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Encephalitis International

@encephalitisinternational

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The brain inflammation non-profit. Our mission: Rebuilding futures by saving lives, raising awareness, and driving research.
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🚨 We’re halfway there! 🚨

Today marks the halfway point between the last World Encephalitis Day and World Encephalitis Day 2027! 🌍🧠

There’s no better time to start planning your fundraising challenge. Whether you take on a personal challenge, organise an event or get your workplace involved, every fundraiser helps raise vital awareness of encephalitis and support those affected. 💙

🎉 Our World Encephalitis Day 2027 fundraising page is now LIVE!
👉 Check out the link in our bio

So, why not start today? Let’s make World Encephalitis Day 2027 our biggest one yet! 🙌 by @encephalitisinternational

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2 months ago

🔥 Think Brain in F.L.A.M.E.S 🔥
Encephalitis can affect anyone — and early recognition can save lives.

Remember the signs with F.L.A.M.E.S:
🩺 F – Flu-like symptoms
😴 L – Loss of consciousness
🤕 A – Acute headache
🧠 M – Memory problems
💭 E – Emotional or behavioural changes
⚡ S – Seizures

If you notice these symptoms, seek urgent medical attention. Early diagnosis and treatment matter.
#ThinkBrainInFLAMES #EncephalitisAwareness by @encephalitisinternational

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5 months ago

New guidance from German experts sets out how psychiatric services should look for autoimmune encephalitis (AE). AE is a real and treatable cause of psychiatric illness, but it’s rare, and the experts warn that it can be overdiagnosed too.

Swipe through to see the recommended approach: spotting warning signs, investigating, testing carefully and reviewing cases as a team.

Two of the authors, Professor Carsten Finke and Professor Frank Leypoldt, are members of our Scientific Advisory Panel.

Think broadly. Test carefully. Interpret in context.

Read more via the link in our bio.

#Encephalitis #AutoimmuneEncephalitis #EncephalitisAwareness #MentalHealth #Psychiatry #Neurology #BrainHealth #ResearchNews #EncephalitisInternational by @encephalitisinternational

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10 hours ago

🎉 We are delighted to announce that Encephalitis Conference 2026 has been officially endorsed by the World Federation of Neurology (WFN)! 🧠🌍

🏅 This endorsement reflects the high scientific quality of the programme and its importance to the global community of neurology professionals

🔬 Join experts from around the world as we explore the latest developments in encephalitis

📅 7–8 December 2026

🎟️ Book your ticket at the link in our bio! by @encephalitisinternational

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11 hours ago

🫶 In-person peer support group: Edinburgh

📍 Central Edinburgh
📅 21 November 2026
🕐 1:00–3:00pm

Come and meet others who have experience of encephalitis at a welcoming venue, hosted by our peer support volunteers. Sandwiches and hot drinks will be provided. ☕

Spaces are limited to just 25 people, so please book early to secure your place.

To attend or find out more, email Alex at peersupport@encephalitis.info 📧

This event is kindly sponsored by Irwin Mitchell: https://www.irwinmitchell.com/ 💙 by @encephalitisinternational

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a day ago

🔬 EXTERNAL FUNDING OPPORTUNITY: Tick-borne disease research

Are you researching tick-borne encephalitis (TBE)?

Tick-borne diseases Foundation Netherlands is offering seed funding for independent, innovative research projects of 6–24 months based in a European country where TBE is common (Central, Eastern and Northern Europe).

💰 Funding available: up to €10,000 per project. There is the opportunity for successful pilots to be scaled up.

📅 Applications are reviewed every three months, starting 1 February 2027

🔗 See if your project might be eligible and how to apply following the link in our bio by @encephalitisinternational

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3 days ago

🏃‍♀️ Fran is taking on the Leeds Half Marathon and her first ever marathon, the Yorkshire Altra, all in support of Encephalitis International 💙

Fran’s brother, Will, was affected by encephalitis in 1999, and it changed the rest of his life. She still remembers the multiple diagnoses and uncertainty at the time, and knows how damaging delays in getting the right treatment can be. The effects of a brain injury can be devastating. 🧠

By running for Encephalitis International, Fran hopes to raise vital funds and awareness of this often poorly recognised condition, helping improve the lives of those affected.

Good luck, Fran, we’ll be cheering you on! 👏

👉 Sponsor Fran: https://www.justgiving.com/page/frances-harding-8 by @encephalitisinternational

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4 days ago

💌 Forgot to buy a card? It happens to all of us.

💙 With Don't Send Me A Card, you can send a personalised e-card in just a few clicks while donating the cost of a printed card and postage to Encephalitis International

🎉 Whether you’re celebrating a birthday, saying thank you, sending your best wishes or simply letting someone know you’re thinking of them, you can make your message go even further

📱 Choose your card, personalise it, and send it instantly by email or share it via WhatsApp

👉 Send your e-card today via the link in our bio by @encephalitisinternational

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4 days ago

💙Open call for your encephalitis stories.

👃Has your sense of smell or taste changed since you had encephalitis?

📢We want to hear from you. By sharing your lived experience with us, you can help raise awareness, support others going through the same thing, and bring these under-recognised effects of encephalitis into the spotlight.

🔗Share your story with us today via the link in our bio. by @encephalitisinternational

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6 days ago

💙 Thank you to everyone who joined us for My Brain & Medicine on Friday!

A huge thank you to our speakers: Dr Sophia Michael, Andrew Mawdsley, Gemma White, Ravij Bhatia, Elizabeth Hall and Dr Snkalp Sharma, and to everyone who attended. 🧠

It was a truly memorable day: a chance to learn more about encephalitis, meet others who understand the challenges, and feel part of a supportive community. 🫶

Want to hear about future events? Sign up to our mailings in our bio to be notified! by @encephalitisinternational

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6 days ago

💙 Could your small shareholdings make a big difference?

Have shares you no longer need, even a small holding that’s uneconomical to sell? You could turn them into valuable support for Encephalitis International.

Through ShareGift, donated shares are pooled together and sold, with the proceeds going to charities. If you decide to donate, just mention Encephalitis International so your gift supports our work with people affected by encephalitis. 🧠

👉 Find out more about donating shares via the link in our bio by @encephalitisinternational

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7 days ago

🧠 New blog: Has medicine forgotten how to read?
“Before it was a science of language, semiotics was the science of symptoms.”

🩺 Writing in Psychology Today, Encephalitis International’s Prav Prathapan looks at medical semiotics, the old clinical skill of reading signs and symptoms, and asks why it matters more than ever as AI changes healthcare.

🤖 AI is getting better and better at linking findings to diagnoses. What it can’t do is understand what those results mean for the person living with them.

💬 Prav argues that clinicians should treat AI outputs as signs to interpret, not final verdicts. He highlights the importance the of recording the patient’s story, alongside the data.

🔗 Read the full article in the link in our bio! by @encephalitisinternational

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8 days ago