#msfamily#mslife#multiplesclerosisfighter#mswarriors#livingwithms#beatms#lifewithanxiety#mscommunity#mssymptoms#multiplesclerosisproblems#pelvictilt#multiplesclerosissociety#mstrust#msuk#mssocietyuk#curemultiplesclerosis#multiplesclerosisfoundation#msjourney#fuckmultiplesclerosis
The forecast is ☀️🔥… and for many people living with MS, that can mean more than just feeling a bit warm. If you’re struggling this week, you’re not alone. Stay cool, stay hydrated, and remember to look after yourself 💛 #MSAwareness #MSSupport #MSCommunity #MSLife #LifeWithMS
The forecast is ☀️🔥… and for many people living with MS, that can mean more than just feeling a bit warm. If you’re struggling this week, you’re not alone. Stay cool, stay hydrated, and remember to look after yourself 💛 #MSAwareness #MSSupport #MSCommunity #MSLife #LifeWithMS
We’re girls with MS: of course we cancel plans because our nervous system decided to hit 'update and restart' without asking. Feel like you can relate? Share this post to raise awareness. Want to connect with other MSers like you? Download our app for free via the link in our bio 👆 #multiplesclerosis #ms #mswarrior #msawareness #chronicillness #multiplesclerosisawareness #thisisms #msfighter #invisibleillness #autoimmunedisease #msstrong #multiplesclerosisfighter #multiplesclerosiswarrior #chronicpain #mssupport #livingwithms #mscommunity #mslife #spoonie #mswarriors #msfamily #multiplesclerosisproblems
We’re girls with MS: of course we cancel plans because our nervous system decided to hit 'update and restart' without asking. Feel like you can relate? Share this post to raise awareness. Want to connect with other MSers like you? Download our app for free via the link in our bio 👆 #multiplesclerosis #ms #mswarrior #msawareness #chronicillness #multiplesclerosisawareness #thisisms #msfighter #invisibleillness #autoimmunedisease #msstrong #multiplesclerosisfighter #multiplesclerosiswarrior #chronicpain #mssupport #livingwithms #mscommunity #mslife #spoonie #mswarriors #msfamily #multiplesclerosisproblems
⚽ Want to exercise like a #lioness? We’ve got one of the #Lionesses on our team too! We’ve teamed up with Mary Phillip, our Ambassador and former international England footballer, who lives with MS. Together we’ve designed some football-themed exercise for different levels of mobility. And you don’t need to have any footballing experience to get involved. ⚽ “As a football coach, and a former player, I know a lot about the benefits of exercise. These workouts will help you keep active, and you’ll have a lot of fun doing them!” Tap the link in our bio to see our brand new upper and lower body exercise videos 📽️ #MSSocietyUK #MS #MultipleSclerosis #MSAwareness #MSSupport #MSExercise #LifeWithMS #MSLife #Lionesses
⚽ Want to exercise like a #lioness? We’ve got one of the #Lionesses on our team too! We’ve teamed up with Mary Phillip, our Ambassador and former international England footballer, who lives with MS. Together we’ve designed some football-themed exercise for different levels of mobility. And you don’t need to have any footballing experience to get involved. ⚽ “As a football coach, and a former player, I know a lot about the benefits of exercise. These workouts will help you keep active, and you’ll have a lot of fun doing them!” Tap the link in our bio to see our brand new upper and lower body exercise videos 📽️ #MSSocietyUK #MS #MultipleSclerosis #MSAwareness #MSSupport #MSExercise #LifeWithMS #MSLife #Lionesses
Mehr muss ich heute gar nicht sagen. 🤍 #wildhealingjourney #realtalk #lifeunfiltered #mslife #mscommunity
Mehr muss ich heute gar nicht sagen. 🤍 #wildhealingjourney #realtalk #lifeunfiltered #mslife #mscommunity
Jay Marie reminds us that it's important to celebrate the little things and to take each day as it comes. #repost @whatabeautifulmsthisis Feeling ever so tired 😣❤️ I know it'll pass but I feel like no amount of sleep is ever enough right now. 🙏❤️✌️
Jay Marie reminds us that it's important to celebrate the little things and to take each day as it comes. #repost @whatabeautifulmsthisis Feeling ever so tired 😣❤️ I know it'll pass but I feel like no amount of sleep is ever enough right now. 🙏❤️✌️
I wish I knew all this before. Two decades with MS and dozens of cities later, here’s what I know about traveling further without burning out. → ADA airport assistance at check-in. Free. Legal. Arrive with energy left. → One anchor activity per day. Hardest thing first. → Rest before the crash, not after. → Buffer day before and after every flight. → Call the hotel directly. Ask about stairs, elevator, AC, room proximity. → Google Maps Street View before booking. Check terrain, hills, curb cuts. → Save the nearest pharmacy offline before you arrive. → Stay central and walkable. Costs more per night, saves everything else. → Stay in homes when possible. Full kitchen, quiet neighborhood, actual rhythm. → Pack light. Less weight is more energy. Comment PLAN for the free Energy Pacing Guide. Status quo → go 🧡 #travelwithMS #MSlife #slowtravel #accessibletravel #chronicallyill thestatusgo multiplesclerosis MStravel invisibleillness spoonie [Alt: Monica Lynne standing in an airport terminal, United Airlines plane visible through the window, orange text overlay reads "The more I planned around my MS, the further I went.”]
I wish I knew all this before. Two decades with MS and dozens of cities later, here’s what I know about traveling further without burning out. → ADA airport assistance at check-in. Free. Legal. Arrive with energy left. → One anchor activity per day. Hardest thing first. → Rest before the crash, not after. → Buffer day before and after every flight. → Call the hotel directly. Ask about stairs, elevator, AC, room proximity. → Google Maps Street View before booking. Check terrain, hills, curb cuts. → Save the nearest pharmacy offline before you arrive. → Stay central and walkable. Costs more per night, saves everything else. → Stay in homes when possible. Full kitchen, quiet neighborhood, actual rhythm. → Pack light. Less weight is more energy. Comment PLAN for the free Energy Pacing Guide. Status quo → go 🧡 #travelwithMS #MSlife #slowtravel #accessibletravel #chronicallyill thestatusgo multiplesclerosis MStravel invisibleillness spoonie [Alt: Monica Lynne standing in an airport terminal, United Airlines plane visible through the window, orange text overlay reads "The more I planned around my MS, the further I went.”]
This is the best and most validating video, don’t you agree? Life with chronic illness is hard so don’t beat yourself up about things like showering, cooking and cleaning. You aren’t alone. I see you, this community gets it. If you can relate let me know in the comments. . . . #tedtalk #trendingreelsvideo #multiplesclerosis #livingwithchronicillness #msawareness #chronicillness #multiplesclerosisawareness #msfighter #invisibleillness #autoimmunedisease #thisisms #multiplesclerosisfighter #multiplesclerosiswarrior #msstrong #chronicpain #endometriosis #mssociety #spoonie #mslife #mswarriors #mssupport #curems #fibromyalgia #mscommunity #livingwithms #disability #multiplesclerosissociety #spoonielife #autoimmunediseases #msfamily
This is the best and most validating video, don’t you agree? Life with chronic illness is hard so don’t beat yourself up about things like showering, cooking and cleaning. You aren’t alone. I see you, this community gets it. If you can relate let me know in the comments. . . . #tedtalk #trendingreelsvideo #multiplesclerosis #livingwithchronicillness #msawareness #chronicillness #multiplesclerosisawareness #msfighter #invisibleillness #autoimmunedisease #thisisms #multiplesclerosisfighter #multiplesclerosiswarrior #msstrong #chronicpain #endometriosis #mssociety #spoonie #mslife #mswarriors #mssupport #curems #fibromyalgia #mscommunity #livingwithms #disability #multiplesclerosissociety #spoonielife #autoimmunediseases #msfamily
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