Instagram story viewer> @endoteamma> Posts

The Endometriosis Alliance of Massachusetts

@endoteamma

494

followers

218

following

Established April 2025
Dedicated to improving the lives of those with endometriosis through education and advocacy🎗️

POSTS STORIES REELS TAGGED

Download All

Today marks two weeks out from the Massachusetts #Endometriosis Task Force legislation passing! We wanted to share how we are feeling about this milestone. We continue to be filled with excitement and gratitude. Thank you @sabadosama @senrobynkennedy @staterephendricks @senjohnvelis @massgovernor @ma_womenscaucus and all who helped make this happen. Comment below with YOUR word or phrase about this task force! taken in Massachusetts State House by @endoteamma

68

6

2 months ago

✨ We wish we could shout this from the rooftops… but Instagram will have to do! 💛

The Massachusetts Endometriosis Task Force legislation has officially PASSED and is now LAW through the FY27 state budget. This is a historic victory for the endometriosis community and proof that advocacy creates real change.

This milestone would not have been possible without our incredible legislative champions: Rep. @sabadosama , Sen. @senrobynkennedy , Rep. @staterephendricks , Sen. @senjohnvelis , their dedicated teams, @ma_womenscaucus and Governor @maura_healey for signing this into law.

Most importantly, thank you to every person in the endometriosis community who shared your story, testified, emailed, called, and refused to give up. This victory belongs to you.

What began with people saying, “We’ve been ignored long enough,” became an extraordinary movement that weathered hearings, setbacks, and countless hours of advocacy. Today, that persistence has led to meaningful change.

Today, we celebrate. Tomorrow, we continue the work.

Together, we made history. 💛

#Endometriosis #EndoAdvocacy #HealthEquity #Massachusetts #TogetherWeMadeHistory taken in Massachusetts State House by @endoteamma

120

11

3 months ago

🌼 Welcome to The Endometriosis Alliance of Massachusetts (TEAM)!

March is Endometriosis Awareness Month🎗and we’re honored to (re)introduce ourselves. Founded in 2025, TEAM is dedicated to improving the lives of those with endometriosis through education, advocacy, research advancement, and policy change.

Endometriosis affects millions, yet many face years-long delays in diagnosis, limited access to expert care, and barriers to effective treatment. We believe endometriosis is a serious, whole-person disease that deserves appropriate attention, funding, and systemic solutions here in Massachusetts.

✨ What we do:
• Raise awareness through community education and events
• Promote early recognition and timely diagnosis
• Advocate at the Massachusetts State House for improved treatment access and insurance coverage
• Work with youth, providers, researchers, and families to strengthen statewide understanding of endo

📜 Policy Work in 2025:
TEAM members and volunteers have engaged legislators and supported bills including H4612 and S.1564/S.1638, helping advance conversations around reducing barriers to care and amplifying patient voices.

❤️ Meet Our Co-Founders:
• Dr. Malcolm “Kip” Mackenzie — OB-GYN specializing in advanced excision surgery and education
• Kate Weldon LeBlanc — Policy leader with a background in social work and public administration
• Nicole Tanionos — High school student and patient advocate bringing lived experience to the movement
• Melanie Tanionos — Educator and community advocate focused on systemic change

Our members include patients, loved ones, healthcare providers, researchers, and community partners. Together, we are building a grassroots movement to expand access to expert care and improve outcomes statewide.

📣 This is just the beginning.
Follow along, share this post, and visit the link in our bio to get involved.

#EndoAlly #EndometriosisMA #EndoAdvocacy #EndoAwareness #PolicyForChange taken in Massachusetts by @endoteamma

61

7

7 months ago

TEAM was honored to have the opportunity to speak with medical students from the American Medical Women’s Association @umassamwa at UMass Chan Medical School @umasschan about endometriosis education. 💛

Closing the knowledge gap starts with education. By equipping future generations of healthcare providers with a deeper understanding of endometriosis, its symptoms, and the many ways it can present, we hope to help patients be recognized, heard, and supported sooner.

Every future provider who learns to recognize the signs of endometriosis brings us one step closer to earlier diagnosis and better care.

It was truly an honor to be part of this important conversation. Thank you to AMWA at UMass Chan Medical School for inviting us and for making endometriosis education a priority. 🎗️

#EndometriosisAwareness #EndometriosisEducation #MedEd #FuturePhysicians #EndTheDiagnosticDelay taken in UMass Chan Medical School by @endoteamma

51

5

16 days ago

Boston, you showed up 💛

180+ tickets sold, and we turned the Fenway bleachers yellow to support endo warriors, advocates, family, and friends, and community members everywhere.

Thank you for an amazing night at the ballpark. by @endoteamma

155

10

18 days ago

We’re SO excited to see everyone at the Red Sox game tomorrow! ⚾️💛

Before the game, we’ll be hosting an optional @strikeendoout attendee pre-game meet-up from 5:30–6:15 PM, right in front of the Red Sox Team Store at 19 Jersey Street.

Come say hello, connect with fellow attendees, and take some photos together before we head into the game! 📸💛

And don’t forget to wear YELLOW 💛 or your Strike Endo Out shirt if you have one so we can show up together and make a statement for endometriosis awareness!

We can’t wait to see you all there and Strike Endo Out together! ⚾️💛🎗️

#StrikeEndoOut #EndometriosisAwareness #EndEndo #EndometriosisAdvocacy #RedSox taken in Fenway Park by @endoteamma

85

5

22 days ago

Endo advocacy is stronger when we work together. 🎗️

We’re incredibly proud of Amanda Berg, Secretary of Endometriosis Together New England, whose advocacy with TEAM (The Endo Alliance of Massachusetts) was recently highlighted by Western Mass News as part of the effort to establish a Massachusetts endometriosis task force.

Amanda shared her own experience of developing symptoms at just 13 years old, having those symptoms dismissed, and ultimately waiting nearly two decades for an endometriosis diagnosis. Her story illustrates exactly why systemic change is so urgently needed.

A true auntie extraordinaire, Amanda is doing this work with the next generation in mind, especially her nieces. She’s building a future where they don't have to search for decades for care.

The proposed Massachusetts task force would bring together patients, medical professionals and other stakeholders to examine gaps in endometriosis awareness, diagnosis, treatment, research and access to care. The state is currently vetting candidates to serve on the task force.

We are so proud to have Amanda bring this experience, perspective and commitment to ETNE’s Board.

And Massachusetts is only the beginning.

One of the reasons Endometriosis Together New England was created was to think regionally about problems that don’t stop at state lines. Patients across New England experience many of the same barriers to recognition, knowledgeable care, education and resources.

As TEAM continues this important work in Massachusetts, ETNE looks forward to collaborating with Amanda and TEAM to explore how this model and momentum can be expanded across New England. Connecting advocates while learning from the work already underway.

We don’t need to reinvent good work happening in neighboring states. We need to connect it, strengthen it and help it grow.

Congratulations to Amanda, TEAM, and everyone helping move this effort forward. 💛

📺 Tune into the Western Mass News story:
Endometriosis task force aims to address diagnosis and care gaps.

Massachusetts ➡️ New England. Let’s keep building. 🎗️
#EndometriosisAdvocacy #HealthPolicy #NewEngland by @endoteamma

81

12

24 days ago

We’re so excited for this one 🎷🤍

Join us for the opening night of Jazz Urbane Cafe in Roxbury, MA on Sunday, October 11! We’re so grateful to have endometriosis excision surgeon @antoniogargiulomd joining us as our special guest and speaker for the evening.

The night will also include incredible food by Chef Guara (@savage.against.endo) and jazz, all while coming together for a cause that means so much to everyone involved.

100% of proceeds will go directly toward funding excision surgery for someone who otherwise could not afford it.

Come enjoy an amazing night while helping someone get access to the surgery they deserve!

🎟️ Buy your ticket at the link in our bio!

#BostonEvents #BostonNightlife #RoxburyMA #JazzBoston #EndometriosisAwareness taken in Roxbury, Massachusetts by @endoteamma

53

0

24 days ago

#endo #endowarrior #endowarriors #endoexcisionforall #endometriosis taken in Boston, Massachusetts by @endoteamma

14

3

2 months ago

This come September I’ll be cooking for this amazing event in New York, @flare.endo is promoting with so many artist, to talk everything @endometriosis. So honored and excited to do this. #endo #endoflare #stillshestandthefire #endoexcisionforall #savageagsimstendo where is the link for my cookbook - https://a.co/d/0dDECklm by @endoteamma

26

6

2 months ago

Patients living with endometriosis face OBSTACLES at every stage of their journey.

This week, Massachusetts has taken an important step forward.
With the creation of an Endometriosis Task Force, our state is recognizing what patients have known for decades:
Endometriosis is not simply a gynecologic disease. It is a public health issue.

This Task Force is not structured as a one-time study commission with an expiration date. Rather, it must annually update its summaries of research and access to care, annually update a comprehensive strategic plan and implementation progress, and submit recommendations every year.

Will this solve every problem overnight? No.
But meaningful change begins with recognition, collaboration, and a commitment to do better.

My sincere thanks to Representative Lindsay Sabadosa and Representative Christopher Hendricks for introducing this legislation; Senator Robyn Kennedy, Governor Maura Healey, and all of the legislators, advocates, patients, and organizations whose work helped make this milestone possible—especially the Endometriosis Alliance of Massachusetts (TEAM) for their tireless advocacy on behalf of patients.

💛 What has been the biggest obstacle in your endometriosis journey? What priorities should this Endo Task Force have, in your opinion? I’d be honored to read your story and suggestions in the comments.

Official Massachusetts law (Section 104 – Endometriosis Task Force):
https://budget.digital.mass.gov/summary/fy27/outside-section-all/

Endometriosis Alliance of Massachusetts (TEAM):
https://www.endoteam.org

#Endometriosis #EndometriosisAwareness #EndoWarrior #EndometriosisSupport #WomensHealth PelvicPain HealthcareAdvocacy PatientAdvocacy Massachusetts PublicHealth EndometriosisSurgery ReproductiveSurgery by @endoteamma

919

67

2 months ago

Calling all endo warriors 💛✨

As part of TEAM’s ongoing efforts to highlight the real and compounding impact of delayed endometriosis diagnoses, we’ve launched a patient experience survey 📊🩺

This survey aims to capture the journey from symptom onset to diagnosis—and the many barriers along the way ⏳💔

The findings will help update existing research and strengthen advocacy efforts for critical legislation here in Massachusetts 🏛️, including H.4612 and S.1564/S.1638—bills focused on improving diagnosis timelines, access to treatment, and insurance approvals ⚖️💡

If you have endometriosis—or know someone who does—please consider taking a few minutes to complete or share this survey 🫶📣 Your voice is powerful, and it plays a vital role in building a future with better care for all 💛🌱

🔗 Link in bio At @endoteamma by @endoteamma

35

0

5 months ago