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🌟Growing Up With Harper Mae🌟

@growingupwithharpermae

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💛Growing up with Spina Bifida
💜Chiari II Malformation
💙Hydrocephalus
❤️Disney Princess Spreading Magic
🧡Perfectly and Wonderfully Made
💚DM for Collab

POSTS STORIES REELS TAGGED

A loose tooth, a lot of courage, and her baby brother - the one person she trusted to help. 🤍

#SiblingLove
#GrowingUpWithHarperMae
#ChildhoodMoments
#FamilyTrust
#Spinabifida by @growingupwithharpermae

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9 months ago

The other day Harper let me know she had a bad day at school because another child made fun of her for how she walks and for needing a walker. Because of this, at first, she wasn’t feeling up to taking photographs of a new pattern we tested. After seeing her new shirt though and trying it on, Harper got excited and insisted she was ready for photos. So what did I do, I grabbed Harper’s walker and played her this short clip of music to remind her that “All the pretty girls walk like this….”

Thank you @booandlupatterns for giving us the opportunity to test the new Willow pattern. This shirt gave so much life to our cutie on a day that she was down. She loves her new shirt so much that she even tried to wear it everyday since trying it on for the first time.

#spinabifida #spinabifidamom #spinabifidaparent #spinabeautiful #spinabifidaawareness #spinabifidastrong #hydrocephalus #hydrocephalusawareness #chiari #chiarimalformation #alltheprettygirlswalklikethis #booandlu #willow #patterntester #kidmodel #model #stronggirls #adaptive #hypotonia #germany #bestdayever #adventureisoutthere by @growingupwithharpermae

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3 years ago

Most little girls dress up as Cinderella… Harper wanted to be Anastasia. 💕😂

And when Anastasia spotted her little look-alike at Disneyland Paris, she absolutely LOST IT! 🥹💗

#DisneylandParis #Cinderella #DisneyHalloween #SpinaBifida #DisabilityAwareness taken in Disneyland Paris by @growingupwithharpermae

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a day ago

Apparently Cruella found herself a new apprentice… and Harper came prepared with her very own Dalmatian. 😂🖤🤍🐾

Poor Beckham had no idea what he’d signed up for.

#DisneylandParis #CruellaDeVil #DisneyHalloween #SpinaBifida #DisabilityAwareness taken in Disneyland Paris by @growingupwithharpermae

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3 days ago

Last time, Beckham decided Harper’s wheelchair was a two-seater.

This time, Harper decided she was riding on HIS lap. 😂❤️

Apparently these two have their own seating arrangements.

#SiblingLove #SiblingAntics #WheelchairLife #SpinaBifida #GrowingUpWithHarperMae by @growingupwithharpermae

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6 days ago

Beckham found a broom in someone’s trash and immediately decided he had unfinished business with his big brother. 😂🧹

The timing with this audio is sending me. 🎃

#SiblingChaos #LittleBrotherEnergy #ParentingHumor #HalloweenHumor #GrowingUpWithHarperMae by @growingupwithharpermae

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8 days ago

All I wanted was one nice family photo. Just ONE. 😂

Apparently that was asking a little too much.

#FamilyPhotoFail #FamilyLife #ParentingHumor #RealLifeMoments #GrowingUpWithHarperMae taken in Magic Kingdom by @growingupwithharpermae

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10 days ago

Just Harper doing Harper things. 💪😂

#GymnasticsKids #AdaptiveAthlete #SpinaBifida #DisabilityRepresentation #GrowingUpWithHarperMae by @growingupwithharpermae

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13 days ago

Apparently no one told Beckham that his sister’s wheelchair only came with one seat. 😂

At this point, I’m pretty sure he considers the front of Harper’s chair his assigned spot. ❤️

#SiblingLife #WheelchairLife #SpinaBifida #SiblingLove #GrowingUpWithHarperMae by @growingupwithharpermae

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16 days ago

When you can’t pick a favorite sister… you become both. 😂💚🩷

Harper’s half Anastasia, half Drizella dress might be one of my favorite Disney looks she’s ever done — and their reactions made it even better. 🥹

#DisneylandParis #AnastasiaAndDrizella #DisneyBound #DisneyKids #GrowingUpWithHarperMae taken in Magic Kingdom by @growingupwithharpermae

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22 days ago

Some people customize their cars. Harper has other priorities. 😎♿️💜

And honestly… her ride is cooler anyway.

#WheelchairLife #SpinaBifida #DisabilityRepresentation #AdaptiveKids #GrowingUpWithHarperMae by @growingupwithharpermae

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25 days ago

She thought we were just squeezing in one last morning at Hollywood Studios before our flight home this summer. 🥹

What she didn’t know was that one of her sweet friends from Disneyland Paris had just gotten off a cruise ship and came to the park to surprise her. ❤️

For the second year in a row, Harper had absolutely no idea she was about to see her. Watching the exact moment she realizes who’s standing there… and then that hug. 🥹❤️

#WaltDisneyWorld #HollywoodStudios #DisneyMagic #DisneyFriends #GrowingUpWithHarperMae taken in Disney's Hollywood Studios by @growingupwithharpermae

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a month ago