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Juggling Lupus & EDS but still running for a cause. Sharing the power of mindful movement & nutrition, yoga & snuggles from furballs. Cheering for you
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 by @acharmedlifewithjamie
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2 hours ago
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Strength doesn't come from what you can do. It comes from overcoming the things you once thought you couldn't.
–Rikki Rogers

#fightingformylife #lupus #chronicpain # transformation #chronicillness by @acharmedlifewithjamie
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2 hours ago
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After an epic journey running the Chicago Marathon, I've got my sights set on recovery! This first week is all about taming inflammation and stabilizing my immune system while navigating life with lupus. Let me tell you, running a marathon is no joke for anyone, but doing it with chronic pain and a pacemaker means I have to take extra good care of myself. My second PT session felt surprisingly good, well kinda 😂 —just dealing with some soreness and some pesky sinus issues.

This week’s game plan? Focus on Flare Adaptation, learn the difference between regular soreness and flare-ups (thank you, body!), and stick to my strict "no run" mandate. It’s all about nurturing my body with anti-inflammatory support, hydrating like a champ, and keeping everything balanced internally. But here’s the silver lining: it seems I’ve dodged a rebroken foot! Just some severe bruising instead—woohoo! So I’ll be joining my run club buddies tomorrow for a donut walk; because who says recovery can’t be sweet?

Next up is infusion therapy on Monday—fingers crossed that goes smoothly so I can slowly start ramping up those miles again next week! For everyone recovering from Chicago or any race this past weekend: how are you feeling? What surprised you post-race? Remember to celebrate every badass moment of your journey—even the ones that come after crossing the finish line!

#postmarathon #recoveryistraining #lupusrunner #selfcare taken in Fresno, California by @acharmedlifewithjamie
1
4 hours ago
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This morning's revelation: I may not always be the best at making decisions! 🤔 Just a few days post-marathon, and here I am—sore, bruised foot and all—throwing my hat in for next year! 

 Even though my finish time isn't what I'd hoped for, there's still that flicker of pride for crossing that finish line, especially knowing the course conditions Sunday. I know deep down there’s a better race waiting to come out. Here’s to hoping the universe gives me another shot! Fingers crossed I'm back in Chicago soon to show off that stronger runner version of me! 💖✨

#lupusrunner #letsdothisonemoretime #fingerscrossed #questionable by @acharmedlifewithjamie
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a day ago
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🌟 Life is full of unexpected twists and turns, isn’t it? I've spent more than half my life battling chronic illnesses and facing 50+ surgeries in 46 years. When I was diagnosed with Lupus six years ago, I thought I was destined for a future limited by pain. But guess what? Plot twist! 💪 I completed the BOA Chicago Marathon this past Sunday! 🎉

I’m so grateful for the amazing support from the Lupus Charity Runners and the Lupus Society of Illinois. This journey has gifted me new friendships and incredible memories that remind me to celebrate every victory. Thank you to everyone who believed in me, donated, or simply cheered me on through this journey—I couldn’t have done it without your love! 

Sunday showed me that while Lupus may challenge my body, it can’t touch my spirit. ✨ If you're inspired to join this fight against Lupus with me, you can still donate using the link! Let’s keep spreading awareness together! Your support means the world to us. 💖

#lupusrunner #charityrunner #chicagomarathon #thankfulandgrateful #myjourney taken in Chicago, Illinois by @acharmedlifewithjamie
3
2 days ago
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Back in the game with physical therapy this morning after soaking in all the Chicago magic last week! 🌆✨ The post-marathon recovery is real, folks! My therapist was thrilled to see me make it in so soon after crossing that finish line. Overall, I’m feeling pretty good—though my hips and shoulder are throwing a little extra sass at me after 26.2 miles! 🤪 But surprise, surprise… my foot decided to join the party with some unexpected aches. I had a fantastic race until about 15k when pain and heat slowed me down. Still, I crossed that line and learned from it!

Thankfully, the expert thinks it's just a bad bone bruise—not too shabby under the circumstances! 🎉 So I’ll be treating my foot like royalty for a bit—ice soaks and TLC all around while keeping an eye on things just to be safe as we plan for an x-ray in a couple of weeks.

It truly amazes me how much training has paid off this summer/fall. Finishing that marathon under not-so-perfect conditions and bouncing back enough to move around gives me so much pride! Huge shoutout to my amazing healthcare team for keeping me on my feet (pun intended)! Now it’s time for snuggles with my fur-babies while dunking that sore foot into an icy bath—a little rest never hurt anyone—and oh yeah, tackle that laundry mountain waiting from last week’s adventures! 😂🥰

#recovery #lupusrunner #postrace #resilience #movementismedecine taken in Fresno, California by @acharmedlifewithjamie
1
2 days ago
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Changed my plan from chasing a PR to just enjoying the amazing people of Chicago when the heat and pain turned up! Missed my goal time after all that training, but hey, I finished in red flag conditions. Who knew pain could be so... photographic? These race photos should come with a warning: "Results may vary." It's fitting given how Sunday unfolded—what’s a little suffering among friends, right? At least someone was there to capture my 'best' angle! Here’s to making memories, even if they’re not Instagram-worthy. Cheers to training and bad photo ops!

#lupusrunner #chicagomarathon #notasplanned
#badpics by @acharmedlifewithjamie
0
3 days ago
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Chicago, you gave me a wild ride! 🎢 Finished 26.2 miles and while I didn’t hit my goal time, I'm proud to have crossed that finish line feeling strong (mostly)! The heat tried to play tricks, but I was smart and listened to my body.💪🏼

Sure, the pain in my foot was a party crasher, but I made it through without any of February's drama—no sickness, just pure determination! 🏃‍♂️✨

Time for some shoe TLC and a chat with the doc about keeping my feet happy. Always learning! 🩺👟

Feeling grateful for this journey and the amazing folks at the Lupus Society of Illinois who make every mile worth it! Off to the west coast now—Chicago, you will always hold a piece of my heart! ❤️ Until next time! 👋

#lupusrunner #ChicagoMarathon #medalmonday taken in Chicago, Illinois by @acharmedlifewithjamie
2
3 days ago
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And here I thought my limp was barley noticeable 🤣 my left foot is at best bad bruised and at worse re-broken. Gotta get home to the west coast and meet with my pt and ortho docs and find out if I will be running my last marathon of the year in 8 weeks. 🤞

Chicago Marathon though, totally worth it! ⭐️💪🏃‍♀️ taken in Millennium Park Downtown Chicago by @acharmedlifewithjamie
2
3 days ago
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"But I allowed myself to think such thoughts. Because no one else could hear them. They were my own. Like a wish upon stars held in secret hearts."
–T.J. Klune taken in Chicago, Illinois by @acharmedlifewithjamie
0
4 days ago
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Just the words I needed to hear.  Congratulations to everyone who ran yesterday, you inspire me and I am honored to have shared the miles with you. ⭐️💪🏃‍♀️💜

#coachbennett #ChicagoMarathon #startingline #motivation taken in Chicago, Illinois by @acharmedlifewithjamie
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4 days ago
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4 days ago
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