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The diary entries of a chronically ill girl 🪷
(slightly unhinged) 🎀
POTS • FIBRO • hEDS • CFS • MCAS 🎗️
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Let’s stop being performative this September and teach people that suicide prevention is a daily practise not a monthly celebration. 
This topic is so important to me and many others, suicide prevention is so much more than sharing reels, painting trees blue, or being performative. Some of the nastiest people I’ve met preach suicide prevention like they haven’t driven people to the edge, so these are some of the ways you can show up. Backed by research and personal experience.
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#mentalhealth #mentalhealthawareness #suicideprevention #suicideawarness #grief by @chronicallycasper
2
a month ago
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YOUR BODY SHOULD NOT BE IN CONSTANT PAIN - if something doesn’t feel right, maybe a knot stays longer than expected and you realise it’s a lump; pleaseeee get it checked. In my case I’ve got swollen lymph nodes from my MCAS and histamine intolerance however I now get regular scans, and will be getting a biopsy to rule out lymphoma or precancerous cells, chronically ill babes, as much as it can feel oddly comfortable to have diagnoses and answers for your symptoms/illnesses, it’s important to keep pushing for answers IF the ones you’ve already got don’t feel right. This is not to instil fear, but I try to be both realistic and optimistic, this is where it gets real 💗 
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#chronicillness #pots #fibromyalgia #chronicpain #invisibleillness - lymphoma - swollen lymph nodes - biopsy - ultrasound - chronic health issues - disability by @chronicallycasper
2
a month ago
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Starting this page feels vulnerable, but also like a way to hold myself accountable in trying to regain my life back, and connect with people who also understand - welcome
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#pots #dysautonomia #chronicfatigue #chronicillness #fibromyalgia by @chronicallycasper
0
5 months ago
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Truthfully I’m already thinking of how it’ll go wrong this time, but I’m determined to try again, and fight even harder for accessibility; because people deserve to complete their degrees when their body is the only thing holding them back from a higher education. 

I refuse to believe disabled people cannot be researchers, surgeons, lawyers, etc, but society currently makes it very hard; accomodations can be seen as lazy, which is hurtful when you know you’re far from it
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#disability #chronicillness #chronicpain #accessibility #fibromyalgia 🏷️ uni with pots, university with chronic illness, accessible education, fibromyalgia, studying with chronic illness, studying with disability, invisible illness by @chronicallycasper
2
4 days ago
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“If you can work you don’t deserve DSP; if you don’t have experience we’re not gonna hire you; if you sit down at work you’re lazy no matter how good you are at your job.” I bet the cure to cancer is in the brain of a disabled individual who has quit uni because their accomodations cannot be met.
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#chronicillness #invisibleillness #disabilityawareness #chronicpain #disability by @chronicallycasper
2
12 days ago
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I am so sick of it all 
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#pots #chronicillness #fibromyalgia #chronicpain #invisibleillness by @chronicallycasper
3
20 days ago
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Where does this exist, if not how can we make it exist? 🤨
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#chronicillness #chronicpain #disability #disabilityawareness #fibromyalgia by @chronicallycasper
31
a month ago
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If you catch yourself judging someone who shares a lot online, realise that they may not have anywhere else to share it. Speak with your friends, provide safe spaces for important and meaningful conversations 💗 that’s how you find your village 
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#therapy #mentalhealth #mentalhealthawareness #speakup #mentalhealthmatters by @chronicallycasper
0
a month ago
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I’m so glad doctors education continues to grow, but there are still farrrrr too many who are clueless about POTS, MCAS and many other chronic health issues 
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#pots #dysautonomia #mcas #chronicfatigue #chronicfatiguesyndrome - invisible illness - chronic illness by @chronicallycasper
2
5 months ago
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A bit different from my usual content, but these posts help me feel less alone and with Father’s Day soon approaching I feel it appropriate to share my own experience in hopes someone feels more seen 💙💙
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A cruel milestone for someone who never got any 👎
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#grief #parentloss #griefjourney by @chronicallycasper
1
a month ago
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I forgot spring weather meant my eyes will be fat for the foreseeable future smh 🌸🫠
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#mcas #pots #chronicillness #chronicpain #fibromyalgia by @chronicallycasper
2
2 months ago
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A heavy one today, ⚠️TRIGGER WARNING⚠️

I think mental health is important to talk about, I also think it’s not as light of a topic as social media makes it out to be and sometimes it is important to highlight the gruesome reality of what some people go through before we lose them. Some people aren’t lucky enough to be able to recognise a downward spiral, some people aren’t lucky enough to know the word depression without understanding the personal impact of suicide. If any post I make can help just one single person, I will never stop; because sometimes it has taken the words of one person, whether online or in person to pull me out of the deep end. Living with chronic illness is not easy, and there is a whole new layer added when brain altering medications are added to the mix of your already depressing reality. 
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#chronicillness #mentalhealth #depression #fibromyalgia #chronicpain - mental health awareness - disability awareness - chronic health awareness by @chronicallycasper
5
2 months ago
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