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JUNE 27th in Oyama!
Athina's Ride is a cycling event raising funds for Desmoid Tumour research our mission is to find a cure for this rare disease.
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Athina’s Ride is BACK. 💙

Join Athina June 27 in Oyama for a special gravel ride…
or take it on your own—ride wherever you are and help raise funds for something that matters.

This year’s limited edition tee is part of it.

Fundraise $500 and it’s yours.
Or purchase for $65 — with 100% of proceeds going to the Desmoid Tumour Foundation of Canada.

Want to be part of it?
Sign up to fundraise — link in bio.

Ride. Give. Show up.
Because being rare deserves to be seen. 

#AthinasRide #RideForTheRare #GravelCommunity #FundraiseForGood #desmoidtumorawareness taken in Oyama, British Columbia by @athinasride
3
6 months ago
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Athina’s Ride will be at Oyama Community Hall on June 27th!! Lead by Athina Merckx and special guest Owen Vermeulen. 

This is a great opportunity to spin the legs, meet fellow riders, and spend some time with the Okanagan Graveller community before Sunday’s event.

Participation is by donation, with all proceeds going toward desmoid tumour research.

Please note that space is limited and registration is required to participate. This ride is available only to those who have already signed up in advance. With limited numbers, participants will enjoy a more personal riding experience and the unique opportunity to spend time on a private ride with both Owen Vermeulen and Athina Merckx, hear their stories, ask questions, and share the road with two inspiring ambassadors of the cycling community. 

@owenvermeulen78

#desmoidtumorawareness #dfc #rarediseases by @athinasride
4
4 months ago
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Maddy 💙

We couldn’t be prouder of you today! Thank you for showing up, lacing up, and running for the Desmoid Tumour Foundation of Canada.

The smoke may have changed today’s plans, but you still got out there and made it happen. What you’re doing for the desmoid community means so much.

$3,500+ raised and counting! 💙

From all of us at Athina’s Ride — thank you, Maddy, for doing what you do. 💙 

#desmoidawareness #rarediseaseawareness taken in Oyama, British Columbia by @athinasride
1
2 months ago
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Just over $18,000 was raised at this year’s @okanagangraveller!!! Huge thanks to everyone who fundraised, donated, and rode with us. We couldn’t do it without all of you. 

The work is not done yet! Our fundraising page is still open. 

If you’re interested in starting your own fundraiser for @desmoidcanada feel free to reach out. As well, check out @runforrare to support another desmoid tumour foundation of Canada fundraiser in our community. The Athina’s Ride team will be there supporting, we hope to see you there! 

#desmoid #desmoidtumorawareness #desmoidian #desmoidtumorresearchfoundation #desmoidtumor taken in Oyama Community Club by @athinasride
0
3 months ago
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RUN FOR RARE ❤️🏃

On Sunday, August 16, I'm taking on my biggest running challenge yet—80 km (50 miles) around  Wood Lake—to raise $1,000 for the Desmoid Tumor Foundation of Canada.

I'm doing this for one of my closest friends, Athina, who was diagnosed with Desmoid Fibromatosis at just 15 years old. It's a rare disease that affects only 2–4 people per million, and I hope this run can help raise both awareness and funds for research.

This isn't a race, it's a community run. Whether you want to run one loop (17 km), a few loops, ride your bike alongside, hang out at the aid station, or simply come cheer, I'd love to have you there. I'll have my car set up as an aid station, making it easy to refuel, take a break, and spend the day together.

Wether you are able to join or not, I'd be incredibly grateful if you'd make a donation. Every dollar helps support research, education, and awareness for those living with desmoid tumors. If donating isn't possible, sharing this post is another amazing way to support the cause.

The donation link is in my bio. ❤️

More specific details about the meeting spot and timing will be coming soon!

If you're interested in joining or have any questions or ideas, send me a DM. I'd love to make this an awesome day with as many people from the community as possible!

Run your distance. Support a rare disease. by @athinasride
5
3 months ago
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SILENT AUCTION ITEM!! 

We have got a signed Lotte Kopecky World Champion jersey!!! DM us to bid! Starting at 100$ and closing at 3pm tomorrow (June 28th) @lottekopecky @teamsdworxprotime by @athinasride
0
4 months ago
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Athina’s ride 2026!💙 A huge THANK YOU to everyone who came out to support Athina’s Ride today! 🚴
Whether you rode, donated, cheered from the sidelines, or supported us in any way, thank you for being part of this event!

If you’d still like to support the cause, it’s not too late! Come visit us at the Okanagan Graveler Expo in Oyama today from 12:00–6:00 PM. We’ll have great silent auction items and other fundraising opportunities available.

We’d love to see you there, and thank you again for helping make Athina’s Ride such a success! 💙 by @athinasride
0
4 months ago
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🚨 LIMITED DROP 🚨

Athina’s Ride is BACK. 💙

This is the one everyone will want.
The official Athina’s Ride limited edition jersey 

🔥 Fundraise $1000 and it’s yours
🔥 Very limited quantities available
🔥 First come, first gone

Available June 27 @ Athina’s Ride — Oyama Community Hall

Ride with Athina on our special gravel ride…
or ride your own and still be part of something bigger.

All in support of the Desmoid Tumour Foundation of Canada.

Don’t wait on this one.

👉 Sign up to fundraise — link in bio

#AthinasRide #RideForTheRare #desmoidtumour #GravelCycling #LimitedDrop by @athinasride
0
6 months ago
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From grassroots to global impact 💛

Since 2017, the Desmoid Tumour Foundation of Canada has proudly funded $595,638 CAD in research — with a total commitment of $727,518 CAD toward advancing the understanding and treatment of desmoid tumours. 

This work has supported leading researchers and institutions around the world — from Canada to the U.S., Europe, and beyond — all working toward better outcomes for patients living with this rare disease.

From early-stage tumor biology…
To breakthrough treatment pathways…
To cutting-edge AI models predicting disease progression…

Every dollar raised is pushing the science forward.

And this only happens because of YOU — our community, our supporters, our fundraisers, and everyone who continues to show up, share, and believe in what’s possible.

We’re not done yet.

💛 More research
💛 More answers
💛 More hope

#RideForTheRare #DesmoidTumor #RareDiseaseResearch #MakeAnImpact #ResearchMatters by @athinasride
1
7 months ago
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Athina’s Ride is back.

What started as a small community ride has already helped fund three research grants through the Desmoid Tumor Foundation of Canada thanks to the incredible support of this community.

This June, we ride again.

Join us June 27 at the Oyama Community Hall during Okanagan Graveller weekend for a community gravel ride led by Athina.

More details coming soon on how you can ride, donate, and support.

Because when a community comes together, small rides can create big impact.

💙 Ride for the Rare

#AthinasRide
#RideForTheRare
#DesmoidTumor
#RareDiseaseAwareness
#OkanaganGraveller taken in Oyama, British Columbia by @athinasride
1
7 months ago
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This past weekend Athina had the honour of attending the Together We Will Weekend in Chicago with the Desmoid Tumor Research Foundation. 💙

She was able to meet the physicians and researchers whose work has been funded through the money raised by Athina’s Ride for the Desmoid Tumour Foundation of Canada.

It was such a privilege for her to connect with the incredible people who are dedicating their lives to finding a cure and better treatments for this rare disease. Meeting them was a powerful reminder of just how important every dollar raised truly is. 💙

If you would like to support Athina’s Ride and make a donation, link in bio.Every donation comes with a tax receipt. 

#AthinasRide 💙
#TeamAthina
#DesmoidTumor
#DesmoidAwareness
#TogetherWeWill
#RareDiseaseResearch
#HopeForACure
#ResearchMatters
#CyclingForACause 🚴‍♀️ taken in Chicago, Illinois by @athinasride
1
a year ago
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💙 September is Desmoid Tumour Awareness Month 

Desmoid tumours are rare, aggressive, and often misunderstood. There’s no cure yet — but hope is growing.

Through Athinas Ride, this amazing community has raised over $400,000 in the last five years and most recently, helped fund a brand new research project through the Desmoid Tumour Foundation.

Every mile, every donation, every share makes a difference. Together, we’re not just raising money — we’re raising hope for everyone living with desmoid tumours.

Thank you for standing with us. 💙💙💙

#DesmoidTumor #AthinasRide #ResearchMatters #DesmoidAwareness #RareButStrong
#rarediseaseawareness by @athinasride
0
a year ago
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