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Kelsey Drury

@kels_lynne_

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TJD 💎 5-20-22
JMD 👶🏼 6-1-23
INAD Mama on a mission - Jack’s Miracle Mission! 💜💪🏼

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5-20-22 💍 my fav horizontals

📸: @kphotoweddings by @kels_lynne_

Happy Halloween from the cutest Jack-o-lantern and our growing pumpkin patch! 🎃🧡 by @kels_lynne_

When we started Jack’s Miracle Mission, we asked our community to help us fight for a chance at treatment. You showed up for Jack and our family, and you have stayed beside us ever since.

Now, with FDA clearance to move forward, the money we raised together will help fund the first-ever gene therapy clinical trial for children with INAD. Your generosity has helped bring us to this moment, and we will never be able to thank you enough.

To Leena Panwala and the incredible team at the INADcure Foundation, thank you for carrying this fight on your shoulders for so many years and creating a path for children like Jack. And to the INAD families who have fought, fundraised, and shared their children’s stories alongside us, we are so grateful to be part of this community.

There is still a road ahead, but today we get to celebrate a milestone we once could only hope for. Thank you for helping us get here. #INAD #inadcure #inadcurefoundation by @kels_lynne_

The best way to close out summer 2026! ☀️⛱️ #family

If I'm being honest, this was the first time in my life I found myself wishing summer away... hoping this next season will bring us closer to our miracle and some happiness. 💜 It was a tough summer for many different reasons but we are grateful that we still have so much hope to hang on to!

We are still patiently waiting on news of the gene therapy clinical trial as I know so many of our friends/family and other INAD families are too. We promise to share any update as soon as we have it! 🤞🏼💜 #hope by @kels_lynne_

This is what happens when awareness turns into action!
Katy Friday didn't know our family or our son, Jack. She simply saw our story, believed it was worth fighting for, and shared it with her team at The Trade Desk. That one act of advocacy helped lead to a meaningful grant for Jack's Miracle Mission, supporting efforts to raise awareness and advance research for Infantile Neuroaxonal Dystrophy (INAD).
Since launching Jack’s Miracle Mission, our community has helped raise more than $1 million because people chose to do something. They shared, advocated, and inspired others to join the fight.
To Katy, The Trade Desk, and to everyone who has helped carry our story forward, thank you. Every story shared, every act of advocacy, and every show of support has the power to change a life! #JacksMiracleMission #INAD #INADcurefoundation #TTD #TheTradeDesk by @kels_lynne_

Happy Birthday to Jack’s favorite person on the planet… you came into our lives during the darkest, most difficult year yet brought so much joy and relief to our family.

Thank you for loving Jack like your own and becoming one of my closest friends! You are forever part of our family & we love you!! 💕🫶🏻 by @kels_lynne_

This is what can happen when hope is shared and people choose to act. In just four short months, our community came together in a way we never could have imagined, raising more than $1 million and turning hope into real, tangible action. What once felt impossible is now moving forward: a potentially life-altering gene therapy is one step closer to the children who desperately need it. Thank you to every person who showed up, who gave, who shared, who prayed, who stood beside our family and fought for Jack. Your love, generosity, and belief have carried us through the hardest days, and they continue to carry us forward today. We feel your support in every step we take, and we will never stop being grateful. Thank you 💜 by @kels_lynne_

Yesterday marked a tough milestone in Jack’s INAD journey. We had to make the decision to place an NG tube after a swallow test showed he was silently aspirating on any type of liquid. While he will still get to enjoy his favorite snacks and finger foods, and this will only replace liquids… this one was a difficult one for us. Even though Jack can’t do most physical things there are many days he is so happy and content I often forget we are battling this horrible disease. This changes that because now every time I look at him I will be reminded. Instead of people commenting about how adorable he is, they will wonder what’s wrong with him. I know this will be the best for him in the long run and will get easier on my Mama heart, so for now, all I can do is hope this is just a temporary speed bump on the journey to our miracle.

The good news- Jack doesn’t even flinch when inserting the tube, his nurses said he handled it better than most teenagers and adults do! Smiling through it all and once again proving how strong our little warrior is not matter what life throws at him 💜💟 by @kels_lynne_

This year, more than ever, we’re overwhelmed with gratitude. Thank you for the love, the generosity, and the incredible support you’ve shared with our Jack. Wishing you a happy Thanksgiving from our family to yours 💜

📸: @danadayphotography 💕 by @kels_lynne_

October was an incredible month for Jack’s Miracle Mission — we raised over $100,000 thanks to amazing community support and unforgettable events like our Parker House fundraiser, Rumble Boxing class, and Kevin Kelly’s pasta-making night! We also had the opportunity to attend the Maximum Growth Summit, sharing Jack’s story and our mission to fund the first ever potentially life-saving gene therapy treatment for children with INAD. With these efforts, we’ve now raised over $775,000 — incredible momentum, and we’re so grateful for the community making it all possible 💜💜💜 by @kels_lynne_

Jack’s Miracle Mission ✨
This month, we’re sharing the story of one incredibly special family — the Drurys — and their brave little boy, Jack. 💙

Jack was diagnosed with an ultra-rare disorder called INAD, and his parents, Tim and Kelsey, have made it their mission to bring hope, awareness, and action to this heartbreaking diagnosis. Their strength, love, and faith in the power of community are nothing short of inspiring.

At this time, there is no cure. And all money raised will go toward funding a clinical trial to fight for one.

Which is why we’re calling upon you…We believe in miracles, too — and in the goodness of people coming together to make them happen. 💫

To support Jack’s Miracle Mission and be part of this family’s fight for hope,

(Link in bio) please visit 👉 give.inadcure.org/team/758191

Let’s rally around them, Lincroft. 💙

#LincroftLiving #JacksMiracleMission #CommunityLove #INADAwareness #BelieveInMiracles by @kels_lynne_

This bracelet is truly a beacon of HOPE for children battling INAD. The science is there: a revolutionary gene therapy treatment for INAD has shown promising results. The only barrier standing between children and a potential treatment is FUNDING.
By wearing this Little Words Project bracelet, you are literally delivering that hope.
💜 25% of all proceeds from the "HOPE" bracelet go DIRECTLY to the INADcure Foundation to help families access this potential life-saving treatment.
When you wear "HOPE," you are actively creating a miracle.
Click the link in the bio to shop & fund HOPE today!
#JacksMiracleMission #INADCureFoundation #WearHope #LittleWordsProject #INAD #GeneTherapy #FundTheCure #ChildrensHealth #Fundraiser #littlewordsbigimpact by @kels_lynne_