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🎗️Fighting DIPG with my little warrior Miles, LA living, cheese lover, Rizzoli book editor 👦 🌮✊🏾🍷🙅🏻💋🌾🌞🏙☠📕📗📘🇲🇽
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A summer update from our family: We just came back from an unforgettable, week-long trip to beautiful Monterey, CA made possible by the incredible @makeawishlosangeles . It was a dream—Miles, a beach lover and ocean-animal enthusiast, was mesmerized by the exhibits at @montereybayaquarium , exploring the tide pools in Pacific Grove, hiking trails in the Point Lobos Natural Reserve, and digging for treasures in the beaches of Carmel. We all had the time of our lives. Miles is feeling so good, full of energy, in summer school, on the brink of reading. We couldn't ask for more 🙏 Jacob and I continue to keep the faith alive and feel blessed for how great Miles has been feeling.

If you feel compelled to, please share his story and this GoFundMe link (in my bio). Miles is one of hundreds of beautiful kids battling this cruel cancer and we need awareness, research, and a cure, not temporary-treatment. #dipgwarrior #pediatricbraincancer #StandwithMiles #dipg taken in Monterey Bay by @gtron
8
3 months ago
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Our beautiful community showed up today in person and virtually to support Mighty Miles and our family in benefit of @chadtoughdefeatdipg and their annual RunTough event to raise funds for furthering DIPG research so we can one day find a cure. This group of beautiful families and friends have lifted us up with their love and care since Miles’s DIPG diagnosis this past February and we can’t begin to express how much joy, compassion, and friendship we felt today. We love you all and we thank you from the bottom of our hearts.

#runtough4chadtough #dipgwarrior #dipgawareness #pediatricbraincancer #StandwithMiles taken in Los Angeles, California by @gtron
4
11 days ago
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Tomorrow, September 26th, from 9am-11am (in the San Gabriel Valley region) we will be walking for our Mighty Miles and in support of @chadtoughdefeatdipg , an organization that has provided our family with so much support through their @mydipgnavigator program.

If you are in the area and would like to say hi, we would love to see you. Please DM me so I can send you the location details❤️🎗️

#StandwithMiles #runtoughforchadtough #dipgwarrior #braincancerawareness #pediatricbraintumor by @gtron
4
12 days ago
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The celebrations continued this weekend for Miles’s 5th birthday with an epic bug party at home with all his pals. An unforgettable day with the most amazing community of families. Thank you all for coming and thank you to the creator of magic, my sister @katacumbia for helping plan an incredible party. 

The cake was scrumptious @robbielynnbakes , the assassin piñata was a work of art @thepinatahouseofficial and a big shout out to @the_bug_gals for sharing all the cool bugs with our crew 🐛🕷️🐜🦂🎉 by @gtron
16
24 days ago
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Felicidades mi amor, happy 5th birthday to our beautiful soul, the love of our lives, the boy who brings us all the joy in the world. by @gtron
14
a month ago
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Today our Mighty Miles was so excited to go back to his beloved preschool for the first day of fall semester. We are so grateful that with the help of his various medical teams, he is feeling good and ready to be back with his friends.

Today is also the first day of Childhood Cancer Awareness Month, and our family wants to honor all the kids and their families facing cancer, fighting for cures, those angels who have passed on, and strive to keep raising awareness, having discussions, and showing you first hand how DIPG cancer is affecting our family.

Kids with cancer deserve our attention, our voices, and our unwavering support, and the more we see and know the children behind these "rare" statistic numbers, the more childhood cancer doesn't feel as "rare," and hopefully the need to do something about it becomes pretty hard to ignore, as well.

#childhoodcancerawareness❤️ #DIPGwarrior #pediatricbraincancer #StandwithMiles #dipgresearch by @gtron
8
a month ago
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Friends and family: Please help us support the fight for a cure for the deadliest pediatric brain cancer: DIPG. Our family is participating virtually in the RunTough for ChadTough Defeat DIPG 5K event (which is in Michigan) to raise awareness for this incurable cancer. With your help, your donations will be used to fund essential research for treatments and a cure for childhood brain tumors through @chadtoughdefeatdipg , a 501(c)(3) nonprofit. You can participate virtually from anywhere and/or donate directly through the link in my bio. If you register/donate, please do so under Team Miles Lehman. 

For those local to LA, on Sept. 26, I am organizing a community RunTough walk from 9am-11am in the San Gabriel Valley. If you register before Sept. 2, then you'll get a t-shirt which we'll all be wearing that day. If you can make it, please DM and I can send details.

Thank you from Miles, Gisela, and Jacob ❤️

#DefeatDIPG #Dipgawareness #pediatricbraincancer #dipgwarrior #runtoughforchadtough taken in Los Angeles, California by @gtron
6
a month ago
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RunTough for ChadTough Defeat DIPG is coming up on Sept. 27th, and we need your help to turn the map orange.

@chadtoughdefeatdipg is on a mission to have RunTough participants in all 50 states and raise awareness nationwide for the fight against DIPG.

I have registered for the Virtual 5K run and created Team Miles Lehman. I urge you to join our team by registering at the link in my bio. You can run, walk, or simply support Miles and our family, and the countless other families facing this devastating brain cancer. To my local LA friends and school mamas, I would love to meet up with you somewhere we can take a good walk in support of this amazing organization that has personally helped us through their @mydipgnavigator free resource. Can’t thank nurse Mary enough for guiding us through these overwhelming waters. 

Every registration helps support groundbreaking research to find a cure for DIPG and provide support to families facing this devastating diagnosis.

Make an impact, represent your state, and help spread the word about DIPG by registering at runsignup.com/runtough. The link is also in my bio. 

#RunTough #ChadTough #DefeatDIPG #standwithmiles #dipgwarrior by @gtron
0
2 months ago
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An update: Miles has been having a beautiful summer. We traveled to the UK to visit his grandparents, spent time up and down the California coast, and next we’re heading to Mexico City to be with my family. In between travels Miles has been loving summer school with his angel teacher Miss A., making memories with his friends, and getting into mischief with his BFF/cousin, Zoe. Our Mighty One is full of energy, growing taller, and overflowing with joy. We’ve witnessed the incredible gift and true miracle of seeing him feel so well after radiation—something that, heartbreakingly, many children with DIPG never get to experience.

Earlier this week Miles had an MRI, and today we received the results. It’s not the news we had hoped for: his tumor has started to grow since his last MRI in May. The encouraging part is that his oncologist believes we caught the progression early, and we have an immediate plan to proactively address it. Despite what the MRI shows, Miles continues to amaze us with how strong and vibrant he is. He is truly a warrior. We will keep taking this journey one day at a time and, through all the uncertainty, waiting, and fear, we will continue to lead with love. 

Please keep us in your thoughts and prayers and if you can share Miles’s story via his GoFundMe (link in my bio), we’d be most grateful. 

#dipgwarrior #StandwithMiles #pediatricbraincancer #dipgawareness #dipgdmg by @gtron
10
2 months ago
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Life in Yorkshire lately…. taken in Brimham Rocks North Yorkshire by @gtron
4
4 months ago
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Greetings from Yorkshire! Visiting the English countryside to see Miles’s beloved grandparents @haregill and @ellcote ❤️🐑🏞️🇬🇧 by @gtron
4
4 months ago
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Life lately…Miles has been in excellent shape these past 10 weeks since he finished his radiation treatment. It’s been a true miracle. Jacob and I are riding the wave of emotions everyday, but are focused on how happy and super active our warrior is, busy in summer school and with the road trips we’ve taken lately. Our most recent trip was to my dear friend Heather’s cabin in Idyllwild @heathertaylorcabin . Her cabin is what dreams are made of and if you’re near LA, you must stay here. Thank you Heather and Alex for making our cabin in the woods dream come true. We’ve moved house, spent time with family and friends, and will visit Miles’s grandparents in the English countryside this month. 🙏🏼🙏🏼

#dipgwarrior #pediatricbraincancerawareness #StandwithMiles #dipgdmg #blessed by @gtron
14
4 months ago
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