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@luckydarrs

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Changing Narratives around Down Syndrome
Mama of 7 💙💙💙💙💙💖💙barista wannabe, marriage + chaos. 🕺
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Do you agree!??? Because I cannot unsee this. His new name is Levi Fredrickson 🥹🥹🥹 that smile melts me and so did Carl in the movie Up 🎈 🏠 #downsyndrome #trisomy21 #downsyndromelove #downrightperfect #downsyndromerocks taken in Chattanooga, Tennessee by @luckydarrs

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Words are coming slower but we celebrate every single inch towards communication for Levi 💙💛🥹#downsyndrome #trisomy21 #downsyndromelove #upsyndrome #downrightperfect by @luckydarrs

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3 days ago

The only way this kid smiles is the flashlight 😂 it's hilarious, also spy those shark teeth on the bottom. I've literally never seen anything like them in my other kiddos. Dental health and Down syndrome is like the wild Wild West, you never know what you're going to get. Sometimes teeth come in wonky, in weird orders, really late or not at all. He just had his first dentist visit and did great, one thing he told me was people with DS tend to not have cavities in the same way normal population does, but they tend to have more gum issues. This kiddo is teaching us so much about life and differences and I love being his mama 💙💛💙💛 #downsyndrome #trisomy21 #downsyndromelove #upsyndrome #downrightperfect taken in Chattanooga, Tennessee by @luckydarrs

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6 days ago

Just another day of living his best life 💙💛#downsyndrome #trisomy21 #downsyndromelove #upsyndrome #downrightperfect taken in Nashville, Tennessee by @luckydarrs

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12 days ago

One of the sweetest surprises about this journey? Finding your people. 🥹💙💛

These are friendships I never knew I needed, with moms who just get it without needing an explanation. You feel like you've known eachother all your life because it just flows right.

Down syndrome has brought so many unexpected gifts into our lives… and these friendships are definitely at the top of the list. 🫶🏼

So grateful our littles brought us together. Tag a mama you're grateful to have met through this journey and if you haven't found friends yet, give the people tagged in the comments a follow, I've made the most amazing friends just by reaching out and saying "hey we just found out our son has Down Syndrome and I'm scared" 🥹. 💙💛 these connections make this life so much brighter. #downsyndrome #trisomy21 #downsyndromelove #upsyndrome #downrightperfect by @luckydarrs

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13 days ago

To the mama currently receiving a Down Syndrome diagnosis. 💙💛 you got this.

The mom you see today on this page isn't who I was during pregnancy. We found out at 13 weeks that it was 86% positive that Levi would have Down Syndrome. I cried dang near my entire pregnancy. The families I connected with who had been in our shoes truly gave me hope and faith to keep one foot in front of the next. Walking in fear is terrifying but my oh my is it life changing. I imagined all the worst, and I still have to catch myself from getting too far ahead into the "what ifs" but the reality is that any child's life can change in the blink of an eye, extra chromosome or not. Levi's life has changed mine for the better. And I have no doubt your sweet child's will too. Hang in there and lean on us mamas. We've been there and all your emotions are valid. You got this and we've got you!!! #downsyndrome #trisomy21 #downsyndromelove #upsyndrome #downrightperfect taken in Chattanooga, Tennessee by @luckydarrs

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16 days ago

The video I wished would have flashed before my eyes when I told y’all through tears the day I got the call about Levi’s Down syndrome diagnosis. (Ignore the crying sniffles 🫠😂)

The fear. The unknown. The million questions I couldn’t stop asking myself.

I wish I could have seen THIS.

The giggles. The cuddles. The chaos. The milestones. The little personality that would completely steal our hearts. The life we would build around him.

I wish I could have known then what I know now.

That the life I was so afraid of… would become a life I wouldn’t trade for anything.

If you’re sitting in that same fear right now, I know how impossible it feels to believe that it will be okay.

But I promise you… there is so much more ahead than you can see from where you’re standing. 🤍#downsyndrome #trisomy21 #downsyndromelove #upsyndrome #downrightperfect taken in Chattanooga, Tennessee by @luckydarrs

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18 days ago

It's the stomp dance moves from Levi for me. Cannot wait to continue watching these twos shenanigans 🥹💙💛 Down syndrome added a little extra spice to all of us; to feel like fully! #downsyndrome #trisomy21 #downsyndromelove #upsyndrome #downrightperfect by @luckydarrs

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20 days ago

Dear Mom,

‘There will always be voices speaking loudly about lives they have never lived. People in the “cheap seats,” far removed from the day to day reality, yet confident enough to define your experience, predict your future, or reduce your child to statistics and assumptions.

But they are not the ones doing bedtime. They are not the ones holding tiny hands through milestones, laughter, hard days, and everything in between. WE ARE! They are not the ones who get to witness the full, ordinary, undeniable reality of a life they’ve only ever imagined from the outside.

Don’t let their quick google searches for “facts” turn into authority. They want so badly to prove us wrong, to be correct with the story they’ve been told. But they aren’t the authority.

Because what we live is not a theory. It’s not a debate. It’s a child. A life. A relationship that cannot be captured in percentages, risk factors, or worst case scenarios.

And the truth is, the more we stay silent, the more fear fills in the gaps. But the beauty is that the more we share; honestly, imperfectly, fully. The more families get to see what we already know: that our children are not footnotes in someone else’s argument. They are whole people writing full stories.

Keep sharing the beauty. Keep sharing the real. Keep sharing the moments that never make it into the comment sections.

Because someone, somewhere, is still forming their understanding of Down syndrome and your lived life might be the first thing that softens what fear tried to harden. Our stories change the direction, so keep sharing 💙💛 #downsyndrome #trisomy21 #downsyndromelove #upsyndrome #downrightperfect’

Thanks so much for sharing with us @luckydarrs! by @luckydarrs

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20 days ago

cannot believe that it’s already been a YEAR since we were surrounded by people with Down syndrome + people who love people with Down syndrome in Times Square + Central Park in New York for @ndssorg Buddy Walk!!!

i want to go back and relive it all again — a girls trip with my bestie + my mom, meeting the best people, seeing NYC for the second time, + hanging with TWO lucky levis?! literally, what a dream 🗽🎡🌃💫🎟️🌳

#downsyndrome #theluckyfew #nothingdownaboutit #newyork #centralpark by @luckydarrs

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23 days ago

Talk about whiplash 😂 I spent months every Sunday questioning this life I was entering. Feeling so unsure I was capable of handling all the unknowns and a life I never envisioned having.

You see: I thought we were done having kids. Lucy truly felt like the icing on the cake of our family. A girl after 5 boys; everything felt pretty dang complete. So when that positive sign appeared I felt all the emotions. I hoped simply for an easy baby 😂 like please just give me the most easy going baby. So when my doctor called and said "trisomy 21" I lost it. I felt honestly a tad betrayed, like hey 👋 I wasn't expecting this baby and now you're tossing a disability I know nothing about at me? Honestly I think this is why God handed me this at 13 weeks pregnant because He knew I was gonna need some time.

Time to grieve. Time to question. Time to be scared.
Time to learn. Time to connect with those who
walked before me. Time to settle into this new life.

And if you’re in that season right now; afraid of what’s ahead, I want you to know you’re not alone. EVER!

It’s terrifying trusting that it will all be okay when you have no idea what “okay” is even going to look like.

Honestly, I didn’t feel like it was all okay until the moment our eyes met at birth. The second those sweet almond eyes locked with mine, I knew nothing about Levi was a mistake.

I knew I would do anything for this little man.

It was truly a light-switch moment.

All those hours. All those months. All that fear.

It just switched.

The life I had spent months being afraid of suddenly had the sweetest face I had ever seen.

And somehow, the unknown didn’t feel so scary anymore.

It was just Levi. And I loved him. #downsyndrome #trisomy21 #downsyndromelove #upsyndrome #downrightperfect 🤍 by @luckydarrs

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