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HDSA's National Youth Alliance

@hdsa_nya

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Supporting and connecting those impacted by #HD 💙 and #JOHD 💜

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Still reminiscing on our amazing retreat in Salt Lake City, Utah! Counting down the days until we see you in Florida!

While at retreat we worked together to create the best playlist ever! Click the link in our bio to find it on Spotify! What songs do you think we should add? 🤔

#huntingtonsdiseaseawareness #youthretreat #spotifyplaylist #curehd #careforrare by @hdsa_nya

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8 days ago

Community begins when someone reaches out, and you say, "You are not alone". Today, we honor HDSA's founder, Marjorie Guthrie, by doing what she showed us was possible. Reach out. Connect. Speak up. Advocate. And support every person and family impacted by HD & JHD. Peace & Love, Marjorie. #neverstopfighting #HDSA #advocacy #HDAwareness #JHDawareness #Guthrie #queen #ohana #cchd by @hdsa_nya

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a month ago

Want in on the fun? Sign up for a Team Hope Walk for FREE today! Click the link in our bio to find one near you 😚 by @hdsa_nya

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a month ago

Suicide is a sensitive, but important, topic we need to acknowledge within the HD community. You are not alone and you never will be, no matter how heavy your days feel. Please reach out to one of the numbers below if you are in need of support

HDSA Helpline: 1-800- 345-4372
Suicide and crisis hotline: 988
Text crisis line: Text HOME to 741741

We are here for you Ohana 💜

#mentalhealthawareness #huntingtonsdisease #suicideprevention #takecareofeachother by @hdsa_nya

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a month ago

Click the link in our bio to sign up for our retreat in Orlando, Florida on November 6–9th! We’ll see you on the beach 🌺

#huntingtonsdisease #ohana #retreat #letstalkabouthd #hdsafamily by @hdsa_nya

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a month ago

Many of us already know the weight of grief and don’t need reminders, but today we honor that weight even more. I hope you feel seen, heard, and validated in our Ohana. If you need support please call our hotline at 1-800- 345-4372 or email memerick@hdsa.org for ongoing support. We love you

#nationalgriefawarenessday #grief #huntingtonsdisease #raredisease by @hdsa_nya

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2 months ago

Join us for the next NYA Retreat! Link in bio for more information and to apply! 💜 by @hdsa_nya

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2 months ago

Looking for a Team Hope Walk near you! Click the LinkTree in our bio to search for events in your area! We hope to see you there!

#walk #hope #community #huntingtonsdisease #cure by @hdsa_nya

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2 months ago

Not everyday is sunny and bright, some have clouds that weigh over us. Here’s some reminders in hopes to clear the clouds and help you see today. Take care of yourself Ohana

#mentalhealth #huntingtonsdisease #raredisease #reminders #ohana by @hdsa_nya

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2 months ago

Thank you for letting us in Ohana, we love you 💙💜

#huntingtonsdisease #ohana #support #youthgroup #raredisease by @hdsa_nya

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2 months ago

Being a part of the HD community is so hard, but also sometimes kind of a vibe 💅🏼

#huntingtonsdisease #kindachic #socialwork #awareness #advocacy by @hdsa_nya

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2 months ago

What’s your elevator speech when people ask about HD?

#huntingtonsdisease #tiktoktrend #letstalkabouthd #raredisease #awareness by @hdsa_nya

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2 months ago