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imteresarose

@imteresarose

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May we - may I - remember this. by @imteresarose
0
9 days ago
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An affirmation. A remembrance. A goal. #lifebeyondillness #chronicillnesslife #neurologicaldisease #chronicmigraine #complextrauma by @imteresarose
0
16 days ago
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My why. I never want to take any moment for granted because my functionality is never guaranteed. 🧠#neurologicaldisease #chronicmigraine #spinalcsfleak #idiopathicintracranialhypertension #venoussinusstenosis intracranialhypotension csfdisorders by @imteresarose
2
25 days ago
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A rainy day hike. So thankful that I can do this. 🫶🏽 by @imteresarose
1
a month ago
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When you get diagnosed with multiple chronic illnesses that are painful and have no cure, it is so easy to feel hopeless. On high pain days when symptoms are raging war, hopelessness is often not far behind. I remember the moment my one doctor told me the treatment outlook for my type of spinal csf leak wasn’t great. I remember the moment my neurosurgeon told me that they did not know why people got venous sinus stenosis and IIH. I remember learning I also had chronic refractory migraine and realizing that this is a neurological disease with no cure. Now, I am on the road to being diagnosed with an autoimmune disease. In the midst of all of this, the question I have often found myself coming back to time and time again when I am deeply exhausted is ‘what am I fighting for?’ Why do I continue to see my medical team more than my own family and friends? Why do I continue to trial different medications and undergo procedures that are physically taxing and risky? And then I have breakthrough moments where I find myself doing the things I used to do before I got diagnosed with everything. It is for these moments - moments where I get to witness beauty. And I am thankful. Beauty is what saves me time and time again. #chronicallyill #chronicmigraine #neurologicaldisease #intracranialhypertension #csfleak by @imteresarose
3
a month ago
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Building capacity on these trails - physically, mentally, emotionally, and spiritually. #chronicmigraine #csfleak #neurologicaldisease by @imteresarose
0
a month ago
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Another trip around the sun. I am thankful to be here. #29 #gemini by @imteresarose
25
2 months ago
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“How rare and beautiful it is to even exist” by @imteresarose
1
3 months ago
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Some things from April 🌸🌷 by @imteresarose
1
3 months ago
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As I prepare for another hospitalization next week, I am reminding myself why I continue despite the grief, anxiety, and fatigue. It is to live the life I long for and to continue to have moments where I am able to experience beauty. What is your why? #neurologicaldisease #neurologicalhealth #brainhealthmatters by @imteresarose
2
4 months ago
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Slowly getting back on my feet and reintegrating. Doing the things again that me feel alive in this limited body. Seeking the places where Love is. by @imteresarose
2
4 months ago
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Ive been finding myself in this strange in between place cognitively and neurologically as I continue to receive treatments for my numerous neurological conditions. My physical energy has been slowly coming back more and more, but my mental capacity is still dragging behind. Some days I have space to do brain based games, read, write, and engage in more artistic activities while other days I can only handle naps and silence. Everything in my life has come to a screeching halt. In many ways, it feels like I am relearning how to just live day to day (with many physical restrictions). If I am honest, I feel a little lost. I sometimes feel like a stranger in my own body. There is also much grief. The past six months have been…more traumatic than even I realized myself. I know hope remains. I believe in resiliency and neuroplasticity. Healing is always present. by @imteresarose
2
6 months ago
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