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Egality Health

@egalityhealth

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Connecting under-served communities & the health research sector.
Our mission: inclusion in research, equity in health. 🩷
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🎬✨Looking for some April inspiration? Watch this! 🎬✨ 📣 Egality increases access to health research, through creative communications and meaningful community engagement. 🤝 Work with us to drive impactful change for health equity. (LINK IN BIO) 🫶🏿Huge thank you to our clients, collaborators and community partners in this film! #healthforall #inclusiveresearch #representationmatters #drivingchange #impact #healthequity by @egalityhealth
That’s October wrapped 🍂 The team has been all over this month, from conferences in Edinburgh to Barcelona. Swipe through for what we heard at each one. The recurring theme throughout was that inclusion works best when it's built in from the very beginning, in how research is designed and who gets to shape it. Working on a study and want to get this right from the start? Drop us a message, we’d love to chat.🗣 by @egalityhealth
A little behind the scenes of what a day looks like when our team is in two cities at once 👀 Sneha was in London presenting at the 2nd Patient Empowerment World Congress, while Bhuvan was over in Barcelona at SCOPE Europe, spending the day with people working across clinical trials and recruitment. These events are where we hear some of the most interesting conversations about how research is changing, who’s being left out of it and what people are doing about it. Getting to show up in two countries on the same day and be part of the chat in both rooms felt pretty special, and we came home with a notebook full of ideas ✍️ Thank you to Facilitate Live and the SCOPE Europe team for having us, and to everyone who came over to say hi 💙 If we missed you, our DMs are always open 💬 #DayInTheLife #BehindTheScenes #HealthEquity #ClinicalTrials #InclusiveResearch #SCOPEEurope by @egalityhealth
Last week, Sneha headed to the Patient Empowerment World Congress to present alongside @astarmusicuk, and we’re still buzzing about it 🙌 Their session focused on doing patient engagement differently and what it takes to reach the communities that keep getting left out of health research. They talked through how we gather real-life insights from under-represented communities and use them early on in the clinical trial process, plus the community-led campaigns we’ve been creating with the @ibho_bioresource programme. If you take three things away from it: 1️⃣ Start with who’s missing. Look at whose voices aren’t in the room, who’s carrying your message and who it’s actually reaching. 2️⃣ Bring communities in early and share the power. A lot of barriers are baked into research before anyone thinks to ask, so people need a real say in what gets designed and how their stories get told. 3️⃣ Build trust that lasts. Close the loop, keep people involved as their ideas move forward, work through partners and spaces people already trust, and pay people properly. Sustained relationships are what make this work, and it was great to have @kiritmistryuk from @officialsahauk there with us too 🤝 The wider congress was a good reminder that partnership with communities must be meaningful and accountable, that change happens when people step out of their silos and work together, and that loads of brilliant work is happening across the UK, Europe, and the US for us all to learn from. Massive thanks to Facilitate Live for two thoughtful days. Want to make your research more inclusive? Get in touch, link in bio 💛 #HealthEquity #ClinicalTrials #InclusiveResearch #PatientEngagement #HealthInequalities #CommunityEngagement #DiversityInResearch #PatientEmpowermentWorldCongress by @egalityhealth
We're hiring! 📣 Egality is looking for a Director to join the team. We need a hands-on all-rounder who can drive our growth, lead high-quality client work, and make sure underserved communities stay at the heart of everything we do. What you'll bring: - Senior experience in the pharmaceutical sector, whether that's from an agency, a CRO or somewhere similar - A track record of bringing in new business and helping a company grow - A real commitment to health equity and to the community partners we work with What we'll bring: - Award-winning work with a clear social purpose - A team with low hierarchy and plenty of autonomy - A role where you'll make a big impact in a growing company Sound like you? Head to the link in our bio or email annette@egality.health to learn more and apply. And if you know someone who'd be perfect for it, please send this their way! #Hiring #HealthEquity #DirectorRole #InclusiveResearch by @egalityhealth
It's that time again... Looking for funding for your #community organisation? Each month, we'll pull together a few #Funding opportunities currently open to community organisations and grassroots groups, from larger grants to funding designed to support local projects and community-led work. Swipe through to see what’s available, who can apply and what the funding can support. Links in our bio for direct access! (If you would rather receive these opportunities straight to your inbox, send us a DM and we'll add you to our mailing list) by @egalityhealth
What do #ClinicalTrials actually look like from the patient's side? For people living with Alzheimer's and the caregivers supporting them, participation in a Phase 3 trial typically involves a sustained commitment, often over many months. Trials have traditionally been built around what the #science and the regulators need, with #patients and caregivers brought in much later, if they're brought in at all. We worked with a global #pharmaceutical company to change that order for an upcoming Alzheimer's trial, bringing patients and caregivers in before the protocol was finalised. We sat down with them and went through the trial experience properly: what made sense, what didn't, where the gaps in understanding were, where things could be made easier. What they told us shaped real changes to the trial, closing some of the distance between what's written into a protocol and what it's actually like to live through one. For #WorldAlzheimerDay, we're sharing the full case study. by @egalityhealth
Inclusion Week always brings a wave of 'same opportunities for all' messaging, and it comes from a good place. But sameness and fairness aren't quite the same, especially once you look at how #research actually works in practice. A fair opportunity to take part in a #trial often comes down to details that have nothing to do with treating people identically: an appointment time that fits around a caring role or a shift pattern, information written in a way that actually makes sense, someone available in the language a person thinks in, a route into a study that doesn't assume everyone can just show up on a weekday morning. Whether someone ends up in a trial at all can hinge on whether the process was ever built with them in mind, which has a lot more to do with design than with ability or interest... #InclusionWeek #HealthEquity #ClinicalResearch #InclusiveResearch #ClinicalTrials #PatientEngagement by @egalityhealth
Twenty people in one trial, thousands in another, different phases, the same drug and the same disease... It's all pretty confusing! You may have heard of "phase 1, phase 2, phase 3" when it comes to #clinicaltrials, and each phase is simply answering a completely different question about the treatment. By the time a treatment's approved, it's been through years of these separate, narrower questions, each one needing its own scale of trial to answer properly. Understanding what each phase is actually checking for hopefully makes that whole process a little less confusing. Swipe through for the breakdown. #ClinicalTrials #ClinicalResearch #HealthEquity #PatientAdvocacy #MedicalResearch #PublicHealth #EgalityHealth by @egalityhealth
What does meaningful engagement with communities actually look like? Black women in the UK face significantly worse maternity outcomes than white women, including higher rates of pregnancy-related deaths, preterm birth and stillbirth. Yet Black women remain underrepresented in the maternity and neonatal research that could help us understand and address these inequalities. If research is meant to improve outcomes for Black women, Black women need a real role in shaping that research. Through our work on the NIHR-funded PROMISE study, we helped co-develop a set of Principles of Engagement to involve Black women more inclusively in maternity and neonatal research. The principles came from what we heard directly from Black women, community representatives and research midwives involved in the study. Community engagement should change how research is done. Swipe through to explore the Principles of Engagement → And head to our previous post to find out more about the PROMISE study. #HealthEquity #BlackMaternalHealth #MaternityResearch #InclusiveResearch #CommunityEngagement #HealthInequalities #ClinicalResearch #LivedExperience by @egalityhealth
If you’re caring for someone, #clinicaltrials may have crossed your mind at some point, perhaps you are navigating one right now or maybe someone mentioned it as an option and it got you thinking… We are running an online listening session to better understand #carers positions and opinions around clinical trials. 🗓️ 18th September | 10am - 12pm 📍 Online Are you a carer? We’d love to hear from you! Contact us at team@egality.health for more info. by @egalityhealth
Black women in the UK are 2.3 times more likely to die from pregnancy-related causes than white women, and experience higher rates of preterm birth and stillbirth. Despite this, they remain significantly underrepresented in the #maternity and neonatal #research that could help close that gap. We helped lead #PPIE on the PROMISE study, funded by the National Institute for Health and Care Research, shaping the study design, topic guide and workshop plan alongside our community advisory group, and supporting #recruitment across our #community networks. Swipe through to see what came out of it, from the themes that shaped the findings to the numbers behind the work. Want to know about the PROMISE study or our work? Get in touch! by @egalityhealth

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