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@halfway2dead

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That Severe Complex Chronic illnesses & Disabilities Life…or Something Like it
Help Me Exist ⬇️

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Floor time with Conehead to reset my spine back into place. Hurts so good.

*Apologies for the lack of accessibility, I do not have the capabilities* by @halfway2dead

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4 months ago

Don’t like people staring at you when you use your powerchair? Place an animal or two in your lap, and you will cease to exist. I am not a chair user, I am The Chi Mobile.

*Apologies for the lack of accessibility, I do not have the capabilities at this time* by @halfway2dead

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4 months ago

I’ve been avoiding making an update because I didn’t get the thing I was hoping for, which was an apartment with both sunshine and a balcony - of which I have neither, because it would do wonders for all of our mental health and happiness. But despite my excellent application, I was denied entirely due to society’s/the Owners’ discrimination against disability recipients, which is so frustrating and defeating to be punished when I’ve done nothing wrong.

*Apologies for the lack of accessibility, I do not have the capabilities at this time* by @halfway2dead

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4 months ago

Rollin’ with my homies.

We had a meeting about a possible big change coming soon, but we won’t know if it’s happening or not for a few days. Please send any and all spare good vibes our way.

*Apologies for the lack of accessibility, it is beyond my capabilities at this time* by @halfway2dead

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4 months ago

I am not housebound, I am snugglebound.

*apologies for the lack of accessibility, I do not have the capacity for it at this time* by @halfway2dead

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5 months ago

8 years in, and I’m finally starting to feel like I’ve figured out how to live an almost entirely crash free life with ME, as well as begin to heal myself from severe to almost moderate.

It started with acknowledging that absolutely everything takes energy; every single thing we see, hear, smell, touch, feel, think, say and do makes a difference. This might seem simple, but it’s anything but when you consider that every single thought you have takes energy, every word you see or hear takes energy, every single motion your eyes register takes energy, every single feeling you have, every smell you encounter… Every-fn-thing.

Listening to my body is how I decide what can stay and what goes, if something (or someone) causes any detrimental symptoms, such as a headache, tense muscles, insomnia, nausea, anxiety, or big emotions of any kind at any time, it’s automatically out. It took a lot of boundary setting and some life changes, but it’s working and it’s so worth it. The only time I crash anymore is when it’s truly unavoidable such as an in person medical appointment, but even then it’s pretty mild.

*apologies for the lack of accessibility, I do not have the capacity at this time* by @halfway2dead

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5 months ago

Is life with Severe ME easy? Fk no. But it doesn’t have to equal suffering either. Accepting that my energy is extremely limited, learning to live within the means of what my body can do, and setting a whole bunch of very difficult boundaries, have made a world of difference in the quality of my life. Aside from moving, which was unavoidable, I haven’t had a crash in months, nor do I plan to have any in the future if I can help it. Because with ME, every single crash makes you permanently worse, and nothing is more important to me than my health. Not money, not people, not even my animals, because if I don’t take care of myself, I cannot properly care for them either. It has taken me 7 years to get here, but I now know without a doubt, that the only way to escape the hell that ME can be, is to admit defeat to it. by @halfway2dead

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a year ago

That’s because my illnesses are on the inside Linda, where most of my body is by @halfway2dead

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a year ago

It’s so strange to me that most people think of mobility devices as negative, shameful or embarrassing. My powerchair gives me freedom to go where I need to, and best of all I can take my best friend on adventures in the fresh air and sunshine anytime we want. by @halfway2dead

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a year ago

Anyone who has ever been diagnosed with dysautonomia of any kind knows the first thing you’re told is to consume all the salt. Which I did at first, so much so that salty foods - once a favourite of mine, started to become repulsive. And even still I was constantly dizzy and fainting. And then I discovered the magic of celery, just one stalk a day in my morning smoothie, and I haven’t gotten dizzy or fainted in years - except when I run out and miss a few days. My heart rate is still too low normally, and goes wild with positional changes, but that was the same with salt, and is much more manageable than fighting consciousness and gravity. Plus there’s no potentially dangerous side effects of consuming celery like there is mass amounts of salt. I am not a doctor, this is just my personal experience. by @halfway2dead

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a year ago

Ever since I was able to escape from the toxic wasteland known as @torontohousing my health has been improving, so much so that I was able to listen to music today for the first time in a year. I’ve been working on my healing journey for a long time, but being forced to live amongst pests and poisons while being stalked by an employee for 8 long months, I was fighting a losing battle. And now that I’m free, I can finally tell that the things I have been doing really are helping. I don’t believe I’ll ever truly be cured, but I am now certain that I can heal the parts of me that are in my control. by @halfway2dead

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a year ago

In my travels this week I came across a person with no shoes, so I gave them mine. I am not posting this for accolades, because quite frankly they make me uncomfortable, but to show that it is always possible to help others, even when you have very little like I do. We cannot wait for our governments to help us, we must help each other, and it’s as simple as giving what you can and receiving what you need. We are all on this planet together after all. by @halfway2dead

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a year ago