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Jennifer

@jenns_43

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#cushingsdisease
#pituitarytumour
#braintumour
#uclhlondonhospital
#braintumorawareness
#pituitarytumoursurgery
#checkyourhealth
Benign or malignant, brain tumours kill.
We know our bodies and if something doesn’t feel right, get checked.

This is my second time here & I’ve had to push & push to be heard (and seen) but who gains 25-30kgs without changing their diet, who was swimming to keep fit & used to do body pump?

This little guy is too close to the main artery in my head. Worse case scenario if surgeon were to nick, it is death, best case, if nicked, I’ll be licking windows in a specialist hospital.
But they must tell you these things before an operation.
If not all of this head squatter comes out, there’s a huge possibility of gamma knife after 4-5 months & on two medications for life.

My main goal now is to educate on this disease as only 10 people per million will be diagnosed with it each year. It’s not an easy illness to confirm (first tumour took 2.5 years to diagnose) but you can help yourself & fast track … write your symptoms down, as stupid as ‘My eyes are itching’ and take your list to your GP; demand blood work.
Cushings will only be confirmed after a multitude of tests, these chemical tests WILL eventually confirm if you need a MRI, so it does take time, but wait for no one (GP’s get minimal time studying endocrine) you must see an endocrinologist.

Let’s remove this thing & give me back my life. by @jenns_43

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a year ago

Nothing else really needs to be said 🤣🤣 by @jenns_43

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a month ago

Cotswold weekend with these three
1) Daylesford
2) Stow on the Wold
3) Cirencester by @jenns_43

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a month ago

by @jenns_43

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a month ago

So glad that @holkham.hall had a tractor trailer ride to show my friend some of the estate…. I can’t even walk a km!
Huxley absolutely loved it, sat still the whole time and just took it all in.
Now home and he’s registering all the smells his schnoz has taken in today.
A lovely end to a lovely visit. taken in Holkham Hall, Norfolk by @jenns_43

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2 months ago

by @jenns_43

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2 months ago

Gotta love an all day blood test!
Started at 08:00 and finishing at 18:00.
If they take anymore, my veins will be empty 🫣 taken in The Queen Elizabeth Hospital King's Lynn NHS Foundation Trust by @jenns_43

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3 months ago

#adrenalcrisis
#cushingsdisease
#hospitalstay
#endlessdrugs
#pincushion taken in King's Lynn, Norfolk by @jenns_43

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4 months ago

Forty one years ago, you left us. Still miss you. Like it was yesterday. by @jenns_43

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4 months ago

After the hottest day of the year last week a visit to the @thepakenhamfox in Suffolk was needed.
A beautiful old pub with a meadow that is surrounded by a shallow river.
Food portions were HUGE and so fresh. by @jenns_43

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5 months ago

He’s free to a good home. by @jenns_43

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5 months ago

Absolutely delicious chicken Caesar sandwich and fries @norfolk_foodhall with @candischutney. Not able to eat half of it, so taking home! Huxley had two sausages! by @jenns_43

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5 months ago