Instagram story viewer> @iamkellyleanne> Posts

Kelly LeAnne

@iamkellyleanne

1.7K

followers

1466

following

🌀Healing as a Mother
🔥 Through the 🔥 of mold hell
💥It wasn’t “just autism”
✨Sharing the hard stuff + the tiny victories
📚Hang out with me in Stories

POSTS STORIES REELS TAGGED

Download All

Last month, we were shocked to discover that toxic mold hidden in our home was a primary cause of our son’s delayed development, challenging behavior’s, and sensory sensitivity that led to an autism diagnosis.

Having always been an intentional, low-tox Mama, I just never knew mold could cause neurological issues like his so I’m sharing our story to spread awareness and educate others.

Life is uncertain as we navigate what’s next. My son is still considered high-support needs. But what I can tell you is that losing our home has already felt worth it, and being his Mama already feels significantly easier because when he struggles less, so do I.

This is just the beginning, and I’m so excited to get to know more of my sweet boy beneath what’s been buried beneath the struggle.

I hope you’ll join us, because I know God is going to make good use of our story. by @iamkellyleanne

77

25

9 months ago

It seems like the majority of the autism community, Doctor’s and Therapist’s will dismiss nearly every concern a Mother like me has for their child, and call it “just autism.” The only rule? 100% acceptance. If you fail this, you’re an ableist, eugenicist who doesn’t love their child.

In my case, if I had listened to this, I would have accepted my son’s health deteriorating further, risking him developing seizures, degenerative brain diseases, mental health struggles, put his organs at risk, possibly developing cancer, and his body becoming more and more susceptible to all manner of exposures a well-functioning immune system fights for us every day. And more.

Accept your child for who they are right now, absolutely. Accept they can’t control how their body is adapting to circumstances you may not fully understand yet, but never accept your child’s grim future and suffering without doing what you can to support their body thriving.

Your child is an individual with a unique story that you know more intimately than anyone.

You are the authority on your child.

From one autism parent to another. If you suspect there’s something deeper going on than “just autism,” run the labs.

Discover what their biology has to say.

The cost of not doing them is so much higher. by @iamkellyleanne

69

25

9 months ago

My son, who is diagnosed with Level Three Autism, is 8 years old. It’s been eight years of big love and lots of worry. I always considered environmental factors for my child - I had switched to non-toxic cleaning and cosmetic products at least a decade before he was born. I checked ingredients in our food, sourced local, organic. We fetched water from a local spring. We did not to the CDC recommended 💉schedule.

However, I had a difficult pregnancy - hyperemeiss graviderum, preeclampsia, and HELLPS syndrome that led to pre-term birth via emergency c-section at 32 weeks and 3 days. He was in the NICU for six weeks and came home on oxygen support for three more months.

I always considered gut health, and saw improvement with diets like GAPS. I didn’t know how mold affects the gut, nervous system, and brain. And Homeopathy was so helpful for difficult symptoms like night terrors, picky eating and irrational fears.

We did Speech and OT for years and years.

In the last year or so, we pursued bio-medical testing. BIG GRATITIDE again to who supported our Go Fund Me to help us access care we couldn’t afford. We discovered our son had high-levels of mycotoxins from the most toxic molds hiding in our home.

It was then that I put the puzzle pieces together linking the bathroom reno we had done in my second trimester, where black mold was exposed and removed without containment, something I learned is a huge 🚩essentially setting off a mycotoxin 💣 No one used the word mold at the time, and I trusted the professionals working in our home.

I never thought indoor air quality was a problem in our home. And I believe it’s the most important environmental factor most aren’t considering, even among health-conscious, naturally-minded people, and is a huge contributor to sky-rocketing severe autism rates.

This is why I share, because you can be doing everything right and your home can be sabatoging your efforts.

A few weeks ago we moved into a new apartment built to German passive house standards - known for indoor air quality. We are experiencing positive changes in our health.

I’ll keep sharing the ups and downs on our family’s journey. A new chapter has begun. by @iamkellyleanne

52

22

4 months ago

For the past few months, my autistic son has been healing from mold illness and PANDAS. We didn’t know that’s what we were dealing with for YEARS…it was all “just autism” until I dug deeper. But that’s not what this post is about.

This is about healing, and where we are today.

For years, grocery shopping was the one errand I did every week with my son - and it took us out every time. It felt like navigating a minefield, my nervous system would be fried from managing behaviors and fending off meltdowns at every turn.

By the time we got to the check out lane, we were both DONE.

Our co-op has a fantastic coffee bar. There have been so many times I wanted to treat myself to a latte and give myself a little boost after shopping, and fuel to finish out the task of getting the groceries home, carried in and unpacked.

But I could never even entertain the idea. I never had the capacity to attempt another transition, standing in line, and waiting for it to be made with my son by my side. He was too disregulated, and I’d likely need that extra hand to get him through the parking lot safely.

But today was so different. Not perfect, but a completely different reality from the past five years. He transitioned with ease. He participated putting items into the cart. He waited patiently where I told him to while we checked out. That constant level of agitation and over stimulation is not there anymore.

So once we were all paid up and the groceries were packed (our store has a drive up and they carry them out for you), I decided to attempt heading to the coffee bar and ordering a cup.

It was not stressful at all.

I ordered a vanilla latte with oat milk and it was glorious! ☕️ It was a gorgeous, warm autumn day and I sipped it all the way home with the sunroom down and music blasting - that’s another new activity. We’re listening to music in the car again.🥹

This path is rocky and uncertain - but the quality of life upgrade we’ve experienced so far has already been miraculous.

Follow along if you want to join us on our healing journey. 🫶 by @iamkellyleanne

14

9

6 days ago

Autism is genetic should be the beginning of a conversation, but instead it’s used to shut conversation, curiosity, and questioning down.

We tested our son’s genetics. They didn’t find any genetic cause for his autism.

What we did find were mycotoxins, heavy metals, and a strep infection attacking his brain. And gut dysbiosis and mitochondrial dysfunction.

When those things were addressed, his symptoms improved significantly. Quality of life improved. And we are only a few months in to our healing journey.

It shouldn’t have taken years of searching and paying thousands out of pocket to get him help when there were 🚩🚩🚩 as an infant.

Genetically, he has an auto immune susceptibility.

His story is not unique.

Genetics matter, but the environment matters more.

When we shut down conversations about autism causes and treatment, we’re shutting out an entire generation of children from access to the fullness of life.

It’s perpetuating unnecessary suffering.

It’s a crime against humanity.

It’s what else also happens - the most profoundly affected get left out of research. Just 6% of autism research is dedicated to the most vulnerable and the most impacted.

It’s medical abandonment. It’s a disgrace. by @iamkellyleanne

30

5

7 days ago

This petting zoo experience was a big win!

It’s not that I haven’t taken my son to something like this before - but it would typically be an EXHAUSTING effort…

The preparations, the transitions, the OCD and anxiety loops. The inevitable meltdowns.😩 And we did have one yesterday. It wasn’t perfect. But it was a blip. Before and after were smooth. I came home feeling filled up, not depleted.🙌🙌🙌

And normally he wouldn’t engage in the “expected” activity. And while I’ve always embraced whatever brought him joy so long as it was safe, what I understand now about the Cell Danger Response (CDR) that his body has been stuck in for years is that when the body has to prioritize survival, its resources are prioritized toward protection rather than growth, exploration, and connection. Even enjoyable, familiar activities—like interacting with animals or engaging with other people—can become overwhelming because the nervous system is responding as though it isn’t safe.

That’s why moments like this mean so much. Not only is is just enjoyable as a family, it’s a sign he’s not stuck in CDR1 anymore.

Biological Healing is Happening.❤️

We still enjoyed his preferred activities - like watching the wind blow the tree branches and finding all the cool ceilings to look at — but he wasn’t “stuck” on just those. To watch him experience so much joy with a new, “more typical” activity, was AMAZING.🤩 by @iamkellyleanne

14

4

9 days ago

So many choices but TURDS gotta TURD, it’s just their nature.💩💩💩

🚨 NEW TERM ALERT: TURDS

(Taking Umbrage at Researching Deeper Suffering)

TURDS (noun, plural)

Individuals who have never met your child, reviewed their medical history, seen their laboratory results, attended a single appointment, or witnessed their daily struggles — yet remain remarkably confident that they understand your child’s condition better than you do.

Common characteristics include:

* Taking personal offense when a mother investigates underlying medical issues.
* Confusing their opinions with clinical expertise.
* Dismissing documented medical findings they haven’t actually read.
* Insisting that a mother’s lived experience is misinformation when it challenges their worldview.
* Believing that supporting a child and investigating their health are somehow mutually exclusive.
* Demanding that mothers stop publicly sharing what they’ve learned.

Example in a sentence:

“I shared my child’s medical journey, and suddenly TURDS appeared in my comments.”

Don’t be a 💩 by @iamkellyleanne

19

8

11 days ago

A few days ago, I shared Reel calling these people out and asked my audience to chime in on naming this group of individuals, and then I did a Poll in my Stories to select the winner. @dontsaypans 🏆

LET’S MAKE THIS GO VIRAL🤣🤣🤣

Thanks to everyone who participated and I’m pleased to announce 📣 📣 📣

🚨 NEW TERM ALERT: TURDS

(Taking Umbrage at Researching Deeper Suffering)

TURDS (noun, plural)

Individuals who have never met your child, reviewed their medical history, seen their laboratory results, attended a single appointment, or witnessed their daily struggles — yet remain remarkably confident that they understand your child’s condition better than you do.

Common characteristics include:

* Taking personal offense when a mother investigates underlying medical issues.
* Confusing their opinions with clinical expertise.
* Dismissing documented medical findings they haven’t actually read.
* Insisting that a mother’s lived experience is misinformation when it challenges their worldview.
* Believing that supporting a child and investigating their health are somehow mutually exclusive.
* Demanding that mothers stop publicly sharing what they’ve learned.

Example in a sentence:

“I shared my child’s medical journey, and suddenly TURDS appeared in the comments.”

A friendly reminder:

You don’t have to agree with another mother’s approach. But you also don’t get to rewrite a child’s medical history, dismiss their suffering, or silence the person advocating for them.

Mothers are allowed to ask questions.
Mothers are allowed to investigate.
Mothers are allowed to share what they discover.

Don’t be a TURD. 💩 by @iamkellyleanne

36

25

11 days ago

Last December. I found out my family had been being poisoned by toxic mold in our home for years. At the same time I learned my 7 year old severely autistic son had a chronic strep infection attacking his brain.

Our life imploded. We moved. It’s been non-stop testing and medical appointments and a steep learning curve full of ups and downs but I’ve connected with the most incredible mothers!

Most Doctors dismiss us and society calls us crazy conspiracy theorists, but we live with the truth in front of us daily as we witness our children healing once these things are addressed - environmental exposures like mold, 💉 and infections. And treating CFD if needed.

There’s always more to learn, but if you are new to this journey I will share some of my fav accounts to follow for medical information for our kids. There are Doctors who listen to parents, look deeper, and don’t stop learning like your mainstream Doc probably did.

@lindseywellsnd
@nhoharamd
@wholistickids
@brfmedicine
@drjillcrista
@the.family.undoctor
@ditchthediagnosis
@biomedicalhealingforkids
@dr.joshmadsen
@dr.kyledaigle
@dr.connerbor
@tacanow
@medmapsofficial

We are currently addressing things like EMF’s in our home, and will be pursuing a FRAT test and Lyme’s testing in the coming months, so stay tuned.

Stay humble and never stop learning. Our kids are counting on us.❤️ by @iamkellyleanne

269

37

12 days ago

You know I’ll be digging into the raw data next.🤔

What about you, did genetic testing reveal anything insightful for your family? by @iamkellyleanne

70

33

13 days ago

The worst part of being an autism mom of a severely disabled child is watching them struggle and suffer.

The second worst part might be the random strangers who mock us for asking questions, digging deeper, and helping our kids heal - and sharing what we’re learning. I could be wrong, but it feels like a unique quality to autism mothering.

I need a psychologist to study this phenomenon and give it a name. The confidence-to-information ratio is truly fascinating. 😂

But most autism mom’s are smarter than most Doctor’s anyway, so let’s see if we can come up with a name!

Some suggestions I have are -

Genetics Certainty Derangement Syndrome (GCDS)
Autism Mom Gaslighting Syndrome (AMGS)

Leave your suggestions below.👇 by @iamkellyleanne

74

28

14 days ago

If your goldfish was sick, you wouldn’t call its dirty water “acceptance.” You’d look at the environment it’s in. You’d change the water. And it would be absurd to call that unloving or quackery.

Genes matter. But genes and environment aren’t opposing explanations—they interact.

Supporting an autistic child’s body doesn’t mean rejecting who they are. And acceptance doesn’t mean ignoring gut health, nutrition, sleep, environmental exposures, inflammation, infections or other treatable medical conditions.

It’s 🍌🍌🍌 this needs to be said at all.

I can love and accept my child exactly as he is and keep asking what might help his body and brain function at their best.

In fact, that’s accepting my responsibility as a mother - because no one else will advocate and fight for his health like I will. No one knows his health history or body better than me.

And just like a goldfish gets sick and dies in the same water a clownfish thrives in - let’s stop pretending bio individuality doesn’t exist in children.

Some of our children are canaries in the coal mine, and they deserve to have their environment match their sensitivity, not to be silenced, dismissed or medically abondoned in the name of “acceptance.”

That’s some twisted, upside down, 🤡 world rhetoric.

Perhaps even more, we could learn from them something that helps us ALL thrive. by @iamkellyleanne

29

13

16 days ago