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Leon Shklyarevskiy

@help.leon.sma.eng

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followers

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Leon , SMA - 1 type , 28/10/2026
fundraiser for ZOLGENSMA (100% raised)
We did it!
Main Page @help.leon.sma

POSTS STORIES REELS

COLLECTION TOTALS REPORT
For 22.10.26 – 23.10.26
RECEIVED (card 8352) Aloqabank: UZS
RECEIVED (card 3315) Aloqabank: UZS
RECEIVED (card 6036) Aloqabank: $29.54
RECEIVED (card 8416) Aloqabank: $50
RECEIVED (Sberbank): 2,519,303.15 ₽
RECEIVED FOUNDATION “Star in the Palm” (Russia): 90,044,295.32 ₽
Collected in UZS (cards): UZS
Collected in $: $79.54 (951,736.67 UZS)
Collected in ₽: 92,563,598.47 ₽ (13,510,582,832.68 UZS)
Amount collected in 24 hours: 92,521,198.60 RUB
❗️ TARGET AMOUNT: 135,000,000 RUB
TOTAL collected all-time: 135,000,000 RUB
Goal of collection: The drug Zolgensma
💰 The amount may change daily due to the Central Bank exchange rate. by @help.leon.sma.eng

We did it ❤️ thank you all for helping Leon live by @help.leon.sma.eng

#monday. Please help us save our baby ❤️ https://gofund.me/a63b2729e by @help.leon.sma.eng

Please help me save my baby! We live in Uzbekistan and our health insurance doesn’t cover the medication my 5 month old baby needs… he is diagnosed with SMA type 1 and he needs a medication called zolgensma for gene therapy. This is his only chance to survive. please l am desperately asking you for help! I just want my baby to live! He just started his life i am begging you 🙏 all the documents and diagnosis available in bio, the money is collected by a fundraising organization @smadmdkids.nl and will be transferred to the hospital once the goal is reached. You can donate via gofundme or paypal.. but there are other ways that you can help if you cannot help financially, please follow this page, and engage as much as you can with my videos 🙏 i cant do this alone i am so scared by @help.leon.sma.eng

Please Don’t Scroll Past Leon
Meet Leon, a beautiful 5-month-old baby boy from Tashkent, Uzbekistan.
Leon came into this world surrounded by love. Like every parent, his family dreamed of watching him grow, smile, play and discover life. But only a few months after his birth, they began to notice that Leon was becoming weaker instead of stronger.
After medical examinations and genetic testing, his family received the diagnosis no parent is ever prepared to hear:
Leon has Spinal Muscular Atrophy Type 1 (SMA Type-1).
SMA is a serious genetic neuromuscular disease that progressively weakens the muscles responsible for movement and, in severe cases, can also affect swallowing and breathing.
Leon is only 5 months old, and time is extremely important.
Leon urgently needs access to Zolgensma
Zolgensma is a one-time gene therapy for SMA, and early treatment can be critically important in helping children preserve as much motor and muscle function as possible.
The estimated cost of Leon’s treatment is approximately $1.6 million.
For one family, this amount feels impossible.
But if thousands of people stand together, the impossible can become possible.
🙏 Please help Leon.
Every donation — large or small — brings him one step closer to treatment.
If you are unable to donate, please share Leon’s story. One share may reach the person who can make a life-changing difference.
💙 Let’s give Leon the chance to grow up, play, smile and experience the childhood he deserves.
Donate. Share. Be part of Leon’s hope.
📲 Instagram: @help.leon.sma & @help.leon.sma.eng
Medical reports and supporting documents are available for transparency and verification.
Thank you for standing with Leon.

Every day matters. Every share matters. Every donation matters. 💙

Help us meet our goal
We’re raising money to make a difference and further our cause. To meet new challenges, we’ve set up this campaign with a goal of 1.600.000 €.

With your help, Stichting SMA & DMD KIDS can reach this goal and continue the work we’ve set out to do in this campaign.

Please help if you can. Every donation makes a difference by @help.leon.sma.eng

Today we want to share the guest story of Leon @help.leon.sma.eng @help.leon.sma, a 5-month-old baby boy from Uzbekistan🇺🇿 living with Spinal Muscular Atrophy Type 1 🧬

Although @birdsforsofia programs do not cover SMA/DMD-class medications, we simply could not stand aside when we heard Leon’s story. Solidarity means amplifying every rare voice 🙏

At an age when life is supposed to be about first smiles, Leon’s family received a devastating diagnosis that changed everything: a homozygous deletion of exons 7–8 in the SMN1 gene. #SMAType1 is the most severe and rapidly aggressive form of the disease. Without early treatment, progressive muscle weakness compromises breathing and swallowing early in infancy ❗️

Therefore, since July, Leon has been receiving daily #Risdiplam to slow disease progression. Currently, his motor functions are preserved, but symptoms are already creeping in: Leon breathes through abdomen, and the left side of his chest is beginning to recede. His parents work tirelessly conducting daily chest physiotherapy and using an Ambu bag to keep lungs expanded 🫁

Leon’s biggest hope is a single, one-time dose of gene therapy, Zolgensma by @novartis, which works directly at the genetic level by replacing the primary missing SMN1 gene. Administering Zolgensma before 8 months of age delivers the most profound, life-altering outcomes, allowing children to achieve milestones like sitting, standing, and breathing independently 🦾✨

Because Uzbekistan does not offer a free state access program for gene therapy, Leon’s family is forced to fundraise for commercial Zolgensma on their own. The cost of the therapy is astronomical, far beyond what any family could ever afford alone.

So far, his family has managed to raise 27% of the required total 🆘

Meanwhile, Leon is approaching 6 months old, and the window to deliver this treatment at its peak effectiveness is closing fast.

If you’d like to support Leon directly, follow his journey, donate or share his official Instagram page:

🧬 @help.leon.sma
🧬 @help.leon.sma.eng

Even a small donation, a repost, or sharing his story with your network can help this family race against the clock 🕊️

Thank you!♥️ by @help.leon.sma.eng

Please Don’t Scroll Past Leon

Meet Leon, a beautiful 5-month-old baby boy from Tashkent, Uzbekistan.

Leon came into this world surrounded by love. Like every parent, his family dreamed of watching him grow, smile, play and discover life. But only a few months after his birth, they began to notice that Leon was becoming weaker instead of stronger.

After medical examinations and genetic testing, his family received the diagnosis no parent is ever prepared to hear:

Leon has Spinal Muscular Atrophy Type 1 (SMA Type-1).

SMA is a serious genetic neuromuscular disease that progressively weakens the muscles responsible for movement and, in severe cases, can also affect swallowing and breathing.

Leon is only 5 months old, and time is extremely important.

Leon urgently needs access to Zolgensma

Zolgensma is a one-time gene therapy for SMA, and early treatment can be critically important in helping children preserve as much motor and muscle function as possible.

The estimated cost of Leon’s treatment is approximately $1.6 million.

For one family, this amount feels impossible.

But if thousands of people stand together, the impossible can become possible.

Please help Leon.

Every donation — large or small — brings him one step closer to treatment.

If you are unable to donate, please share Leon’s story. One share may reach the person who can make a life-changing difference.

Let’s give Leon the chance to grow up, play, smile and experience the childhood he deserves.

Donate. Share. Be part of Leon’s hope.

Instagram: @help.leon.sma
English: @help.leon.sma.eng
Medical reports and supporting documents are available for transparency and verification.

Thank you for standing with Leon.
Every day matters. Every share matters. Every donation matters. by @help.leon.sma.eng

Please Don’t Scroll Past Leon

Meet Leon, a beautiful 5-month-old baby boy from Tashkent, Uzbekistan.

Leon came into this world surrounded by love. Like every parent, his family dreamed of watching him grow, smile, play and discover life. But only a few months after his birth, they began to notice that Leon was becoming weaker instead of stronger.

After medical examinations and genetic testing, his family received the diagnosis no parent is ever prepared to hear:

Leon has Spinal Muscular Atrophy Type 1 (SMA Type-1).

SMA is a serious genetic neuromuscular disease that progressively weakens the muscles responsible for movement and, in severe cases, can also affect swallowing and breathing.

Leon is only 5 months old, and time is extremely important.

Leon urgently needs access to Zolgensma

Zolgensma is a one-time gene therapy for SMA, and early treatment can be critically important in helping children preserve as much motor and muscle function as possible.

The estimated cost of Leon’s treatment is approximately $1.6 million.

For one family, this amount feels impossible.

But if thousands of people stand together, the impossible can become possible.

Please help Leon.

Every donation — large or small — brings him one step closer to treatment.

If you are unable to donate, please share Leon’s story. One share may reach the person who can make a life-changing difference.

Let’s give Leon the chance to grow up, play, smile and experience the childhood he deserves.

Donate. Share. Be part of Leon’s hope.

Instagram: @help.leon.sma
English Instagram: @help.leon.sma.eng
Medical reports and supporting documents are available for transparency and verification.

Thank you for standing with Leon.
Every day matters. Every share matters. Every donation matters. by @help.leon.sma.eng

„Mein Baby braucht eine Beatmung. Was bedeutet das jetzt für uns?“🤍

Für viele Eltern ist diese Nachricht zunächst mit Angst und Unsicherheit verbunden. Denn das Wort „Beatmung“ klingt erst einmal beängstigend.

Doch wir können den Blickwinkel verändern und uns fragen: Was kann die Atemunterstützung meinem Kind ermöglichen?

Beatmung ist nicht nur eine medizinische Maßnahme, sondern auch ein Hilfsmittel, das den Alltag erleichtern und die Lebensqualität verbessern kann.

🤍 Die Atmung unterstützen
🤍 Die Atemmuskulatur entlasten
🤍 Die Schlafqualität verbessern
🤍 Die Erholung fördern
🤍 Lebensqualität erhalten

Der kleine Leon @help.leon.sma.eng hat Spinale Muskelatrophie (SMA) Typ 1. Durch seine Erkrankung hat er eine ausgeprägte Muskelschwäche und benötigt nachts Unterstützung beim Atmen.

Die nächtliche Beatmung hilft ihm, seine Atemmuskulatur zu entlasten und sich im Schlaf besser zu erholen.

Mit der passenden medizinischen Begleitung und den richtigen Hilfsmitteln wird Leon schon heute bestmöglich unterstützt. Gleichzeitig wartet er auf seine Therapie mit Zolgensma – mit der Hoffnung, dass er sich weiterentwickeln und aktiv am Leben teilhaben kann🤍

Mehr über Leon, seine Geschichte und die Spendenaktion findet ihr bei help.leon.sma.eng

BÖRGEL - Mehr Luft. Mehr Leben. by @help.leon.sma.eng

MrBeast, please help us save little Leon. ❤️

Leon is only 5 months old and lives in Tashkent, Uzbekistan. He has SMA Type 1 (Spinal Muscular Atrophy), a severe and life-threatening genetic disease.

His only chance is to receive Zolgensma. We need to raise $1,557,000 for his treatment — and we have only ONE MONTH left to raise the necessary amount while the treatment can still be most effective for him.

For Leon, every second matters. Every donation matters. And your help could reach millions of people.

MrBeast, we are not asking you to solve this alone. We are asking you to help us make Leon’s story visible.

Even one repost from you could bring this little boy’s story to people who can help save his life.

Please give Leon a chance to grow up, play, laugh and have a healthy childhood.

Please help us save Leon. 🙏❤️
#MrBeastHelpLeon by @help.leon.sma.eng

by @help.leon.sma.eng

Hello, this is Leon. He has spinal muscular atrophy (SMA) type 1 (most aggressive type).

When our son Leon was born, we could never have imagined that our lives would change so dramatically just in a few months later.

He was born completely healthy: strong, active, with a good weight. He cried loudly, ate well, and there was no different from any other baby.

But at just 2.5 months old, he was diagnosed with spinal muscular atrophy (SMA).

SMA is a rare genetic disease in which motor neurons — the nerve cells responsible for muscle movement — gradually die. As a result, the muscles become weaker and weaker. Children with SMA may have difficulty moving, holding their heads up, swallowing, and breathing.

There are several types of SMA:

• Type I — the earliest and most severe form. It usually appears within the first 6 months of life.
• Type II — usually appears between 6 and 18 months of age.
• Type III — may appear after 18 months, during childhood, or in adolescence.
• Type IV — usually develops in adulthood.

That is why no one is truly protected from SMA. The disease may show no signs at birth, and the first symptoms can appear weeks, months, or even years later.

Today, Leon is 5 months old, and time is the most precious resource for him!!!

We need your help. 🙏 you can help with link in bio #zolgensma #helpleon #sma #mrbeasthelpleon by @help.leon.sma.eng