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Hydrocephalus Association

@hydroassoc

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Our mission is to find a cure for #hydrocephalus & improve the lives of those impacted by the condition.

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Your experience is unique and your voice matters 💙 Thank you for helping us show the many realities of living with hydrocephalus!

To close out Hydrocephalus Awareness Month, we’re inviting you to share any photo or story that represents your hydrocephalus journey. Submit your photos by September 30 (Link in Bio) by @hydroassoc

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2 days ago

WALK season is going strong, and there’s still plenty of time to reach your next fundraising milestone! Check out this year’s incentive prizes and see what you can earn as you fundraise for the hydrocephalus community 💙 ( Registration Link in Bio ) by @hydroassoc

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4 days ago

Our next Panda Express fundraiser is 2️⃣ weeks from today, Friday, October 9! 🥡

Order online or through the Panda Express app, use fundraiser code 9015674 at checkout, and 28% of your purchase will support our work for the hydrocephalus community 💙 by @hydroassoc

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5 days ago

Two awareness months. One shared community 💙💙
This September, we’re raising our voices together for more awareness, early diagnosis, and the right support for people with #Hydrocephalus and #CVI — because together we create space for individuals and families to be truly seen and included.
Together, we’re building a community where no one feels alone in their journey! (Learn more at the link in our bio)

#CVIAwarenessMonth #HydrocephalusAwarenessMonth #CVIAwareness #HydrocephalusAwareness #StrongerTogether #HAM2026 by @hydroassoc

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5 days ago

Hydrocephalus Awareness Month is about raising awareness, but it’s also about strengthening the connections within our community 💙

This summer, more than 600 people came together at HA CONNECT 2026 to learn, share experiences, and connect with others who understand. Those connections continue throughout the year through HA’s programs, resources, events, WALKS and opportunities to get involved!

[ Click the link in our bio to take a look back at HA CONNECT 2026 and learn how you can stay connected ] by @hydroassoc

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6 days ago

Join us tonight at 7 pm ET for Understanding Neuropsychological Testing in Hydrocephalus. Learn how neuropsychological testing can help identify cognitive strengths, challenges & support needs for people living with hydrocephalus.

Can’t make it tonight? Our next webinar, The Role of Genetic Counseling in Hydrocephalus Care, will take place Tuesday, October 6, 2026, at 7 pm ET.
Register today at the link in our bio by @hydroassoc

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7 days ago

Yesterday, our community came together for World Hydrocephalus Day by wearing blue, attending our WHD webinar, lighting up landmarks, and raising awareness 💙

Thank you to everyone who helped shine a light on hydrocephalus! Now we want to see how YOU showed up for hydrocephalus awareness this month. Share your photos with us, whether you wore blue or your favorite hydrocephalus gear, lit up your home or community, attended a WALK, received a proclamation, or found another way to raise awareness.

📸 Submission link in bio by @hydroassoc

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9 days ago

Let’s turn the world BLUE for World Hydrocephalus Day! 🌎
Share these facts. Wear blue. Light up blue. Share your story. Start a conversation about hydrocephalus. 💙 by @hydroassoc

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10 days ago

It’s World Hydrocephalus Day! 💙🌎
Looking for a way to take part? Join us at 11:00 am ET for a free virtual event bringing together the hydrocephalus community and experts from around the world. Learn about early diagnosis and timely treatment of hydrocephalus while connecting with people from all over the globe!

(Register at the link in our bio) by @hydroassoc

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10 days ago

World Hydrocephalus Day is this Sunday! 💙
As we get ready to come together on September 20, take a few minutes to learn more about hydrocephalus and help others do the same. Swipe through these facts, then share them with your family, friends, and community.

This weekend, you can also help raise awareness by wearing blue, lighting up your home or community blue, and sharing what hydrocephalus means to you.
Let’s turn this weekend BLUE for hydrocephalus! 💙

#HAM2026 #WorldHydrocephalusDay #HydrocephalusAwarenessMonth #Hydrocephalus by @hydroassoc

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12 days ago

Where do you keep your shunt information, brain scans, surgery history, and symptom records?
HydroAssist® was created to keep your important hydrocephalus information organized in one place. This free app was designed specifically for people living with hydrocephalus and their families 📲💙 by @hydroassoc

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14 days ago

Every scar, shunt, scan, and surgery holds part of a story.
We’re inviting our community to share photos of the physical reminders that represent their experiences with hydrocephalus, including scars, shunt X-rays, CT or MRI scans, hospital stays, and medical devices.

Share an image and tell us the story behind it. (Submission link in bio)

(Please share only what you’re comfortable making public and remove any personal identifying information from medical images) by @hydroassoc

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15 days ago