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Bateman Horne Center

@bateman_horne_center

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Bateman Horne Center is a non-profit medical, research, and education center devoted to eradicating #MECFS, #fibromyalgia, and #LongCOVID.
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The Clinical Care Guide is Here: Managing ME/CFS, Long COVID & Infection-Associated Chronic Conditions (IACCs). Download it. Share it. Use it. CLINICAL CARE GUIDE The story behind the guide: For years, Bateman Horne Center has refined a clinical approach grounded in patient experience, deep expertise, and real-world practice. Today, we’re making that approach freely available—because increasing access to care is at the heart of everything we do. This Clinical Care Guide is BHC’s recipe. It distills decades of in-house clinical experience and hundreds of medical lectures into a practical, digestible roadmap that any provider—regardless of specialty or time constraints—can use to begin managing these complex conditions with clarity and compassion. Designed with real clinical settings in mind, this guide breaks down complex illness presentations into actionable steps, helping providers manage aspects of illness over time—without requiring long visits or specialist expertise to get started. As a nonprofit, our mission is simple: patients come first. That’s why every resource we create is built to educate, empower, and expand access to high-quality care—at no cost. Read more LINK TO BIO: A Roadmap to Better Care #MECFS #LongCOVID #ClinicalCareGuide #KnowledgeSharedLivesChanged @openmedf by @bateman_horne_center
Getting healthcare can take a lot of energy, especially when you’re chronically ill. 💙 Join us for our next online support group, Navigating the Healthcare Industry, to share experiences and explore what helps. We’ll discuss: • Challenges with accessing care • Communicating and working with providers • Speaking up about your needs • Managing insurance, paperwork, and appointments Tuesday, November 3 | 1:00 pm MST People with ME/CFS, Long COVID, and co-existing conditions, along with loved ones, are welcome. Participate in whatever way feels comfortable for you. Register through the link in our bio. #MECFS #LongCOVID #ChronicIllness #SupportGroup #BatemanHorneCenter by @bateman_horne_center
“There just aren’t enough specialists to take all the patients.” —Lucinda Bateman, MD More clinicians learning about dysautonomia means more opportunities for people to receive care. In this Project ECHO excerpt, hear Dr. Bateman encourage clinicians to stay curious, work together, and build their knowledge. This Dysautonomia Awareness Month, help bring this message to more healthcare providers by sharing. Watch the full ECHO session through the link in our bio. #DysautonomiaAwarenessMonth #Dysautonomia #MedicalEducation #MECFS #LongCOVID by @bateman_horne_center
Connection, support, and practical education, join BHC online this November. 💙 NOVEMBER 3 | 1:00 pm MST Support Group: Navigating the Healthcare Industry NOVEMBER 11 | 10:00 am MST “Coffee” with a Clinician: Orthostatic Intolerance & Dysautonomia, Part 2 Explore non-pharmacological management options from Chapter 7 of the BHC Clinical Care Guide. NOVEMBER 17 | 1:00 pm MST Support Group: Gratitude as a Happiness and Resilience Skill—Recognizing What We Can Appreciate in the Face of Illness Our support groups welcome people with ME/CFS, Long COVID, and co-existing conditions, along with loved ones. Join in whatever way feels comfortable for you. Find registration details at the link in our bio: "Register for Outreach Events" #MECFS #LongCOVID #Dysautonomia #ChronicIllness #BatemanHorneCenter by @bateman_horne_center
This November, for National Family Caregivers Month, @solve_cfs, @openmedf, @meactnet and @bateman_horne_center are joining forces to highlight resources, and community support for caregivers. Together, we’re stronger, and united in care. 💙 Follow and share using #UnitedForME" by @bateman_horne_center
When the seasons change, your pacing needs may change too. Weather, daylight, disrupted routines, and seasonal activities can all add to what your body is being asked to manage. For someone who experiences post-exertional malaise (PEM), those demands may overlap and accumulate even when each one seems manageable on its own. In our newest blog, occupational therapist Amy Mooney shares ways to: • Notice changes in symptoms and capacity • Look ahead at cumulative demands • Modify activities and use accommodations • Plan rest before and after anticipated stressors For people with severe limitations, basic daily activities may already use most of their available capacity. Support and adjustments need to reflect that reality. Read “When the Seasons Change” at the link in our bio. #MECFS #LongCOVID #PostExertionalMalaise #PacingForPEM by @bateman_horne_center
Orthostatic intolerance comes in many forms. In this Project ECHO clip, Jennifer Bell, FNP-C, explains why difficulty tolerating an upright position deserves attention, and why understanding each person’s symptoms matters. This Dysautonomia Awareness Month, we’re highlighting the importance of individualized assessment and care. Watch the full ECHO session through the link in our bio. #DysautonomiaAwarenessMonth #OrthostaticIntolerance #Dysautonomia #MECFS #LongCOVID by @bateman_horne_center
Your symptoms can change. Your care should account for that. Jennifer Bell, FNP-C, shares why orthostatic intolerance (OI) requires ongoing assessment, even after years of care. In this September “Coffee” with a Clinician clip, she explains why: • Management needs may change over time. • Other conditions may become more apparent. • Stabilization doesn’t necessarily mean recovery. Continued listening and reassessment are essential to individualized care. Watch the full session: Link in bio #OrthostaticIntolerance #Dysautonomia #MECFS #LongCOVID #ChronicIllness by @bateman_horne_center
Managing post-exertional malaise (PEM) goes beyond pacing alone. In this clip, Dr. David Putrino, Dr. Lucinda Bateman, and Dr. Jennifer Curtin share emerging approaches to reducing physical and cognitive PEM, including treatments targeting metabolic dysfunction and options such as low-dose rapamycin, metformin, oxaloacetate, CoQ10, dextromethorphan, low-dose naltrexone (LDN), NAD+, high-dose B1, and IV saline. While some patients report improvements, responses vary, and research is still evolving. Identifying which treatments may help specific patients remains an important part of developing more personalized PEM management strategies. Have you found any medications or supplements that help manage your PEM? Share in the comments. Watch the full How to Manage and Treat Post-Exertional Malaise (PEM) webinar featuring Dr. Putrino, Dr. Bateman, Dr. Curtin, and moderator Charlie McCone. Comment PEM and we’ll send you the link to the full webinar recording on YouTube. Always consult with your healthcare provider before starting any new supplement, over-the-counter medication, or treatment. Individual risks, potential interactions, and appropriate dosing should be discussed with and monitored by your clinician. by @bateman_horne_center
How do we navigate relationships when chronic illness changes our needs and what we’re able to give? Join our next Support Group: Figuring Out Relationships While Chronically Ill. Together, we’ll explore relationship challenges, communicating our needs, and situations we’re still learning how to handle. Tuesday, October 20 1:00 pm MDT | Zoom Register using our link in bio by @bateman_horne_center
Understanding orthostatic intolerance (OI) starts with recognizing symptoms, and having accessible ways to assess them. OI is common in ME/CFS, Long COVID, and other infection-associated chronic conditions, yet many people experience long delays in diagnosis. Our blog explores: • Tilt Table Testing • Active Stand Testing • The 10-Minute NASA Lean Test (Passive Stand) We explain what each test can and can’t tell clinicians, and how practical stand testing can help validate symptoms and guide care. Read the full blog through the link in our bio. #MECFS #LongCOVID #Dysautonomia #POTS #OrthostaticIntolerance by @bateman_horne_center
Cognitive symptoms can affect everyday tasks, conversations, and routines. Join our next “Coffee” with a Clinician to explore how cognitive impairment is assessed and practical ways to support daily cognitive function. Drawing from BHC’s Clinical Care Guide, our panel will discuss: • Common symptoms and cognitive fluctuations • Assessment tools and contributing factors • Pacing, energy conservation, and environmental adaptations Panelists: Jaime Booz, MS, CCC-SLP; Michelle Haddad, PhD; and Jacqueline Becker, PhD. Moderated by Clayton Powers, DPT. Wednesday, October 14 | 10:00 am MDT Free on Zoom. Optional donations support BHC’s education and outreach. Register through the link in our bio. If Zoom fills, you can watch live on our YouTube channel. #MECFS #LongCOVID #CognitiveImpairment #BrainFog by @bateman_horne_center

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