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Ariel Kapp 🦋🌈

@arielmariah913

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Mom to a CF warrior 💜
Wife to a golfer 🏌🏽‍♂️
Sharing real life & motherhood
Lifestyle | Family | Advocacy
📩 Collabs: [email protected]

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It’s not the easy parts that define us, it’s the consistency. Twice a day, no matter what. Before school, before bed, before everything. Chest PT helps her breathe easier… and reminds us what really matters. 💜✨🌹🍑🧬🧸🧼💊🫧🪁

#CFStrong #cysticfibrosisawareness #RealLifeMotherhood #PipersPeaches #CysticFibrosis #CFWarrior #HopeForPiper #ThrivingNotJustSurviving #Orkambi #CFStrong #CureCF #TomorrowIsBrighter #WeWontStop #RaisingAwareness #TomorrowForPiper #CFF #CureCF #findacure #yougogirl #fundraise #cysticfibrosis #makeadifference #kappstrong #cysticfibrosiswarrior #fighter #piperbear #65roses #cf #invisibledisease #chronicillness #thisiscf taken in San Antonio, Texas by @arielmariah913

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a year ago

We never imagined having a child with cystic fibrosis. But what we did know was how deeply she was already loved. Piper is exactly who she’s meant to be. Our life, our hearts, our days… none of it would look the same without her.

On December 30, 2022, we received her cystic fibrosis diagnosis. Our world shattered. Enzymes and medications started immediately. A month later came nebulizer treatments and chest physiotherapy to fight the bacteria already growing in her lungs. This became our normal.

These clips span Jan - Dec 2023. Meds. CPT. Nebs. Over and over again. Some days CF feels like it takes up all the space. Some days it hurts knowing how much her little body has already had to handle because of a gene she never chose.

And somehow, she’s still the one making us stronger. She slows us down. She reminds us what actually matters. 🌹🍑🧬🧸🧼💊💜🫧🪁

#cfwarrior #cysticfibrosis #cysticfibrosisawareness taken in San Antonio, Texas by @arielmariah913

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10 months ago

It started with our hands. Manual chest physiotherapy on a tiny baby. Then came the gentle shakes of a vest that looked far too big for her little body.

Now, 793 days later, we’ve logged more than 1,500 sessions. That’s hundreds of hours spent hooked to hoses and machines. Mornings and evenings where playtime pauses so she can fight for her lungs. It’s become the backdrop of her childhood, the rhythm that quite literally keeps her moving forward.

This is her childhood, redefined: treatments before play, courage in the face of fatigue, strength in every shake. Protecting her lungs, chasing laughter, still running free. It’s not optional. It’s life. 💜 🌹🍑🧬🧸🧼💊💜🫧🪁

#CysticFibrosis #PipersPeaches #CFWarrior #CureCF #TomorrowIsBrighter #WeWontStop #RaisingAwareness #CysticFibrosisAwareness #TomorrowForPiper #CFF #CureCF #findacure #yougogirl #fundraise #cysticfibrosis #makeadifference #kappstrong #cysticfibrosiswarrior #fighter #piperbear #65roses #piperspeaches #cf #invisibledisease #chronicillness #thisiscf taken in San Antonio, Texas by @arielmariah913

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a year ago

The busiest 3-year-old I know. 😂💅🏼

Twice a day, Piper puts on her airway clearance vest to help loosen the mucus in her lungs. Each session takes about 30 minutes, but sitting still for 30 minutes? Absolutely not. 😂

She’s got places to be, things to do, and dolls to dance for 💜✨🌹🍑🧬🧸🧼💊🫧🪁

#cysticfibrosisawareness #cfwarrior #cysticfibrosis #thisiscf #raredisease taken in San Antonio, Texas by @arielmariah913

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7 hours ago

Her determination is unmatched. 🥲🙂‍↔️

Piper LOVES crafts, especially during her airway clearance treatments. Even when her little hands are shaking right along with her vest, nothing is getting in the way of her craft time!

We’re always looking for fun ways to make treatment time a little more enjoyable, so this adorable craft kit gifted by Clever Fox Play was right up her alley. She’s obsessed! 🎀💜✨🌹🍑🧬🧸🧼💊🫧🪁

#cysticfibrosisawareness #cfwarrior #cysticfibrosis #raredisease #cleverfoxplay taken in San Antonio, Texas by @arielmariah913

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a day ago

We tried on one of Piper’s Halloween costumes and it absolutely warranted a full HUNTR/X performance in our living room. 🥲🎤🪩🌟

The older she gets, the more fun this little girl thing is. I don’t know how we’re ever going to top this.

Halloween can’t come soon enough! @netflix I think we found your next HUNTR/X member. 🥹✨🌹🍑🧬🧸🧼💊🫧🪁

#cfwarrior #cysticfibrosis #KPopDemonHunters #HUNTRX #Halloween2026 taken in San Antonio, Texas by @arielmariah913

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a day ago

I’ve always wondered if a two-night hospital stay would affect me differently than a 14-night stay. Turns out, it doesn’t. Every single one hits me just as hard.

We work so hard to give Piper a beautiful, normal childhood. And she has one. We have so many ordinary, happy days where life feels good.

Then suddenly we’re back in a hospital room reminded of a reality we can never really escape. It’s not just what happened during that stay. It’s everything we’ve already been through and knowing there’s likely more ahead.

She’s home, she’s happy, and life has gone back to normal. But those hospital stays bring up feelings I don’t always know what to do with. Even the short ones. Sometimes the hospital stay ends long before the emotional weight of it does. ❤️‍🩹✨🌹🍑🧬🧸🧼💊🫧🪁

#cysticfibrosisawareness #cfwarrior #cysticfibrosis #thisiscf #raredisease taken in Cystic Fibrosis Center at University Hospital San Antonio, Tx by @arielmariah913

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2 days ago

We got some pretty incredible news at P’s CF appointment today! 🥹💜

When she was admitted with pancreatitis last week, I couldn’t wrap my head around how a child whose pancreas doesn’t work could develop pancreatitis.

Today, we repeated a test that measures her pancreatic function, and for the first time, she’s moved from severe pancreatic insufficiency into the mild to moderate range!

Her pancreas still isn’t functioning normally, but it’s showing signs of improvement. Little “sparks”. And it’s possible that Orkambi is actually helping restore some of that function. 🤸

We’ve spent her entire life giving enzymes with every meal and snack knowing her pancreas couldn’t do that job on its own. The possibility that her body is starting to do even a little more of that work is something I never thought we’d be talking about.

She’s not pancreatic sufficient, but this is a pretty big deal in our world. 💜✨🌹🍑🧬🧸🧼💊🫧🪁

#cysticfibrosisawareness #cfwarrior #cysticfibrosis #thisiscf #raredisease taken in San Antonio, Texas by @arielmariah913

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3 days ago

I don’t expect everyone to understand what it’s like raising a medically complex child. I really don’t.

There are just so many parts of this life that are hard to put into words unless you’ve lived them yourself. The decisions we make aren’t easy. The hospital stays don’t get easier. Just because our kids look healthy, or because we’re smiling in pictures, doesn’t mean there isn’t a whole lot happening behind the scenes.

Some of these feelings are hard to explain and some are even harder to admit out loud. We love our children more than anything but that doesn’t mean every part of this life is easy.

I’m sharing this because I know there are other medical parents who have felt these exact same things. And sometimes just knowing someone else understands what you’re going through makes it feel a little less lonely. If any of these slides made you feel understood, I hope you know you’re not the only one. ❤️‍🩹✨🌹🍑🧬🧸🧼💊🫧🪁

#cysticfibrosisawareness #cfwarrior #cysticfibrosis #medicalparent #raredisease taken in San Antonio, Texas by @arielmariah913

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4 days ago

Just a little girl taking care of her babies while taking care of her lungs. 🥹🩷

This is what airway clearance looks like in our house. P has cystic fibrosis which causes thick, sticky mucus to build up in her lungs. Twice a day, she wears a vest. On sick days, it’s 4 times a day.

We’ve been doing vest treatments since she was just 8 months old. It’s 30 minutes, twice a day, on top of her nebulized medications and everything else that comes with CF. Sick days, healthy days, birthdays, holidays. It doesn’t matter. Those lungs need taking care of!

I think sometimes people see little clips like this and don’t realize just how much time goes into keeping her healthy. But what I love most is how completely normal it is to her. She grabs her babies, gets comfortable, and goes right back to whatever she was doing.

And I love that about her. She’s never known a life without treatments, but she’s also never known a life without playing, laughing, dressing up, and being the funniest little girl.

Of course I wish she didn’t have to spend so much of her childhood doing medical treatments. But watching her make the best of something she has no choice in makes me so proud of her.

She’s got babies to take care of, after all. 🎀💜✨🌹🍑🧬🧸🧼💊🫧🪁

#cysticfibrosisawareness #cfwarrior #cysticfibrosis #thisiscf #raredisease taken in San Antonio, Texas by @arielmariah913

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5 days ago

I woke up to a quiet house this morning. I got out of bed and started looking for Piper, checking each room until I noticed the front door was open. I peeked outside and there they were. Just a little girl having a picnic with her daddy.

My heart sank a little. I was reminded of just how different her childhood looks from most toddlers’.

We have plenty of ordinary moments. We laugh, we play, we make memories, and most days our house is filled with the same chaos as any other family.

But there’s always so much happening in the background. The treatments, medications, appointments, hospital stays, and decisions that most families never have to think about.

Then there are mornings like this. When I stumble upon something so simple and realize how much of her little life has been anything but simple.

I don’t want every beautiful moment to remind me of the hard ones. But sometimes I can’t help it. To anyone else, it was just a front yard imaginary picnic with her daddy. To me, it was a reminder of the childhood I want so badly for her. 💜✨🌹🍑🧬🧸🧼💊🫧🪁

#cysticfibrosisawareness #cfwarrior #cysticfibrosis #thisiscf #raredisease taken in San Antonio, Texas by @arielmariah913

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6 days ago

We don’t talk enough about what having a medically complex child can do to a marriage.

There are days when the stress gets the best of both of us. When we’re running on no sleep, questioning every decision, and taking things out on each other because we’re both carrying more than we know what to do with.

We don’t always handle things the same way. We don’t always agree. And sometimes the person you love the most is the person who gets the worst version of you.

But I’ve watched this man show up for our little girl over and over again. I’ve watched him carry things I couldn’t and step in when I had nothing left to give.

Our marriage has been tested in ways I never could’ve imagined. We’ve argued, cried, and had moments we aren’t proud of. I won’t pretend we’ve handled every part of it well.

But I’ve never questioned how much he loves me, our little girl or how lucky I am to be raising her with him. If I have to walk through all of this, I’m so damn thankful it’s with him. 💜✨🌹🍑🧬🧸🧼💊🫧🪁

#cysticfibrosisawareness #cfwarrior #cysticfibrosis #thisiscf #raredisease taken in University Hospital - University Health by @arielmariah913

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7 days ago