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HDSA Greater NY Chapter

@hdsanyc

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Greater New York Chapter. Volunteer-led. Bringing awareness to Huntington's Disease in NYC. #hdsanyc

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Joining us in person Saturday? Find us at Pier 45 at the end towards the water. Forecast is warm and sunny! Bring the kiddos and doggos. Any questions? DM us!

Link in Bio to register or donate!
#curehd #huntingtonsdisease #letstalkabouthd #hdnyc #hdawareness by @hdsanyc

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24 days ago

Totally chic to be a part of the largest fundraiser for Huntington's Disease in NYC! Join us September 19th at Pier 45 to walk for HD. Link in bio: You can create a team, join a team, or simply donate if you cannot join us in person!

#letstalkabouthd #huntingtonsdiseasenyc taken in Pier 45 Hudson River NYC by @hdsanyc

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2 months ago

Why do you walk? Who do you walk for? Tell us at Team Hope Walk on Sept 19th. Create a team or donate today @ Link in bio.

We will be at Pier 45 this year! One pier south of where we typically are at Pier 46. Come to very end of the pier for the walk and activities.

DM us with questions!

#curehd #huntingtonsdisease #letstalkabouthd #familyiseverything by @hdsanyc

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2 months ago

So join us September 19th at Pier 45 to walk for #HuntingtonsDisease at Team Hope Walk NYC. Soak up the sun, have some snacks, and walk! Link in bio.

#letstalkabouthd #hdawareness #nyc #pier45 taken in Pier 45 Hudson River NYC by @hdsanyc

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3 months ago

Team Hope Walk is in a few months! It's never too early to register your team! Link in bio. 💃🏻 💙

#huntingtonsdisease #curehd #familyiseverything by @hdsanyc

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3 months ago

Team Hope NYC is Sept 19th! Create or join a team @ Link in Bio 🙌🏼💙

#curehd #familyiseverything #huntingtonsdiseaseawareness taken in Pier 45 Hudson River NYC by @hdsanyc

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4 months ago

Celebration of Hope: La Dolce Vita 2026. We celebrated HD Awareness month with good friends, good food, and good wine. #hdawarenessmonth #curehd #familyiseverything Photos by @brianpcreative by @hdsanyc

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5 months ago

La Dolce Vita 🍹 Photo drop 1 taken in Home Studios by @hdsanyc

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5 months ago

Throwback to 2025 Celebration of Hope! Join us this year on May 6th for our La Dolce Vita theme. Ticket link in bio! taken in Home Studios by @hdsanyc

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5 months ago

Want to connect with others who are affected by HD? HDSA offers virtual support groups at 6:30pm ET on the second Tuesday and Thursday of each month. Link in bio to register by @hdsanyc

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5 months ago

🍋🍋💙 We're one week away! Get your tix - link in bio.
Italian food from staple spots across NYC, Italian wines, aperol spritz, bocce ball, a DJ and dancing.

This is what fundraising can look like. #nycharity
#curehd #huntingtonsdiease #huntingtonsdiseaseawareness by @hdsanyc

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5 months ago

On Monday, April 13, we are calling on you to help ensure that members of Congress hear directly from the Huntington’s disease (HD) community by phone and/or email.

We are asking you to contact your Senators and Representative using the message below.

“Why this matters:
Huntington’s disease is a fatal, inherited brain disorder with no treatments that slow or stop its progression. But for the first time, there is real hope. Multiple potential therapies are in the pipeline, and we must ensure that unnecessary delays do not stand in the way of patients accessing them.”

To find out more about the Huntington’s Disease Day of Action including contact info for your Congress members, visit https://hdsa.org/hddayofaction/

#HDSADayOfAction #OneHDSA #HuntingtonsDisease by @hdsanyc

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6 months ago