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kali rae

@kaliadameccc

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All Glory to God💖
@wjcvolleyball ‘30

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happy rare disease day🤍🤍
I haven’t particularly ever shared my story with anyone until a few months ago. I was born with an extremely rare disease known as lymphatic malformation. A simple definition of this is, a developmental abnormality of the lymphatic system characterized by fluid filled masses in a specific area. Mine is on the left side of my jaw-neck. There is no cause or cure of this disease, but it is treatable. I am so, so privileged to be able to get treatment in New York City by some of the best doctors in the country, and that are some of the only doctors that know how to treat me.

About three months ago, I received my 16th and 17th surgeries and I couldn’t be more thankful. Everything went extremely well and I am already fully recovered. I am so blessed to have my mom and my sister always by my side and for all of my friends and family for always supporting and praying for me. Most of all, I thank God for all of it. My life today is extremely different than what we were told it to be sixteen years ago. I am who I am today because of that and I know that I was made in the image of the Lord. I am reminded how lucky I am everyday by the beautiful life I get to live🤍#rarediseaseday2025 taken in Manhattan Eye Ear & Throat Hospital by @kaliadameccc

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2 years ago

baby card!!❤️‍🔥❤️‍🔥 by @kaliadameccc

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2 months ago

TYJ for my family❤️ by @kaliadameccc

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4 months ago

height mogging but in mex🌺🌺 taken in Cancun, Mexico by @kaliadameccc

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5 months ago

lots of lasts🫶🏼
psyched for what’s next!! by @kaliadameccc

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5 months ago

last ever senior sunday!! #igraduatethisweek by @kaliadameccc

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6 months ago

my hometown girls🌾❤️‍🔥 #og4 #forevermybestfriends by @kaliadameccc

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6 months ago

last one best one #yayprom by @kaliadameccc

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6 months ago

threw a semi💌🕺 by @kaliadameccc

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8 months ago

by @kaliadameccc

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10 months ago

I am SO excited to announce my commitment to play division II volleyball at William Jewell! First off, I thank God for this amazing blessing and opportunity. Next, I want to thank all of my family and friends for always supporting me, especially my mom for all she has done for me and for always believing in me! I also want to thank all of my coaches and teammates for always pushing me to be my best. I am so thankful for this opportunity and so excited for the next four! Go Cards!!❤️🖤
#stayingredandblack #allglorytogod by @kaliadameccc

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a year ago

thank you odessa volleyball❤️❤️ so grateful for this team and all of the memories we made. couldn’t have asked for a better four years of high school volleyball. forever a bulldog!!!! taken in Odessa High by @kaliadameccc

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a year ago