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@connect_with_mecfs

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Dedicated to building community for those with me/cfs through online accessible spaces

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I’m so looking forward to our next MECFS co-rest gathering, co-hosted with @connect_with_mecfs, and can feel the soothing energy already!

If any part of you wants to come, I invite you to start seeing yourself there and imagining how it will feel to be in community with our beautiful community.

I know how this illness works. I’ve been living with it for years now.

So I know there are so many things we want to do but don’t get to do. It happens to me too, and it can be devastating.

I also know that allowing yourself to imagine yourself at this gathering is a win-win situation regardless of what happens next!

Imagine yourself THERE on Monday. In the room. Connected. Breathing deeply. Resting. Together. Feel the warmth and the love in the space. Feel the light of the community. FEEL it in your heart and in your body.

Do you feel it?

Here’s the thing, if you allow yourself to really experience this right now, you get to receive benefits from this event right now, regardless of what happens next!

And SOMETIMES when we allow ourselves to feel the energy of living the thing we desire before it happens, it activates a little magic in the Universe to make it so! Then you can receive benefits now AND later.

Oh my love, can’t wait to see you in the room.

Can you see yourself there? Let me know in the comments✨

Link to join is in both of our bios 💙

#mecfs #myalgicencephalomyelitis #chronicfatiguesyndrome #longcovid #millionsmissing by @connect_with_mecfs

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2 days ago

‼️🛑URGENT: ALI NEEDS SUPPORT TO SURVIVE 🛑‼️ (English and Spanish version)

All links to support Ali are in the LinkTree in our bio!!!

Ali has Profoundly Severe ME in Spain. She has no income, minimal support, and has been abandoned by social security and medical services.

She is 100% bedridden and unable to care for herself, turn over in bed without assistance, or speak. She has not been able to eat in over a month.

Ali desperately needs funds for caregivers, medication, and other critical supports to avoid starving to death.

Please donate if you can, and share this post to help get her the life-saving support and care she needs. Thank you for any support you can provide.

PayPal: @aliwme
Ko-fi: https://ko-fi.com/aliwme

Image description:

The first slide has 2 pictures of Ali.

Image 1: Ali, a young woman, is upright and smiling as she takes a selfie. She has red curly hair going down to her chin and is wearing a black shirt with a silver necklace. She is holding a bird in her hands.

Image 2: Ali, a young woman, is lying in bed distressed with an eye mask, ear defenders, and a cloth on her forehead. An ear thermometer lies next to her for her fever. A blanket covers her body.

SPANISH/ESPAÑOL:

‼️🛑 URGENTE: ALI NECESITA APOYO PARA SOBREVIVIR 🛑‼️

¡Todos los links de Ali están en el Linktree en nuestra bio!!!

Ali tiene EM extremadamente severa y vive en España. No tiene ingresos, cuenta con un apoyo mínimo y ha sido abandonada por la Seguridad Social. Médicos y servicios sociales.

Está 100 % postrada en cama y no puede cuidar de sí misma, darse la vuelta en la cama sin ayuda ni hablar. Lleva más de un mes sin poder comer.

Ali necesita desesperadamente fondos para cuidadores, especialistas, medicación y otros apoyos esenciales para evitar morir de inanición.

Por favor, dona si puedes y comparte esta publicación para ayudar a conseguirle el apoyo y los cuidados que necesita para mantenerse con vida. Gracias por cualquier ayuda que podáis dar.

PayPal: @aliwme

Ko-fi: https://ko-fi.com/aliwme

Descripción de las imágenes en español en comentarios.

#mutualaid #myalgicencephalomyelitis #ehlerdanlossyndrome #spain by @connect_with_mecfs

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15 days ago

This ME thing can be isolating. We don’t want you to feel alone.

We also don’t want you to have to overexert in order to feel connected and engaged with the world.

This is why we created the MECFS co-rest gathering.

It’s a space to breathe, connect, and rest together.

Sounds simple, but it’s amazing how much coming together to rest in community feels like a healing balm to our dear sweet hearts that are longing for connection.

Come for as long as you are able. Leave when you need to.

Gently engage with us in the chat at the beginning and the end.

OR just have someone sign you in, turn the volume to the lowest setting, and lay with your sleep mask on til we end the meeting.

Come as you are friends. We love you so much!

@connect_with_mecfs and I can’t wait to rest with you tomorrow.

Link to join is in both our bios 💙
Passcode: rest

#mecfs #myalgicencephalomyelitis #chronicfatiguesyndrome #millionsmissing #chronicillness by @connect_with_mecfs

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2 months ago

@connect_with_mecfs and I absolutely love hosting these and we’d love to see you there!

Let us know in the comments if you’ve been to one before and/or if you plan to come to this one!

Link in our bios 💙

#mecfs #myalgicencephalomyelitis #chronicfatiguesyndrome #millionsmissing #longcovid by @connect_with_mecfs

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2 months ago

We are hosting events again in the Connect With ME Discord group! Come join us August 31st at 3PM EST for a peer led hobby event.

Grab a craft: painting, crochet, bedazzling, ANYTHING! Mics and cameras are welcome if you’d like to chat or you can just lurk or hop in typing chat. (Also if you’d just like to come hang out that’s okay too you don’t have to craft 😉)

@connect_with_mecfs (go follow for updates) by @connect_with_mecfs

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2 months ago

We took the summer off, but we’re baaaaack!

@connect_with_mecfs and I are so excited to be offering another MECFS co-rest this month. We’ve missed connecting with you!

This is a super chill event where all you have to do is show up and keep breathing…literally. That’s it.

Cameras are welcome, but totally optional.

Mics are off.

There’s an optional chat at the beginning and end.

And you are free to come and go as needed.

I don’t have the words to express how good it feels in this space every single time. So maybe…

Just come find out for yourself 💙

Link is in our bios.

#mecfs #chronicfatiguesyndrome #myalgicencephalomyelitis #chronicillness #millionsmissing by @connect_with_mecfs

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3 months ago

Our next MECFS co-rest gathering is tomorrow!

Co-hosted with @connect_with_mecfs

I’ll guide us through a few gentle breaths together, and then we’ll move into rest with a soothing nature soundscape.

Join us on zoom.
Mics off. Cameras optional.
Optional check in in the chat.

You’re invited, and you’re free to come and simply exist in the space for a long or a little as you’d like.

See you there!

Link in bio to join 💙
Password: rest

#mecfs #myalgicencephalomyelitis #chronicfatiguesyndrome #rest #chronicillness by @connect_with_mecfs

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6 months ago

It’s that time again!

Let’s rest together with the MECFS community.

@connect_with_mecfs and I love hosting these each month and are always so grateful for all of you who join us.

We are both are navigating ME and doing this within the limits of our capacity.

So we could use your help spreading the word this month since this one is happening in just a couple days!

Please feel free to comment, share, repost, or tell a friend.

We appreciate you and can’t wait to see you this Friday!

No sign up required.
Link in bio 💙

#rest #mecfs #myalgicencephalomyelitis #chronicfatiguesyndrome #spoonie by @connect_with_mecfs

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6 months ago

MECFS co-rest gathering this Friday!

@connect_with_mecfs and I love hosting these and would love to see you there for gentle rest, relaxation, and connection with community 💙

Link in bio. Password “rest” by @connect_with_mecfs

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7 months ago

Discord in bio! Virtual tea party for the ME/CFS community to make friends! Hosts: @5ky3_5m1th4m
@urgoodpalghosttie and @megan.menetrier #myalgicencephalomyelitis #mecfs #cfs
#onlinecommunity #disabled by @connect_with_mecfs

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7 months ago

So excited to celebrate @urgoodpalghosttie , graphic designer and moderator! We are so grateful for them 🩷🎂 #mecfs #myalgicencephalomyelitis by @connect_with_mecfs

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8 months ago

Hosted with @connect_with_mecfs

Low stim nature sounds, a few guided deep breaths, and 30 mins of rest with the MECFS community 😴

Come rest with us!

No sign up required. Just join when it’s time.

Link in bio 💙

Graphic by: @urgoodpalghosttie

#mecfs #myalgicencephalomyelitis #chronicillness #chronicfatiguesyndrome #rest by @connect_with_mecfs

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8 months ago