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Frenchy

@francina10

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Artist, civil engineer, crafter, creative explorer, wanderer, and avid reader. Half of @holalalilu. #frenchygvart
👇🏼Art for Sale + Free Resources

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Junio ha sido designado como el Mes Mundial de Concientización sobre la Linfangioleiomiomatosis (LAM, por sus siglas en inglés) por la Coalición Mundial de Pacientes con LAM. La WLAM une a la comunidad global en un esfuerzo colaborativo para educar al público sobre los signos y síntomas de la linfangioleiomiomatosis (LAM), recaudar fondos para apoyar a las mujeres que viven con esta enfermedad y compartir los logros de @thelamfoundation para inspirar a investigadores y médicos a optimizar las terapias y buscar una cura para la LAM.
La LAM es una enfermedad pulmonar rara y progresiva que afecta principalmente a las mujeres y actualmente no tiene cura conocida. Al respirar, el oxígeno viaja a través de las vías respiratorias hasta los pequeños sacos de aire (alvéolos) en los pulmones, donde se transfiere a la sangre a través de pequeños vasos sanguíneos llamados capilares. Sin embargo, las células de LAM, células musculares lisas anormales, obstruyen las vías respiratorias pequeñas y dañan el tejido pulmonar, limitando el flujo de aire y la absorción de oxígeno. Los científicos investigan activamente los mecanismos en los pulmones que conducen a la formación de quistes y al daño pulmonar. Se estima que entre tres y siete mujeres de cada millón se ven afectadas por la LAM. Sin embargo, un estudio de 2023 realizado en cuatro países europeos sugiere que la prevalencia podría ser de al menos 21 casos por millón de mujeres, significativamente superior a las estimaciones previas. LAM Afecta a mujeres de todas las razas y ha sido identificada en más de sesenta países. La edad promedio de diagnóstico es de aproximadamente 35 años y la mayoría de las mujeres experimentan síntomas durante varios años antes de recibir un diagnóstico.
Me diagnosticaron LAM hace 21 años, a los 25. Presento síntomas como dificultad para respirar (disnea), dolor en el pecho (pleuritis), tos crónica, sibilancias y fatiga intensa. A lo largo de los años, también he sufrido complicaciones como quilotórax, neumotórax múltiple (colapso pulmonar), acumulación de líquido abdominal/pélvico, linfangioleiomioma y tumores benignos no cancerosos en el retroperitoneo. Lee más👇🏽
Text in English👇🏽 by @francina10

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4 months ago

Hoy, 28 de febrero, conmemoramos el Día Mundial de las Enfermedades Raras. Más de 300 millones de personas en el mundo vivimos con una condición poco frecuente. Este día es un llamado global a la equidad: acceso justo a diagnóstico, tratamiento, atención integral y participación plena en la vida social y laboral.
Pero en República Dominicana la realidad es otra. No existe un registro nacional de enfermedades raras. No hay datos claros, ni políticas públicas integrales, ni suficientes especialistas. El propio sistema reconoce que los registros son “insuficientes”, y aun así se publican cifras estimadas sin base sólida. Sin datos no hay políticas. Sin políticas no hay derechos.
La Constitución garantiza el derecho a la salud, la dignidad y la igualdad. La Agenda 2030 y los ODS, compromisos asumidos por el país, también exigen no dejar a nadie atrás. Sin embargo, quienes vivimos con enfermedades raras seguimos enfrentando barreras económicas, diagnósticos tardíos y tratamientos inalcanzables.
Y mientras tanto, el país enfrenta uno de los mayores escándalos de corrupción en el sistema de salud: el caso de presunto desfalco al Seguro Nacional de Salud @arssenasard, con miles de millones de pesos que debían garantizar cobertura médica. Recursos que pudieron fortalecer diagnósticos, tratamientos y protección financiera para pacientes vulnerables.
La corrupción en salud no es abstracta. Se traduce en dolor, endeudamiento y pérdida de vidas.
Ayer fue el Día de la Independencia. Hoy, en lugar de orgullo, siento indignación, ira y desesperanza.
Foxtrot, Lima, Alfa, es decir, “eff” @luisabinader y su séquito de corruptos. @presidenciard @saludpublicard @snsrdo @senadord @diputadosrd
Para aprender más, desliza el carrusel.
rarediseaseday.org | thelamfoundation.org #rarediseaseday2026 #díadelasenfermedadesraras #rarediseaseday #rarediseaseawareness #enfermedadesraras by @francina10

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8 months ago

It (only) took me almost a month to finish this painting. I was supposed to paint it in May before LAM Awareness Month, but life got in my way and after getting a pulmonary infection in April, I’m still recovering and have been on 24/7 supplemental oxygen and mandatory rest, making it hard to make anything. Thank you to my sister/carer @valetos because these months have been difficult for her too and to my long-distance doctor @lenina16.
Anyway, June is Worldwide LAM Awareness Month, and this August marks 20 years since my diagnosis. Lymphangioleiomyomatosis (LAM) is a rare progressive lung disease affecting primarily women. It involves abnormal growth of smooth muscle cells and can cause symptoms like fatigue, chest pain ⁣(pleurisy), chronic cough, benign kidney tumours (angiomyolipomas), lung collapse (pneumothorax), shortness of breath (dyspnea), accumulation of fluid called chyle, in the chest cavity or abdomen ⁣(pleural effusion or chylothorax and angioleiomyomas). LAM Awareness Month aims to educate about the disease, raise funds to support patients, and inspire advancements in therapies.
In my 20 years living with LAM, I’ve faced many challenges, I tire easily when walking and often need to take breaks to catch my breath. Climbing stairs, hills, and ramps is particularly challenging. My shortness of breath worsens in extreme cold and hot weather, and carrying heavy objects can leave me breathless. Even bending over and showering can trigger shortness of breath. I’ve experienced chylothorax, which led to my diagnosis, and have had four pneumothoraxes, five chest tubes inserted, two paracenteses, two thoracenteses, a pleurodesis, and a biopsy of cysts in the retroperitoneum (which was how I was ultimately diagnosed).
I hope that by sharing a bit of my experience, I can help you understand this disease better. For more information on LAM, please visit www.thelamfoundation.org and consider sharing this post to raise awareness for Worldwide LAM Awareness Month. @thelamfoundation. #wwlam #wwlam25 #thelamfoundation #lungdisease #raredisease #lammie #hopeisthethingwithfeathers #emilydickinson #frenchygv #frenchygvart
🇪🇸 texto en español en primer comentario. by @francina10

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a year ago

Today, February 28th, we observe Rare Disease Day, a global movement advocating for equity in social opportunities, healthcare, and access to treatments for those living with rare diseases. This day is celebrated on the last day of February, the rarest month. We call for action to ensure that individuals with rare diseases can fully participate in family, work, and social life. The long-term goal of Rare Disease Day is to achieve greater equity for the over 300 million people worldwide affected by rare diseases. To do this, we must advocate for fair access to diagnosis, treatment, and care, as well as comprehensive support for their everyday needs. The UN 2030 Agenda and its Sustainable Development Goals (SDGs) provide a vital framework for addressing the needs of this population. Countries can integrate rare diseases into their Universal Health Care (UHC) models and approaches (those which have it). It is possible to make great progress at a rapid pace even if starting from very little. Governments can focus on 1) extending coverage to people living with a rare diseases by promoting visibility, codification and diagnosis; 2) Including other services and adapting existing ones to the needs of the rare disease population; and 3) Protecting the rare disease population from further financial hardship.
Source: rarediseaseday.org.
To learn more about rare diseases and help visit: rarediseaseday.org and thelamfoundation.org @thelamfoundation @globalgenes @rarediseasedayofficial.
#rarediseaseday #rarediseaseday2025 #rarediseases #thelamfoundation #LAM#frenchygvart #frenchygv #lammie #enfermedadesraras #díadelasenfermedadesraras

🇪🇸 Texto en español en 1er comentario by @francina10

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2 years ago

I also painted (some of) @lenina16’s favorite books for her birthday. Happy birthday lil sis, 🎉 I love you and I’m grateful that you’re my sister. ♥️
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#frenchygv #frenchygvart #digitalpaintingart #procreateartwork #favoritebooks #booklovers #genteansiosa #fredrikbackman #leccionesdequimica #bonniegarmus #atodosloschicosdelosquemeenamore #jennyhan #lacasaenelmarmasazul #tjklune #unhombrellamadoove #latabladeflandes #arturoperezreverte #criaturasluminosas #shelbyvanpelt #librosgram #leermola by @francina10

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2 years ago

I painted (some of) @valetos’s favorite books for her birthday. 📚 Happy birthday sis! I love you and I’m grateful that you’re my sister. ♥️
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#frenchygv #frenchygvart #favoritebooks #digitalartwork #procreateillustration #ladamadelascamelias #alexandredumas #aliciaenelpaisdelasmaravillas #lewiscarroll #lamecanicadelcorazon #matiasmalzieu #delamoryotrosdemonios #gabrielgarciamarquez #lacasadelosespiritus #isabelallende #lainsoportablelevedaddelser #milankundera #elperfume #patricksuskind #comoaguaparachocolate #lauraesquivel #leermola #librosgram #bookishart #virgoseason #septemberbaby #almaeditorial by @francina10

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2 years ago

If you’ve got moxie, you can buy this tee at my @threadless Artist Shop. #moxie #frenchygv #frenchygvart
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#threadless #threadlessartistshops #threadlesstees #threadlessartist #threadlessshop #threadlessartistshop #threadlessdesign #threadlessart #graphictees #graphictee #graphicteeshirt #teelovers #teelove by @francina10

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2 years ago

June has been designated Worldwide LAM Awareness Month (WWLAM) by the Worldwide LAM Patient Coalition. WWLAM brings together the global community in a collaborative effort to educate the world about the signs and symptoms of LAM, raise funds to support women living with LAM and share our global achievements to inspire researchers and clinicians to optimize therapies and find a cure for LAM. Lymphangioleiomyomatosis (lim-FAN-je-o-LI-o-MI-o-ma-TO-sis), or LAM, is a rare and progressive lung disease that affects women almost exclusively and has no known cure. LAM is characterized by an abnormal growth of smooth muscle cells, especially in the lungs, lymphatic system, and kidneys. Abnormal growth of these cells can lead to loss of lung function, accumulation of lymph-rich fluid in the chest and abdomen, and growth of benign kidney tumours. When you breathe, oxygen passes through the airways to tiny air sacs (alveoli) in the lungs, where oxygen transfers into the blood through tiny blood vessels called capillaries. The LAM cells (abnormal smooth muscle cells) cause blockage of the small airways and damage the lung tissue, reducing airflow and oxygen absorption in the blood. Scientists are working to understand the mechanisms at work in the lung that cause the formation of cysts and lung destruction.
It is estimated that for every million women, three to seven will have LAM. However, a 2023 study of four European countries suggests the prevalence is at least 21 cases per million women– substantially higher than prior estimates. All races are affected, and women with LAM have been identified in more than sixty countries. The average age of women at the time of diagnosis is approximately 35 years old. Most women with LAM have had symptoms for several years before ultimately being diagnosed.
To learn more about LAM and to donate, visit @thelamfoundation. You can also help spread awareness by sharing this post. Thank you.
Source: The Lam Foundation. #wwlam #lamawarenessmonth #rarediseaseawareness #wwlam2024 #lammie #lymphangioleiomyomatosis #hopeisinmygenes #esperanza
🇪🇸 texto en español en primer comentario by @francina10

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2 years ago

“Así, la mente joven y fuerte de Matilda siguió creciendo, alimentada por las voces de todos aquellos autores que habían enviado sus libros al mundo como barcos en el mar. Estos libros le dieron a Matilda un mensaje esperanzador y reconfortante: no estás sola”. - Roald Dahl, Matilda. ♥️ 📚 #leernoshaceiguales
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¡Feliz Día del Libro y San Jorge! 🌹🐉 📖 #santjordi #santjordi2024 #diadellibro
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“So Matilda’s strong young mind continued to grow, nurtured by the voices of all those authors who had sent their books out into the world like ships on the sea. These books gave Matilda a hopeful and comforting message: You are not alone.” - Roald Dahl, Matilda. ♥️ 📚
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Happy International Book Day and Saint George! 🌹 🐉 📖 #booksconnectus
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#bookday #internationalbookday #worldbookday #leernoshacelibres #leernoshacemejores #readingismagic #readingisfundamental #matilda #roaldahl #bookworm #booknerd #booknerdigans #bookaddict #bookaholic #igreads #igbooks #instabook #bookgram #somoslectores #leeresvivir #leeresvida #leermola #hoyleemos #librosgram #vivoleyendo by @francina10

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2 years ago

Today is Rare Disease Day and if you didn’t know I suffer from a rare pulmonary disease called Lymphangioleiomyomatosis (LAM) which has been a physical, emotional, and financial challenge for me and my family, and that’s why I am passionate about advocating for awareness about rare diseases. Rare Disease Day is the official international awareness-raising campaign for rare diseases, observed annually on the last day of February. The primary goal of this campaign is to increase awareness among the general public and decision-makers about rare diseases and their influence on the lives of families living with these conditions. On Rare Disease Day we call for action for people living with a rare disease to have equal opportunities to realise their full participation in family, work and social life. The long-term goal of Rare Disease Day over the next decade is increased equity for people living with a rare disease and their families. We join hands across borders and amidst the 6000+ rare diseases to advocate for equitable access to diagnosis, treatment, care, and social opportunities. In order to achieve equitable social inclusion for people living with a rare disease, they must first have access to holistic care covering the 360° spectrum of health, social and everyday needs as argued in a EURORDIS position paper on Achieving Holistic Person-Centred Care to Leave No One Behind. Governments can focus on 1) extending coverage to people living with a rare diseases by promoting visibility, codification and diagnosis; 2) Including other services and adapting existing ones to the needs of the rare disease population; and 3) Protecting the rare disease population from further financial hardship.
Source: rarediseaseday.org.
To learn more about rare diseases and help visit: rarediseaseday.org and thelamfoundation.org. #rarediseaseday #rarediseaseawareness #rarediseaseday2024 #showyourstripes #diadelasenfermedadesraras #rarelungdisease #lymphangioleiomyomatosis #frenchygvart

🇪🇸 texto en español en primer y segundo comentarios. by @francina10

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3 years ago

These are my favorite books of 2023 in no particular order. I love them all and highly recommended them. 📚 ♥️ #2023favoritebooks #frenchygvart

- After that Night by Karin Slaughter.
- The Last Devil to Die by Richard Osman.
- The Guncle by Steven Rowley.
- Weyward by Emilia Hart.
- The Wishing Game by Meg Shaffer.
- The Celebrants by Steven Rowley.
- Remarkably Bright Creatures by Shelby Van Pelt.
- The Grace of Wild Things by Heather Fawcett.
- How Winston Delivered Christmas by Alex T. Smith.

It was my first time reading Steven Rowley and both books of his I read made it into the list so he may become a new fave author; two books were the latest installments of two of my fave mystery/thriller series; one included the point of view of an octopus (who was actually my fave character); two are “children’s books”; and at least four revolve around the theme of grief, about which I’ve found I enjoy reading.

🇪🇸 Español en primer comentario.

#frenchygv #afterthatnight #karinslaughter #thelastdeviltodie #richardosman #theguncle #stevenrowley #weyward #emiliahart #thewishinggame #megshaffer #thecelebrants #remarkablybrightcreatures #shelbyvanpelt #thegraceofwildthings #heatherfawcett #howwinstondeliveredchristmas #alextsmith #booknerdigans #bookaddict #somoslectores #leeresvivir #leeresvida #leermola #hoyleemos #librosgram #vivoleyendo by @francina10

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3 years ago

Happy birthday to my #vintage1981 special edition sister, @lenina16. 👁️ ♥️ U.
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#novemberbaby #scorpiowoman #vintageaesthetic #retroaesthetic #vintagetype #vintageillustration #vhsaesthetic #vhstapes #movielover #movielovers #frenchygv #frenchygvart by @francina10

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3 years ago